Hair Loss Humira

I'm sorry to hear your hair is falling out. That is devastating. I had some hair loss in the past and it ended up being really low vitamin D levels (like non-existent) and probably a few other vitamin deficiencies (I ended up going on prescription vitamin D and super B vitamins). Maybe see if your doctor can check to for any deficiencies?

Also, I noticed in your signature that you finally got off of Prednisone. I think that can mess with your hormones which can affect your hair. It might be worth asking your doctor if there is anything he can test/do to help counterbalance the prednisone.

Good luck!

Edited to add: my hair stopped falling out eventually (maybe 6 months?). It got patchy, but I don't think anyone noticed but me. I tried to be kind to it (less brushing, ponytails, styles that would pull it out). It has been almost two years and my hair is pretty much back to normal.

I agree with ColitisGirl, maybe it's from the prednisone you were on. I know I used to lose hair on my head with pred and grow it everywhere else. It's possible you're seeing the worst of it now and it will start regrowing now that you're off. How are you feeling aside from being down about your hair. I am sorry, that stinks. I think it will grow back. I've lost and grown hair so many times from UC and drugs. I have literally 2-3 heads of hair though, so it's not very noticeable. I also agree with totes, the vitamins might help a ton.

I started vitamin B12 and D supplements and my hair stopped falling out.

Thanks everyone! much appreciated. I have ordered some Biotin and will start taking more vitamins in the hope that at some point it will stop. I have read that Humira can cause hair loss for some people! or it could be because I have recently stopped the Prednisone, I don't know.

nssg..I still have the rash on my face, but again, I have read that that can happen to people when they taper off Pred, so it might be that. I am still aching everywhere, its no better or worse and I will see how I go this week.

Yep....lost tons of hair after my hospital visit. They gave me prednisone IVs that made my legs and feet swell so bad that I couldn't walk. I had long hair then, but had to cut it very short. Still losing hair everyday since I got off of the prednisone. So grateful for this forum!!! I don't feel alone on this journey anymore.

I’ve had bouts of major hair loss as well, since diagnosis, both before and after starting Humira. I believe mine has more to do with the severity of the flare and general depletion of my body. I’m slowly improving after a long flare, and I’m noticing less hair loss everyday. Take your vitamins and try to handle your hair as little as possible. Chin up, it does grow back! Good luck😊

Some people who experience hair loss from meds sometimes are helped by taking biotin and folic acid. It wouldn't hurt to also take a multivite with B complex, vitamin C, and ZINC.

But instead of extra folic acid perhaps you should consider taking folate instead, which is the natural form of folic acid. Those with MTHFR gene mutation cannot metabolize folic acid efficiently so they need the natural methylated form of folate. Many IBDers do have the MTHFR problem and that may contribute to getting IBD in the first place. I dunno, you may want to consult with Dr. Google about that. But supplementing by taking extra folate instead of folic acid couldn't hurt.

Also ask Quincy. She is a hairdresser and it may have been she who said Nioxin shampoo might also help.