Get better with no meds

marcell said...

brucen36 said...

marcell said...

brucen36 said...
Yes, diet only for the majority of the time.

What diet do you follow?

SCD, see my signature.

What's SCD?

Specific Carbohydrate Diet. Google it, loads of info on it. Many many people do well on it, though most also need some meds too.

Chiron said...

marcell said...

Chiron said...
Modern medicine does not work on my UC at all. The last thing I tried was Entyvio. It seemed to work and I gained remission but it turns out that was already happening because I later had a serious flare while on Entyvio. The only modern medicine that works for me is prednisone and it only sort of works until I can figure out what caused my flare and stop it.

I think every flare has a reason for happening and if you can be a detective to cut out that reason it will make the flare better. In my case it's almost always stress or diet but a couple of times it was from infection that they couldn't catch but I found out what it was on my own and nixed it.

If you haven't tried modern meds then they are worth a try and I would try them if you are in serious shape. If they don't work then be prepared to dive deep into the alternative medicine world where there are a lot of options but also not a lot of clarity on best methods etc otherwise yeah surgery is probably the only thing you will be left with.

I see. And what have you done? Did you go for a colectomy or are you still on meds? Or trying something different? I'm pretty controlled without the meds. Bowel is clean and shining, but at the microscope... well... you know. It's there. So before I dive into meds I'll do my best to make it better by controlling stress, exercising mildly everyday, eating better, taking vitamins and probiotics. After 60 days, if there's no advance at all in my next colonoscopy, then I'll go for the meds, even though my situation is not really bad right now. I'll have to eat some junk for a few a day, as I'll go to France and I'll eat a few crepes. And some wine. But that'll be all. I hope I can get better. I wasn't really wanting to attack my defenses, as I found out I have HPV (no warts, no nothing. It's just there). And I don't want it to surface.

If you have active disease and haven't tried meds like I said they are worth a try. The lifestyle stuff is complicated and not price and it can take forever to figure out. If you can find a med that is your golden ticket then seriously just take it. Honestly I love alternative medicine but if any of the modern meds worked for me I would just stick to them because they are more convenient.

What I find works for me now reliably is megaspore probiotic, probiotic enemas every night during the worst of it, and low dose prednisone during the worst. If I have an infection I use miracle mineral solution and grapefruit seed extract. Kills it dead along with the flare in a day or two.

It's really hard to know what to do. I'll use the meds to shut up the inflamation. My GI said that I should use it for 60 days, then re screen. He thinks the inflation is going to become unactive. And when it does, I don't have to take any meds, until it gets active again at least. But if I succeed in shutting this thing up, it would be wonderful. Besides I could tell all of you that it worked. Well, I hope it works.

"You must make a choice: Leuchemia or CRC?"

That's quite absurd marcell.

No one wants to take medications, and no one takes lightly the possibility of their side effects. But there is a very real danger in leaving inflammation unchecked, so people are often forced into making uncomfortable decisions.

Difficult choices require mature thinking, not irrational outbursts.

I have had pancolitis in the past. I was on Remicade which caused major lupus like side effects so I quit Remicade and decided to try natural. As I came off of the Remicade I began to flare again, it was a minor flare, I think, but there was diarrhea which I think means it was pancolitis, however it was minor because I was only going a few times a day.

I am having success and am so excited! This is what I'm doing.
Broth! Or anything with Glycine / Gelatin helps restore intestinal mucous which is a protection against the sulfur and immune system.

We produce too much Sulfur, (sorry but I would not recommend alcohol) we need to reduce sulfur as much as possible. Increase Fiber! Fiber helps our body produce Butyrate which detoxifies sulfur. :o)

Go easy on the gut! Gut healing foods only will help it heal. Lots of water, Turmeric, yogurt or probiotics are very good, cooked greens/veggies, bananas, rice, salmon, are some of the things I've been eating, small amounts with lots of rest.

The meds are TNF blockers. There are TNF blockers in our food as well. The combination of consuming TNF blockers / Anti-inflammatory foods, taking fiber (not too much for example it recommends 2-6 a day so I take 2 natural fiber capsules a day and increase slowly if needed) and lots of water with some salt like a sports drink (gatorade) that will help the intestine retain the water.

It worked! Monday I had diarrhea..by Wednesay I had a solid bowel movement with blood....today I had the most beautiful poo I've ever seen! :oD

Everyone is different. You have to listen to your own body. Increase or decrease add or take away if your body doesn't like it. I had healed my gut before but Monday was a setback but I'm happy to say I was able to heal it again. So don't get discouraged definitely mange the stress, stay calm and give it a try! It doesn't hurt to try. I'm so glad I did.

I'm not saying I'll never be on meds again because it's important to acknowledge we have a chronic illness but I agree that there are triggers and if we can figure out what our triggers are we may be able to manage the symptoms at times without meds.

I wish you the best! Keep us posted :o)

Post Edited (HJQuinn) : 3/17/2018 9:48:07 PM (GMT-6)

HJQuinn said...
I have had pancolitis in the past. I was on Remicade which caused major lupus like side effects so I quit Remicade and decided to try natural. As I came off of the Remicade I began to flare again, it was a minor flare, I think, but there was diarrhea which I think means it was pancolitis, however it was minor because I was only going a few times a day.

I am having success and am so excited! This is what I'm doing.
Broth! Or anything with Glycine / Gelatin helps restore intestinal mucous which is a protection against the sulfur and immune system.

We produce too much Sulfur, (sorry but I would not recommend alcohol) we need to reduce sulfur as much as possible. Increase Fiber! Fiber helps our body produce Butyrate which detoxifies sulfur. :o)

Go easy on the gut! Gut healing foods only will help it heal. Lots of water, Turmeric, yogurt or probiotics are very good, cooked greens/veggies, bananas, rice, salmon, are some of the things I've been eating, small amounts with lots of rest.

The meds are TNF blockers. There are TNF blockers in our food as well. The combination of consuming TNF blockers / Anti-inflammatory foods, taking fiber (not too much for example it recommends 2-6 a day so I take 2 natural fiber capsules a day and increase slowly if needed) and lots of water with some salt like a sports drink (gatorade) that will help the intestine retain the water.

It worked! Monday I had diarrhea..by Wednesay I had a solid bowel movement with blood....today I had the most beautiful poo I've ever seen! :oD

Everyone is different. You have to listen to your own body. Increase or decrease add or take away if your body doesn't like it. I had healed my gut before but Monday was a setback but I'm happy to say I was able to heal it again. So don't get discouraged definitely mange the stress, stay calm and give it a try! It doesn't hurt to try. I'm so glad I did.

I'm not saying I'll never be on meds again because it's important to acknowledge we have a chronic illness but I agree that there are triggers and if we can figure out what our triggers are we may be able to manage the symptoms at times without meds.

I wish you the best! Keep us posted :o)

That's great! I'm trying some of that for sure. And I'll keep you all informed of my results. But I'm thinking if I really have UC or microscopic colitis, because my bowel is clean, no scars and no ulcers. By the doctor's macro vision, it looks perfect. Also, I think we should all collect data and try to find something ourselves.

marcell said...
And what exactly do you take?

See my signature.

PixieAlida said...
Prebiotics Make a big difference, got into remission with them once but only
Minor flare. I have a thread on here about natural medicine, some people on there have given some very good tips, ranging from food to natural medicines.

Hi can you point me to the post in question please.

My mistake. Never noticed that, always wondered why it didn't always show.