notsosicklygirl said...
you are right, there is no reason to rush. Take your time, find a surgeon you feel good about, ensure you're the right candidate, and do it when you feel you're ready, if you ever feel that way. If not, keep looking for other solutions. I wasn't rushing, but I did hit a point where I felt like the sooner the better. Maybe it's good to feel that way.. I knew if I didn't move forward, I was headed into a downward progression to somewhere without any solutions. Now it's been 2-3 years since surgery, I've been off drugs, I've traveled, I've had tons of opportunities, lots of difficulties too. I've been through 3 surgeries, numerous toilet trips... Surgery wasn't easy, and life after has some difficulties, but it's definitely workable. I rarely ever spend time thinking about the challenges. If I have to go, I have time to get to the toilet. If you don't struggle to make it to the toilet, I wouldn't have had surgery. I love the freedom of being free of UC. It was such a chore being dependent on doctors, and drugs, monitoring.. I don't miss any of that. Take your time & please remember, whatever happens, you will be okay.
Oh absolutely! I’m way tired of moving day to day to just get by. Only thinking where’s the bathroom, how fast can I get to where I need to be so I have a bathroom, what’s my back up if I don’t make it? And worse than that when will prednisone take its long term effects?
I’m going to diet and taper. See if I can get off. If not I know my answer.