Question about enema timing

I'd do them when you can retain them for the longest, at night.

I've done them in the morning, but I think it's easier to do them at night since you're sleeping and you're still. Sometimes if I moved around with an enema, i would get the urge to go, so laying still is good. I've actually used some during the day without problem, but often if I wanted to use a rectal during the day, I would go for foam or a supp. If you want something extra, you may want to consider trying some other rectals, like cortifoam or uceris foam.

If you have to have a bm....go before using fhe enema. If you don't have to have a bm, use the enema.....have your bm in the morning as usual. The urge will probably be more with the enema.

q

I've taken Rowasa mornings, noontime, and evenings. Look for the biggest window you have to retain them. It takes roughly 20-minutes to absorb the fluid and then you can continue going about your day. Ideally try and get 7-hours of retention for the most healing, but smaller amounts of time still do produce results.

While flaring, anything longer than an hour is going to help.
If you're up at 4 to expel it, it is what it is. Doesn't mean 4 hours of medication isn't helping.

In my 29 years of using enemas, even during the worst flares, I've expelled only 4.

Eight hours is an average sleep.....but once a body is up, moving around with the weight of med in an inflamed rectum, the want of it to be expelled is a given.

If you have suppositories, use them during the day after the majority of bms. It will help as well.
q

Are you talking about the urge to go just after using the enema?

Are you also using supps in the day?

q

No suppositories. I am going to persist, its just frustrating! I have retained several just fine, but it seems like things are off right now all around. I had a panic attack last night, and am just about to throw the prednisone out the window. I told my GI I want to taper down, and he told me no.....grrrr.

Ohhhhh...not good. Have you had an MRCP done?
Ask your doc for steroid enemas, especially since you're having improvement.

How are you being treated for pancreatitis?
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Thanks Countess18 and Quincy. Overall things have gotten more bearable. I saw my doctor yesterday (finally, couldn't get through to the nurse line) and I am not sure what test he ordered, but pretty sure he is checking amylase and lipase. I started having more diarrhea and pain just under my rib cage an hour or two after eating. Having been through it before made it easy to know what it is. I don't think this time there will be any treatment because I stopped the medication as soon as I noticed the symptoms so it didn't progress to be as bad as last time. If I remember correctly from last time, it will just take a couple of weeks for everything to return to normal. My GI was not surprised as he knew it was a possibility. He is also putting me on Fosamax for the osteoporosis/osteopenia, and is starting to wean me off of steroids. He also said that my current symptoms do not match the amount of inflammation he saw and that he is looking for something else. He ordered a fecal fat test and a celiac panel. He also gave me an antispasmodic for the pain.

Thankfully the colonoscopy showed improvement in my colitis. He said there was some moderate, but that most of the biopsies are now mild. The pancreatitis should resolve and not come back as long as I don't do mesalamines in any form again.

No, my GI just agreed to wean me off because of my bad dexa scan. I am weaning down from 40 mg. I have my next infusion on the 20th, and he said that he is going to check my levels soon to see if I am getting what I need.

Yeah.....from what he was saying he was really hoping I would gain more weight on pred than I have. I am doing a 5 mg a week taper that he will slow down more once I get to 10. I felt for a while that it was either Prednisone or end up back in the hospital, but feel like it's been time to taper for few weeks, so I am glad he agrees.