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Posted 11/15/2017 2:40 AM (GMT 0)
hi guys, my chest x ray said "calcification and fibrosis" in my lung. Read about idiopathic pulmonary fibrosis (IPF) on the net with bad prognosis, only few years ahead, freaked me out. Although I read there is difference between PF and IPF. IPF commonly affects the elderly and autoimmune seems to have a hand in this. My pulmonologist didn't concern about my lung fibrosis, he said I could come back for another chest scan in one year.

how about you guys? Any of you has pulmonary fibrosis? I read here that lung issues are common with UCers. Thanks a lot.
Posted 11/15/2017 6:46 AM (GMT 0)
Unfortunately, there is a connection for some via IBD and IBD meds (mesamine for one).

I have asthma and had x-rays, but no notice of fibrosis that I know of.

What is the treatment proposed for you?
Is there a description as to the areas that are affected?

Sad to hear you're having to deal with another health issue.
q
Posted 11/15/2017 9:13 AM (GMT 0)
my x ray test was just found only recently after I decided to search it for good in my house, only to realize that it was written like I said before. It was for my colonoscopy which revealed colitis. When I showed it to my pulmonologist, he just took it easy and explained the fibrosis area in my left lung which was small, just like a pen scratch. So he didn't change his protocol, he keeps giving me inhaled steroid and nebulizer. Although I read, for IPF, steroid doesn't work well, there are 2 drugs for IPF but those are hard for the liver (pifernidone and nintedanib) (not to say I have IPF here - hopefully I don't)

My doc just said I had lot of mucus. In the early appointment he said I had allergic asthma. My spirometry result was below normal but he said it was still okay. My IgE was elevated too.

So based on my doctor words about my lung fibrosis, I hope my fibrosis case isn't a serious one. But I do have shortness of breath, tight chest and tiredness.

My colitis now is in very good state. I hope it keeps going on like this.

Thanks for your kind support.

Post Edited (exbenzo) : 11/15/2017 2:19:56 AM (GMT-7)

Posted 11/15/2017 5:40 PM (GMT 0)
Not quite the same thing, but a few years after my UC diagnosis and about a year after my first surgery, I developed a lung problem called BOOP. Apparently it is a bit rare and is thought to be auto immune in nature. BOOP stands for bronchiolitis obliterans organizing pneumonia, and some docs refer to it as cryptogenic organizing pneumonia. I went thru a few doctors and too many unnecessary antibiotics before we got to that diagnosis, and it took about 9 months of prednisone to be given the all clear. There is always a chance that it will come back, though the pulmonologist said that chance would probably go down after I had my second surgery, which I did, and have had no issues since.
Posted 11/15/2017 5:40 PM (GMT 0)
Have you had sputum tests done.... To make sure you have no continuing infection.

What is in your nebuliser? And what steroid inhaler?

Have you had an upper gastroscopy?

q
Posted 11/15/2017 9:53 PM (GMT 0)
UCwhat?: I'm glad you finally got rid of your lung problem. So yours was an autoimmune, indeed.

quincy: I haven't done sputum test. I'd had endoscopy and the result was esophagitis & GERD. My inhaled steroid contains salmeterol xinafoate and fluticasone propionate, and my liquid for nebulizer are salbutamol and a steroid named budesonide.
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