Entyvio Update Status

Amazing news FlowersGal,

I am on Entyvio right now and I have had 3 infusions. Some regards I feel better like the number of BMs, my stool is starting to regain some normal solid form, and the bleeding seems to be decreasing. however, i have noticed a lot more stomach pain which i'm assuming is cramping.

i was just curious about the timeline of your progress. i feel like im pretty typical with the progress ive seen at this point, but was just curious at what point you really felt like you had turned a corner.

Thanks margieKay!

SH13: https://www.healingwell.com/community/default.aspx?f=38&m=3812531&p=2

I chronicled my first infusions on that thread. Looks like I saw a definite improvement by #3 and had gained some weight. I did had my first 3 infusions only 2 weeks apart each -- at 0, 2, & 4 weeks instead of 0-2-6. So maybe that helped? Hope you continue to see improvement. They say to give it 6 months at least and can take up to a year for full remission so don't be discouraged by a slower progress. I was also still on some steroids in my the beginning.

You might want to give the steroid foam a try. I found that was a great help with blood and cramping.

My next infusion is Oct 10 so we must be about on the same schedule. I bet you see an improvement after your next. My6 month anniversary will be sept 29!

Best of luck to you!

Post Edited (FlowersGal) : 9/16/2017 8:39:47 PM (GMT-6)

Congrats! Glad you've found your solution.

Glad it's working so well for you!! I've been in remission for almost a year now on Entyvio. It's been great for me.

Awesome to hear, congrats flowers gal!! Hearing this news definitely gives me hope! I just had my fourth and have shown good progress. I hope to follow your lead and may your remission last a lifetime!!

Whee! I love to hear success stories! Thanks for the congrats!