Tenesmus

Not mental. You could ask your doc for an antispasmodic. I use dicyclomine 20mg.

How long have you been on the enemas consistently?
q

Thanks for the reply.
1. I have been on enemas for a week. I prefer them then the supp.
2. I am not constipated
3. Blood maybe once a week

Stay on the enemas......till it eases. It can take weeks. Eventually, you can taper the steroid one.....replace it with a suppository, eventually taper the mesalamine enema with the suppositories and taper the enema to twice weekly.

The area of inflammation you have is difficult to treat, be patient but consistent in treatment.

I also suggest you add probiotics to your regimen.

q

Thanks everyone. Quincy, do you think because the inflammation is so low down I should use supp over the enema. Is it common to have tenesmus without any blood?
Thanks,
Hugo

tenesmus...is the worst thing ever!!!

Just reading that word brought back memories of the horror of it.

I read on here that if this happens its best to get off the toilet and lie down on your bed and stay still and apparently it goes away. That's not to say that you don't need treatment, you do, but this is something to try when you're desperate.

Firstly, I know how lucky I am compared to a year ago when my remicade was evidently effective for my pancolitis and I left hospital.
However, my 1.5cm rectal inflammation is getting no better with daily salofalk enemas and cortifoam. Gladly it isn’t getting worse. Tenesmus worse in the am. Virtually gone after I exercise and mild urgency. I see blood maybe once every two weeks. I understand it is mild in the spectrum.
However it does really bother me and yes I ruminate about it constantly. When I was very ill last year neither prednisone nor meslamine were effective. Perhaps, I am simply resistant to it?
I go for my next remicade next week but my fecal calprotien results and my CRP are both pristine so not sure if it is a remicade level issue.
Any other suggestions or just more of the same?
Thanks,

It feels like you need to go, often when there's nothing there, or after you just went. It feels like pressure. Some people think they are constipated, because they feel the need to go & nothing comes out, but it's actually due to inflammation.

One doctor told me that this is also a strong sympton of IBS, which I had.

Yes

I was just going to post a thread about this. I am having tenesmus from hell right now. Seriously I am ready to shoot myself! If there is even the tiniest bit of formed stool in my rectum, even a grain, my entire rectum grips and contracts SO HARD to push it out. My rectum practically prolapses. I've had tenesmus before but this is unlike anything I've ever experienced!!

My abdominal muscles and pelvic floor feel totally ruined by this. I can't even pee properly now because of all the involuntary pushing and straining. I'll sit on the toilet with the intention of just squirting out the usual bit of mucous and blood, and then it quickly snowballs into bowel gripping so hard that my rectum is popping out. Total hell!!! Lying down doesn't really help it. Once it's done, it's done. My abs and bowel feel injured. The only thing I can do is eat liquids and avoid all fiber like the plague because it seems like solids trigger it. The only way to recover is to stop doing it!

My doctor prescribed buscopan to me today for this bowel cramping. I'm on the second dose and so far it does not appear to be making a huge difference. From reading HW just now I am learning about dicyclomine which maybe I should ask for instead.

I will do anything to stop this tenesmus and hell cramping!!! It has me screaming all night, every hour on the hour, no sleep, no rest! I'm also afraid to eat!

This disease is incredible. How did anyone survive with it 50-100 years ago? I guess they just died!

I recommend listening to Quincy and Ipoop and stick with the rectal enemas. I used cortifoam and meslamine enema for 4 weeks solid daily and my tenesmus has almost entirely subsided. SOmetimes it just needs a significant amount of time.