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Recently diagnosed with colitis

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Ulcerative Colitis
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Posted 10/14/2017 10:51 AM (GMT 0)
I was recently diagnosed with colitis in late May. Have been on 27 mg of Entocort since with multiple dose packs of Prednisone. Currently on 30 mg of pred each day plus the entocort. Have diarrhea most mornings multiple times, but occasionally soft formed stools. I can't seem to figure out if food is contributing to the diarrhea or not. I do not eat dairy and mostly eat low carb with some white rice. I try to avoid sugar also, but am not always successful. The doctor is doing testing for Humira, I was not a good candidate for 6MP. Should I ever expect a firm stool or are soft stools (but not white diarrhea) as good as it gets? Any advice is appreciated.
Posted 10/14/2017 10:53 AM (GMT 0)
Suppose to say (not quite diarrhea). Darn autocorrect.
Posted 10/14/2017 1:08 PM (GMT 0)
Of course it can get better. It can take time, everyone is different but you can definitely reach remission. It may take some time to figure out the right medications and dosage and possibly the right diet, but long term remission is very likely for most from everything I have read.

This time last year my son (10 years old then) was much sicker than how you described you are. He had bloody diarrhea several times a day (and night) and vomit inducing cramps. By the grace of God and the right medication, he is in remission and has been for several months. As I am writing this he is warming up for his swim meet. He’s doing his first 500 yard race today, plus a 200 breast and a couple others.

Hang in there and figure out the right combination of meds and diet.
Posted 10/14/2017 1:49 PM (GMT 0)
I was diagnosed with UC in November, so it's just short of a year since I have been dealing with this. Through my short time all I can say is nothing is going to be immediate. Unfortunately you're going to have worse days than right now, and some days might be better. Humira was the first medication I have been on, and I have been off and on pred for months. However there is a light at the end of the tunnel! I'm not on remission by any means, but the last month I have felt amazing compared to when I was first diagnosed. I have c diff right now...so no formed stools, but before I got this infection again I didn't have any diarrhea for a while. It's possible but it's gonna take time.
Posted 10/14/2017 5:58 PM (GMT 0)
Paxton...welcome to the forum.

Is the entocort oral or Rectal?

Have you been on any 5ASA meds yet such as mesalamine oral and rectal?

What is the extent/location of your UC?

q
Posted 10/14/2017 7:26 PM (GMT 0)
Thanks everyone for the suggestions. My entocort is daily and that and Prednisone ate the only meds I have taken so far. My UC is in the right side of my colon, u have had occasional blood, but not daily. Urgency to go in the mornings, typically have diarrhea 3 to 5 times in the mornings. Sometimes it lasts all day, sometimes not. Generally have cramps too.
Posted 10/15/2017 6:22 AM (GMT 0)
Right side you say....🤔

And is the entocort oral or rectal?
q
Posted 10/15/2017 11:33 AM (GMT 0)
Yes the right side of my lower GI is constantly swollen and sticks out more than the left side. The entocort doesn't help much. I had no idea there was any other option besides oral. Should I also be taking probiotics and other supplements? Folic acid maybe?
Posted 10/15/2017 6:46 PM (GMT 0)
So, you are saying Crohns colitis...not UC?

Do you have biopsies results?

q
Posted 10/15/2017 6:59 PM (GMT 0)
The doc said it was colitis, but not Crohn's. I had ulcers in my colon and I know they took biopsies during the colonoscopy. The letter I got said colitis and I thought the doctor told me right side, but I could be mistaken (I was still loopy from the colonoscopy). I go in next week for a chest x-ray and TB test for Humira. Thanks for the advice!!!
Posted 10/15/2017 7:02 PM (GMT 0)
How did everyone figure out what foods may make the diarrhea worse? I am trying to keep a food diary, but can't seem to figure out if anything makes it worse. It seems I have diarrhea no matter what? Also, is it normal to have a kinda solid stool followed by 2 or 3 times of diarrhea? Should I be avoiding high fiber foods? Or is fine a good thing with colitis? I see some people take supplemental fiber.
Posted 10/16/2017 6:59 PM (GMT 0)
Keeping a food diary helps but the only way to be sure is to do an elimination diet, which means to start from scratch and reintroduce foods gradually.

Having said that, UC can make you have diarrhea irrespective of what food you eat if you are flaring.

I did an elimination diet, SCD, and worked my way up to eating basically Whole 30, and that helped me understand what my body likes, tolerates, and doesn't tolerate.

But in the end what really works for me is suppositories, steroids and Humira, even though I still keep a food diary. wink
Posted 10/16/2017 7:50 PM (GMT 0)
Thanks that is very helpful. I definitely need to try the elimination diet. As best I can tell now, lactose and greasy foods make me worse. Spicy foods irritate it some. Thanks!!!
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