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Posted 6/7/2017 6:30 PM (GMT 0)
How much blood are we actually loosing per day during a flare? I am currently going 5-6 times per day with bright red blood on the toilet paper, and at least 3 times per day the water in the toilet becomes red. I know that diarrhoea might make it look more than it is but I am really wondering is it like 2-3 tablespoons per day?

During a BM, after the first outflow (which is usually liquid), I can see probably 5-6 drops falling in the water, than some stool comes out (at very high speed, i.e. my anus has to squeeze a lot to push it out), then some more drops, then that's it. Still kind of difficult to measure, and not sure when I should start to get worried.. (overall I am not feeling tired, lightheaded etc... yet!)

thanks guys&girls!
Posted 6/7/2017 6:45 PM (GMT 0)
How much? Not much as would be if you were going 15 - 20 times a day.

I'm wondering if you also have a fissure?

I do hope you're on rectal meds.

q
Posted 6/7/2017 6:52 PM (GMT 0)
Yes I guess it could always get worse :-D ! But I would think that someone who has 15BMs per day with blood would pretty much need to go straight to the hospital if it lasts more than a couple of days... so I am really try to gauge how far in the bleeding pyramid I am vs. others (because if I compare to my past experience only, this is probably the worst)

yes I am taking pentasa 4g nightly but it stopped working so I am thinking of stepping up to Cortifoam. Wouldn't a fissure come with massive anal pain? Right now I don't have pain in the anus area, more of a "discomfort", as if something was there waiting to get out (I guess it's typical tenesmus).

thanks!
Posted 6/7/2017 8:44 PM (GMT 0)
I've read that we can loose 1-2 teaspoons, or at most 1-2 tablespoons of blood per day within a UC flare. Often it looks like a whole lot more blood than it actually is, because even a single drop of blood mixed with water, stool, mucus, or other things can look like a lot more than it actually is.
Posted 6/7/2017 9:16 PM (GMT 0)
I had 20 x a day razor like bloody diarrha....no hospital, steroids. At least my doctor at the time sent me to a GI finally. I did lose 17 pounds, however.

My doc was only concerned if I couldnt see through the blood in the toilet.

Are you only taking 4g enemas? No oral mesalamine? How long on the enemas?

your symptoms really arent horrific.

q
Posted 6/8/2017 5:17 AM (GMT 0)
Who is one to say someone's symptoms are not horrific. That Is a horrible thing to say to someone. This while disease if horrific and treats everyone different. Being an elite member you would think they would have a little more compassion for someone who is asking these kind of questions.
Posted 6/8/2017 7:36 AM (GMT 0)
I have been taking the enemas since January and also 4x500mg asacol pills, which I now stepped up to 6.

I started Colifoam yesterday night and still I had bloody BMs this morning - how long did it take to work for you?
Posted 6/8/2017 10:43 AM (GMT 0)
one man's horrific is another man's ho-hum

it's an opinion, not a medical diagnosis, based on a bit of experience -
Posted 6/8/2017 3:04 PM (GMT 0)
ok I see - and how were you feeling back then? I guess completely tired but if you managed to go on for 8 months with it, was it manageable?
Also, how are you today and how did you get the bleeding to stop back then?

@iPoop: I found some horror stories in another forum, some people are losing as much as 1 litre every 2-3 days...
Posted 6/8/2017 3:22 PM (GMT 0)
I was pretty exhausted and always tired but still managed to go to work every day and the gym as well. It's all will power at that point.

I fixed it by having my colon removed.
Posted 6/8/2017 4:05 PM (GMT 0)

Brad8769 said...
Who is one to say someone's symptoms are not horrific. That Is a horrible thing to say to someone. This while disease if horrific and treats everyone different. Being an elite member you would think they would have a little more compassion for someone who is asking these kind of questions.

You should mind yourself firstly if you're going to be rude and chastise without any inkling of knowledge....taking advantage of that opportunity without any support to the OP is far worse behaviour.
Posted 6/8/2017 11:00 PM (GMT 0)
Nothing drastic but enough for some to go anemic.
Posted 6/9/2017 6:01 AM (GMT 0)
Anyways as far as the op and question at hand, if you have any blood be sure to make your gi aware. Could be something small like inflammation, or could be the start of something worse. I went through this for 2 years before i decided to see a doctor. I was more embarrassed than anything. Did you eat something lately that is a known trigger for you. Could be something you ate. What medicine are you on? Oral medicine or any enemas?. I'm sorry to invade your post but its a harsh disease that plagues all of us. Noone has it worse than the next person.

(Edited for flaming, watch it)

Post Edited By Moderator (iPoop) : 6/9/2017 10:53:39 AM (GMT-6)

Posted 6/9/2017 8:27 AM (GMT 0)
Ok I see. Thanks everyone for your replies and no need to heat up - there are far more important stuff to think of these days, like our lovely bleeding gut!

So as an update: yesterday was day 2 on Colifoam and so far it had no impact at all - this morning I went 2 times with a lot of blood. Yesterday I also only had Elemental diet and today will be the same; however from tonight until Sunday I will need to eat solid food again because I am traveling. Yesterday I had 4 BMs with a lot of blood and felt really tired, today I took a day off work to rest (I work in finance so a day off is reeaaally a big deal for me).

I also stepped up the asacol intake to 6 pills of 500mg per day, and started taking curcumin supplements.

Today I am thinking of starting a course of Flagyl which has helped in the past. When I get back on Sunday night I will start 2 weeeks of Elemental diet + Flagyl which should be a powerful enough combo to get me out of here. I will keep you guys updated, if you have any suggestions on how you stopped bleeding in your experience plase share!!! Thanks a lot!
Posted 6/9/2017 9:20 AM (GMT 0)
Patience. It's going to take more than 2 days to heal from a flare. Give a treatment multiple weeks before writing it off as ineffective. I kmow flares bitterly suck and we want them over with yesterday, however it can take a month or even months to beat a flare and heal. Good luck!
Posted 6/9/2017 2:04 PM (GMT 0)
I've been in a flare for 6 weeks now and its been horrible. Blood has stopped for most part. I am now to the phase where when i have a bm i am throwing up aswell. Really only first thing in the morning. Doctor put me back on 40mg of prednisone. Only good thing I can say is ive lost alot of weight in the 6 weeks. I was 256 and now im 209. Doctor is worried im looking it to fast. Good luck and keep up posted. Look Into the qing dai powder. Lots of good results from people on here.
Posted 6/9/2017 2:35 PM (GMT 0)
Unfortunately nausea is a UC flare symptom. Nothing like having to poop and throw up simultaneously, seems UC is just pure misery at times. I hope you feel better soon!
Posted 6/9/2017 2:43 PM (GMT 0)
Hope you get better Brad8769. I've ordered qing dai but it takes a while to get to europe. Did it help in stop the bleeding for you? Or how did you make the bleeding stop?

I have started flagyl today, had 2bms this morning with lots of blood and urgency - to the point that when I was running to the toilet drops of blood fell on the carpet and my house now looks like a crime scene... I am feeling better than yesterday though. The plan is to stay elemental until tonight, then notmal food until sunday evening then elemental again for 2 weeks. I also did colifoam this morning after the two BMs, I will do another one tonight before bed.

Will keep you posted
Posted 6/9/2017 4:59 PM (GMT 0)
Watch it Brad8769, we're here to help others and not flame. Consider this your warning, posts edited and deleted. Use the forums ignore user button if you must. Thanks!
Posted 6/13/2017 4:33 AM (GMT 0)
I bled like that for six months and ended up anemic. It wasn't horrible, but definitely a weird fog about me for a while.
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