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Im about to loose my mind, someone, anyone!

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Ulcerative Colitis
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Posted 8/27/2017 5:39 PM (GMT 0)
Easier said then done, no thing i know for sure is something isnt right and im scared as hell . Thanks for your reply
Posted 8/27/2017 6:41 PM (GMT 0)
What are you scared of, exactly? Having IBD? Your symptoms not getting any better?
Posted 8/27/2017 7:18 PM (GMT 0)
Im 23, i've never had any health issues in the past. Never had any stomach issues ever. I smoked breafly, but excercised and was in good shape. This just all came out of no where and i havent felt myself in over two months. I know everyone on here lives with it everyday, much respect. But it scares me to think i may never have my norml life back, i dont want to live a "fairly normal"l life after 23 years of being well. In the last two months ive lost all ambition, im in pain everyday, and the uncertainty is what scares me. Im sure everyone who has beeen dignosed has been through much of the same. Im not sure if my initial symptoms was a flare and now im in remission...but everyday right now is a struggle, i wake up and look forward to coming home to bed
Posted 8/27/2017 7:23 PM (GMT 0)
i am scared of both cup o tea, dont mean to sound like a wuss... although i havent been diagnosed officialy .. i know this is the most stressfull time. 1000 crp nd colitis.. doesn't exactly sit well with me.

I know if it does end up as IBD there were be a rogh period of time when ill just have to accept it. Hopefully, there is something that can take away the fatigue and pain i feel. I have my mother to look after and i needa be strong for here

Post Edited (albear99) : 8/27/2017 1:29:13 PM (GMT-6)

Posted 8/27/2017 7:42 PM (GMT 0)
Like i said before you don't have IBD unless you've been diagnosed with it. In my opinion, you don't have IBD because you lack crohnic changes in your biopsies. You're just taking your anxieties on a crazy ride when you worry that you have it. I'd recommend laying off of googling IBD, talk to your doctor, and have a little faith in him/her.

We can have crazy CRP readings just from infections.
Posted 8/27/2017 8:27 PM (GMT 0)
Well don't be scared of the IBD until if/when it happens. There's many other causes of colitis and IBD is just one of them. It's also fairly rare, which makes it much less likely that you'll get it.

Worrying about symptoms you have right now is a different kettle of fish and I completely understand you on that one. Again, it's just a waiting game really, to see if they pass or not. In the meantime, do try any IBS remedies, such as antispasmodics, which may help. Or even a course of mesalazine. From what I've seen of studies on IBS and mesalazine, it's most helpful for those with post-infectious IBS. As that's something your GI thinks you could have, ask him about trying a course of mesalazine. It's safe enough and you lose nothing by trying.

iPoop - He's talking about calprotectin, not CRP. Calprotectin is specific for intestinal inflammation, which is why it's obvious the guy had an attack of colitis of some kind. Also, CRP wouldn't ever get as high as 1000.

Edit: Sorry. I feel like I've been snappy/irritable/nitpicky of late, including in this topic. I know you mean well, iPoop, and maybe my approach is wrong. I dunno.

Post Edited (NiceCupOfTea) : 8/27/2017 4:03:28 PM (GMT-6)

Posted 8/28/2017 1:26 PM (GMT 0)
From what my GI has told me an intestinal infection could csuse a fecal Calprotectin level that high or even highe. I also migh of taken a couple aspirin that day. But who knows, i have my doubts i contracted something like that out of nowhere, and had no other symptom, but everything the doctor has seen lead him to that diagnosis. I definetly have colitis, but i dont think a flare of chrons/UC would heal with a couple weeks , with no meds (a
Little pot), and show up a relativly clean scope with negative biopsies. I will talk to him today and ask about mesalazime, prednisoe right now doesnt seem to be helping much
Posted 8/28/2017 1:45 PM (GMT 0)
iPoop thought you meant CRP, or C-Reactive Protein, which is a blood inflammatory marker (an understandable mistake, since you kept on talking about the crp, but I knew from your reply on the Crohn's board and from your talk about a stool sample rather than a blood sample, you meant calprotectin, not CRP). Calprotectin can quite easily go over 1000, but CRP never does. CRP rarely goes over 100, but can reach 200, 300 or maybe even 400 - but at those levels you'd be looking at severe infection like sepsis.

Prednisone not working is another sign that it's probably not UC/Crohn's, since those conditions tend to respond to steroids. Try the mesalazine. If you had a temporary bout of acute colitis you may well have been left with post-infectious IBS. From what I've read about PI-IBS it does go away for most people after a few months - except for the very unlucky it's not a permanent thing.

That's what I mean by waiting games. There's a good chance your symptoms will clear up, never to return, but we can't tell you how long it will take. Good luck with your doctor: I hope he's agreeable to trying mesalazine.
Posted 8/28/2017 1:58 PM (GMT 0)
Well albear......I drove myself nearly bat crap insane prior to my latest scope. Some of us have a really hard time trying to stop the analytical process in our brains (and that NEED to know). I get that 100%.

Maybe googling proof that it isn't always a catastrophe might help? IBD really IS super rare. And then even if a person DOES get an IBD diagnosis, it isn't always a big calamity in symptoms. I have never had any diarrhea OR major pain with UC.

It has always been deemed "mild" ----by two different GI's. This past flare I had symptoms for 20 months and despite seeing both mucus and blood daily, it never graduated to "moderate" even !

I am an avid athlete and only quit running and lifting weights because I wanted to allow my body to use every single ounce of energy to mitigation of my symptoms (and I know now this was nothing more than an exercise in the mental realms) I am pretty sure it wasn't necessary and I'll be getting back in my running shoes this week.

I will say that there hasn't really ever been a question about what my diagnosis was/is because even back when I had my first scope in 2008 I had minor architectural changes noted on a cellular level.

Now despite seeing that on the biopsy report, my GI at the time even with that knowledge didn't give me a specific diagnosis. It wasn't until I got a new doctor that I saw anything in writing that said a firm "UC diagnosis". No idea why and I never asked ......I actually preferred thinking it just *might* be regular colitis !

I hope that's what YOU have, too......but no matter what, even if you have UC, it may not ever get worse and it may even "burn itself out" (did you happen to see that thread here?).

Concentrate on all that can go RIGHT as opposed to go WRONG.......that's usually how things turn out

smile
Posted 8/28/2017 3:18 PM (GMT 0)
NCOT, yeah I shoulda said FCP and not CRP (my bad), but same general point applied: high numbers can be seen from an infection.

Ditto on try the mesalazine, if you've given the Pred multiple weeks to work and have gotten nothing from it.
Posted 8/28/2017 4:02 PM (GMT 0)
Thank you everyone once again, your support has been much appreciated. This will be my last post before i try not to do anymore research. Ever since i started the pred, my stool has been somewhat dry and cracked, im wondering if this is what is leading to my anu discomfort. Its not really pain but i oftern get like a small murmur feeling towards the beginging of the rectum or a buzzy feeling in the anus. Any idea if this sounds like an internal hemmie problem or pissibly a fisure. Ive been using proctosol and another zinc cream but it doesnt seem to be improving much either. Thanks so much, if i dont reply i wish everyone good health!!!

Oh and my blood CRP was normal, sorry for the condusion

Post Edited (albear99) : 8/28/2017 11:22:50 AM (GMT-6)

Posted 8/28/2017 6:26 PM (GMT 0)
Good luck!

What you describe with the stool could be mild constipation. Pred doesn't directly cause constipation as such, but if the inflammation is knocked on the head really quickly it can go from diarrhoea to constipation almost overnight (don't ask me how I know). On the other hand, if your abdominal pain was caused by inflammation pred should have knocked that on the head as well. So.. I'm not sure. It may just be one of those unexplainable things. Eat more fibre and drink more fluids and see if that loosens/softens up your stool a bit.
Posted 9/5/2017 2:10 AM (GMT 0)
Sorry to post again, but they thought mine was ibs caused anxiety due to the fact I randomly was having horrible panics. That's why I got no help, but I'm a very raaaare case ibd is usually genetic as I was told by specilaist, just relaying information trying to help, if they haven't picked up ibd by now they do go into remission but you'd still have something. That's why I suggested calprotectin, shows anny inflammation anywhere and if it's negative that's how you know for sure it's ibs. I think you sound very anxious and chewed about your symptoms like I was, I think you should see the Dr for more reassurance, also a bit grim but I knew it was ibs not ibs as I was hospitalised atleast 3 times a week every month due to pooping out clots of blood haha, if u don't poop the blood I wouldn't worry, but I'd say go Dr ad tell them all your worries he can advise you a lot better

Post Edited (abigailb22) : 9/4/2017 8:16:17 PM (GMT-6)

Posted 9/5/2017 2:14 AM (GMT 0)
And sorry I've just read you don't thik ibd goes away by itself, yes it does. It goes into remission, which is why mine took so long because they had to wait until it was bad enough to see. He told me that's why people take years to diagnose and I basically got lucky due to they thought it was that and are basically now monitoring it waiting to turn into fully fledged chrons if you will. I get the steroids though, 12 a day when I've been hospitalised, but like I said, and sorry for spam posts literally just finished with drs so trying to be helpful, but unless there's blood I wouldn't be worried, I thought I pooped once and it was a lump of blood that's when I knew it wasn't ibs haha
Posted 9/5/2017 3:23 PM (GMT 0)
what i meant by it does not go away on its own,usually it takes some kind of medication to have symptom relief. Abigalib22, so you have had c-scopes with biopsies come back 100% clear, everytime? Or did you have ur first scope without biopsy? From what i hear it is the pathology that is really the key to diagnosis.

Anyway, i wanted to update everyone i found the presnisone wasnt really helping with anything so i decised to taper off. Now my stool seems to be more loose than it was befoee i started the medicarion. Also, i can't be 100% sure, im still going 1-2x a day only but the color of my last couple BM was quite dark, possibly blood? It wasnt black and tary but dark enough to wory me. There was also a tiny bit of brighter red, which ill chalk up to the hemmie.

Any thoughts? Time for another GI visit? Why would i start bleeding now, but not have any other symptoms increase such as urgency and frequency, seems very weird to me. Thank you!!!
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