Hi everyone. I've always came here in my time of troubles, to read and realize, once again, I'm not alone in this, but I never made an account till now. The reason I have is because in the last 2 years I've been diagnosed with IC in my bladder and meniere's disease in both ears. I have those 2 under control thank the Lord, but my UC has been out of control for almost 10 months now. about
2 weeks ago for no reason I can see, I came out of the flare and had 2 good weeks, and for yet another reason unbeknownst to me, I'm right back into it. So 10 months, 2 good weeks. I have taken a full course (28 days) of rectal corticosteroid enemas (months ago) At the end I had more bleeding, but I figured it was from the use of the steroids thinning the lining. Once I stopped and went to Mesalamine enemas bleeding quit, but still urgency, and can't trust gas, like AT ALL. So I had taken like 2 weeks of the ME's and then all good, for 2 weeks, now right back to blood with stool, MOSTLY on toilet paper. I can have one decent bowel movement, soft but formed well enough, with just a little red at the very end. Then an hour later it's worse, then later in the day straight D. I don't understand how I have all 3. I've been back on ME's for about
a week and a half now. I missed last nights and today was the same 3 as described above. Can just missing one night do that? Dr wants me to take Pred, I don't want too. I'm trying to start the SCD diet, and have been on SCD restricted food for 5 days, but i skipped the intro, cause I didn't realize their was an intro. Starting that tues. Also until they pulled Asacol 400mg, I was only taking that 1 pill 3x daily. With that I had 2 flares a year tops, lasting at MOST a month. Since they put me on delzicol (did nothing as far as I can tell) and I had to switch to Asacol800HD, that is when all this started. Not 10 months bad, but I started getting more and more flares. Can UC move, because I never had to take enemas before 2 yrs ago, and never had the gas expelling stuff issue either. Doc says all my inflammation is in my last 18 inches of colon. Oh Also, sometimes after a day like today, I won't have to go for a day up to 3 days, then it all comes out like today, does that happen to anyone else? Not sure what vitamins to take with the SCD diet, was taking D3 and a standard probiotic. I'm going to try t make the SCD yogurt for probiotics
Diagnosed 2005-6 Been living with this for 12yrs, last 2 have been rough. Any thoughts, suggestions, ideas let me know please
Current Meds: 3 Asacol 800hd 1@7am, 1@3pm @11pm Mesalamine Enemas nightly