Wanting to try SCD diet, major confrontation from wife.

just my opinion, but sounds like your wife is irritating your colon -

have you determined whether gluten is a problem or not ? cuz if you do have any issues with it, the best thing to do is complete elimination -

Lol troubled turds, this disease is also rough on her and she gets a little overwheelmed sometimes. Thats one thing about marrying a latino, its not hard to get them upset and their emotions go wild especially when you say you gotta give up rice which is a part of their daily diet, I was strictly no gluten for a long time but slowly eased back into it, probably wasnt the best idea.

And yeah quincy I asked them about getting some rowasa enemas but she said where my recent CT scan showed my inflamation in my transverse colon that the enemascant reach that far wouldnt help that much. I will be starting Ucerus soon along with my lialda regimen to see if that will keep things undercontrol, we got it approved thru insurance today.

I think it's funny that she has that much control over your diet. I personally wouldn't expect any miraculous results with diet, but it's definitely worth trying. If you don't try, you will always wonder if that diet may have been the key to your health improving - and worse would be if you blame her for making it difficult.

What's the big deal really? You try it for a few weeks or months, and if it works, you keep what works and discontinue what doesn't work. Does she have to prepare everything for you? If I had to make the meals for someone, I wouldn't want to be bothered either. I did it for myself because I wanted to, but I certainly didn't expect my boyfriend to prepare, buy, or eat the food I was eating. He kept eating whatever he wanted. That's the great thing about being two individual people, she can do what she wants, and you can do what you want! If you want to do something, make it happen. If you wait for her permission, blessing, or assistance, you will likely not get to try the diet, and that would be no ones fault but your own. She has no reason to eat or cook that way - often it's a waste of time regardless. I wasted a lot of money on ingredients/books, and time preparing not very exciting meals, and eating less than nutritious, low calorie and enjoyable food and had no success at all. Other's claim to do better.

I've had varied results with the SCD diet.

My wife suggested it as we already eat very healthy and prepare almost all of our meals at home so it wasn't quite the leap for us that it is for others. People can be quite fanatical and cult-like when it comes to diets, especially SCD, but I would recommend reading the book (it's short) and trying the intro diet and see if you have any improvement in a couple days. If so, keep going.

At the end of the day, the SCD diet, specifically the no-sugar mandate, is pretty much how people should be eating anyway. It's basically running your body on fats instead of carbs/sugars. I mean right now I'm eating cauliflower rice, grilled chicken and zucchini and it's delicious! Didn't even do it on purpose. Lol.

Due to insurance change (from a group to individual plan) my insurer no longer has Asacol as part of their formulary and will require me to try step therapy prior to (maybe) approving the more expensive (over priced) asacol (that has kept me in remission for 24 years! Anyway, when inquiring with my GI Re switching he stated that while the others are fine for patients in remission asacol works better (for some patients) achieving remission when flaring. I don't know if asacol is an option for you but perhaps this may be an alternative prior to trying more potent Rxs.

I haven't attempted SCD but I know the types of foods that aggravate symptoms and I avoid or eat them in moderation. (E.g. Alcohol, preservatives, excess dairy, excess fried foods, excess bulk such as beans, excess fiber... Just to name a few)

Thank you for all your responses!

To answer your question troubled turds I reintroduced gluten to my diet when I was somewhat undercontrol and we started making our own bread in a bread machine with locally stone ground whole wheat flour. The bread only had 5 ingredients and didnt seem to makenit any worse, but as time went by I started also eating things like the staceys pita chips and some other more plain wheat snacks.

We cook basically all of our meals. I will cook dinner on monday and fridays when she stays at worl later than i do and she normally has dinner made for me when i get home tues, wed, thurs. I think she just gets overwheelmed with the idea of not knowing what to cook or worried im not eating enough food. Their culture is huge about big meals and always offering seconds which i have learned to just say no about.

As of now since we have talked about it more shes not so oppossed to it which is good. In a marriage the husband and wife are basically one. All decessions directly affect one another. So thankfully she is being more receptive as of last night.

My doc told me to kick the pred and start the Ucerius this morning so gonna see how that goes. Had a pretty rough nightblast night, i did go to bed early but I woke up darn near 5 times because of pain and need to go to bathroom to let out basically nothing.. getting ready for work now at 5AM... its gonna be a good day!

I don't do well with lactose and follow SCD (including the yogurt). Theoretically, all lactose should be eliminated during the yogurt making process outlined in the book. I will occasionally get some mild cramping from the yogurt but find it is well worth the discomfort as it has pulled me out of some mild flares in the past. I make it in my oven using just the oven light for heat and an oven thermostat.

I disagree with jayhawk only in the time you should give the diet. Food is not magic and you are not going to"cure" your disease with a couple days of diet change. Give it a full month or two of strict adherence and take it from there.

i've never tried SCD - shouldn't have read the book cuz all it did was scare me away - way too much work -

i have a much easier solution for you, guaranteed --------eat meat ! there, see how easy

Have you had stool tests? What dose of prednisone were you taking? Why does the GI think Uceris will help if prednisone didn't? I usually see it go the other way, people start with Uceris because it's more mild, and if they don't have luck, they move on to prednisone - pred is a stronger, systemic drug.

I don't really buy into the "husband and wife thing are basically one". I think it's extremely important for people to maintain their own identities for their happiness and independence - but to each their own. I am happy she's willing to give a little to help you try out this diet, it is about give and take...

Sorry you're having a bad morning. I really hope the uceris and diet is enought og et you headed in the right direction. The truth is, uceris only works while you're on it (and if the inflammation is mild/moderate. Severe is less likely to respond), so you do need a plan for when you get off of it & I personally wouldn't put all my eggs in the diet basket. I'd definitely get enemas, and I'd take the max dose of mesalamine, and I'd find out the scoop on the prednisone/uceris, why are you switching, were you ever on a high enough dose of prednisone to induce remission? Most people start at 40mg daily at least, unless symptoms are very mild.

@sicklygirl yes when I was in the hospitsl they did take dome stool tests but they did not find any infection, they said they only found white blood cells but yet when I was on the IV they were giving me antibiotics when i never understood. I have no idea why they wanted me to stop the pred and start the Ucerius but im thinking it was a bad idea. My colon is really hating me right now and causing alot of pain, im about to just return to the ER...

I like that idea London i absolutely love coconut. Sometimes when i got a sweet tooth my wife will blend up some frozen banannas with vanilla and a little honey or agave for sweetner and make a quick simple homemade ice cream which tastes pretty good.. ah the simple things in life.

The strongest steroids are IV, then prednisone, and the weakest in strength/effectiveness are uceris and rectal-route steroids. My doctor said he'd only give Uceris if the patient had mild or at least very moderate inflammation. Severe inflammation almost always warrants Pred or IV steroids (depending on how severe).

It's common for WBC to be elevated during an infection or as a consequence of a UC flare. The SED rate within your blood test is also helpful for determining inflammation.