Posted 11/1/2017 6:50 PM (GMT 0)
It's tough when you're new to UC, to know what is a flare symptom, a side effect, and so forth. It'll all get easier over time once you get to know your UC and what to expect from it.
It doesn't sound like you are doing horribly by any means, however your concerns do need good responses from a knowledgeable doctor. To that end it totally sucks that your gp is about as sharp as a jumbo bag of marshmallows.
I'd call your gasteroenteroligist office, tell the IBD nurse that you've tried your GP and he isn't at all knowledgeable and you're frustrated/confused/struggling as a consequence thereof. So, you'd greatly appreciate if you could ask her a few questions and get some good answers. Maybe the IBD nurse can answer them herself, maybe she might have to ask your gasteroenteroligist and then get back to you, either way it is the better path forward I think. Write a list before you call, and check them off as you ask them (as to not forget any). be persistent and make sure you get a response to all. GI offices are busy places, and it is very easy for them to poo poo your or my worries. You shouldn't have to be a pest to get what you need, but we often find being your own best advocate for what you need to be well to be an essential thing. We have to call, call, call or even show up in person as that's sometimes harder to ignore! if you are a hornet in their ear then you will get answers. Be a quiet mouse and you'll get lost within their daily commotion.