First UC now Osteoporosis....I'm only 34

Hi Guys,

I was diagnosed with ultracitive colitis in Oct 15. I was on predisone for 11 weeks and so far it seems as if it's stable.

I had a dexa bone scan in December and only got the results recently (ps I have a milk allergy since birth so I have been on calcium supliments all my life).

Lumbar -4
Neck -2.5
Hips -2.4

I have been sent for further blood tests as my GP cannot understand why a 34yr old man has this.

I'm so depressed I really don't know what to do. I read that its irreversable then about the side effects of medication. I also read that prunes have recently come to light as a cure through a recent study but many deny this...

Any advice will be most welcomed.

I have had osteoporosis since my late 20s. It's not irreversible though. Weight bearing exercise and supplements can slowly reverse it. Make sure to take your calcium with vitamin D and K2. And of course no more pred for us.

Hi Deen

I know my mother reversed her osteoporosis with once a month tablet and vitamin D - you can have an injection once a year now which I'm going to have. You need both together to work and weight-bearing exercise is brilliant. I walk on the south downs a lot when well.

Good luck

Cath

hey deen -

maybe some good points here >

articles.mercola.com/sites/articles/archive/2012/05/16/vitamins-d-and-k2-reduce-osteoporosis.aspx

unfortunately, bone disorders are pretty common in the UC world. the malabsorption of nutrients and steroids are the biggest causes. i was diagnosed with osteopenia in 2011 and then osteoporosis in 2014. i was devastated. between then and now, i started taking AlgaeCal bone supplement and eating 3 servings of dairy a day. just had a DEXA (i believe in january?) and i have reversed it back to osteopenia. the lab tech said this is pretty uncommon as most cases require medication.

now, i am younger than you and i've read that your peak bone mass is at age 30 and then declines after that. i still had time to build more since i am only 26.

do you do weight training or go for walks??

It is hard to imagine the damage was done in only 11 weeks of pred. It sounds like you lifelong calcium issues may be involved.

I have heard of reversing osteopenia. They do claim some meds can reverse osteoporosis.

maybe try the Algaecal supplement. it's supposed to be absorbed easily by the body.

i'm lactose intolerant so i just eat lactose free dairy and that works fine.

the exercise WILL DEFINITELY help so get on that!! i bet you would be able to reverse it back to osteopenia if you added some weight training.

what calcium supplement have you been taking?

Hi Guys,

I wanted to update you all on this old thread.

I've been working with a natropath for my UC since DEC16 and he said Osteoperios is more common than people think with UC (as per the posts above).

He believes it is perfectly reversible but you need more than just calcium and vit D. So I have been taking vit D, K2 mk 4 & mk 7, magnesium, selenium and sometimes boron, he mentioned that the above are fat soluble so most people dont take them with fat and then complain that they dont have any effect. Additionally I have been taking Molasses too.

He pointed out that most people with UC have malabsorbtion and the best way to combat this is to increase stomach PH etc.

Previously Dec15;

Lumbar -4
Neck -2.5
Hips -2.4

I went for another DEXA in Jun 16;

Lumbar -3.2
Neck -2.7
Hips -2.3

In Sep I had an IV of zoldronic Acid Bisphosphonates which I now regret as extensive research I have done shows that they make bones brittle, increase fracture risk, ruin your kidneys etc and merely improve Dexa numbers....

He also mentioned that diary doesnt help at all (fine by me as im allergic to it anyway) and to avoid soda/cola at all costs.

I wanted to know if anyone has had any success with non Bisphosphonates route and any tips/advice?

Thank you all for reading and your advice in advance

Thanks Uniform Charlie,

Thanks for mentioning that, I am planning to join a gym and start lifting, but I didn't know where to start, useful to know that bar bells are useful in this.

before even thinking about that Boniva crap, do some research -