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What got you out of a bad flare besides biologics or prednisone?

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Ulcerative Colitis
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Posted 4/22/2018 5:14 PM (GMT 0)
I have ulcerative colitis throughout my whole colon. I have been going downhill quickly. The mesalamine has not helped. I am looking for success stories of what people did to get out of a bad flare without biologics or prednisone.
Posted 4/22/2018 6:57 PM (GMT 0)
Oh No! I hate seeing you here saying this. sad

Are you still on 6mp? How about trying heavy duty probiotics? SCD diet? None of that worked for me, but it does help others... I did see a post about "clove bud oil" recently, might be worth looking into? Activated charcoal? Are you still doing rPC capsules? LDN? Did you get stool tests? You know as much as anyone. I have hope that you will get back into remission. Uceris? Rectals?
Posted 4/23/2018 1:08 AM (GMT 0)
Ugh, I am on mesalamine oral and rectal. I had been doing rPC capsules, but have been so nauseous lately that I stopped. I am going to try to add them back in again. I started the SCD diet on Friday, but so far it has not helped - I feel like I keep getting worse. I am worried. I will look into the clove bud oil and uceris. Thank you for the ideas. I wish I could get that poop pill, but my dr says it is not available yet. sad
Posted 4/23/2018 12:22 PM (GMT 0)
6MP and Uceris did it for me.....
Posted 4/23/2018 12:42 PM (GMT 0)
Try methotrexate (fastest working of this group), or 6mp/imuran/azathioprine (slower working).

Biologics aren't the end of the world, they work well for me without side effects and gave me a remission!
Posted 4/23/2018 1:59 PM (GMT 0)
Honestly, I feel like I tried everything to get out of my first flare without using steroids or biologics. I didn't have any luck. Worst pain I've ever been in, my entire life. Wouldn't wish it on my worst enemy.
Posted 4/23/2018 4:38 PM (GMT 0)
kate22, does prednisone not work for you or are you looking to avoid it?
Posted 4/23/2018 9:25 PM (GMT 0)
It seems each time I flare, Prednisone is less effective and I have to increase it and then I start tapering and then have to go back up again. Plus I have horrible side effects from it - just awful!
Posted 4/24/2018 8:41 PM (GMT 0)
Qing Dai has helped to get my flare under control. I took it for about two weeks, but in conjunction with loading doses of Entyvio. So, it's hard to pinpoint the exact healing factor. However, I stopped taking it for about a week while traveling and did just notice some bleeding. I started taking Qing Dai again today. There are several threads about people having success with it here on HW and others who did not benefit. I was willing to give it a try since my flare has been such a challenge to control. Temporary liver dysfunction has been a reported side effect. So far my labs have been fine. I hope you find a solution soon. This disease absolutely sucks.
Posted 5/15/2018 8:31 PM (GMT 0)
Hey 'kate', how are you doing?
Posted 5/18/2018 1:15 AM (GMT 0)
I have been taking Uceris, which seems to be helping some thankfully (I am able to function again), but I am starting to get some steroid type side effects, which really depresses me. I thought this was supposed to not have the same systemic effect, but I guess it's just because I am so super sensitive to steroids. I just hope it will be worth it and won't be for naught. I don't mean to be negative, but am worried once I try to get off the Uceris, will everything just fall apart again?
Posted 5/18/2018 12:10 PM (GMT 0)
Antibiotics (Flagyl) knocked out my flare more than once but supposedly only about 15 percent of IBDers are helped by them. I was afraid that like most meds antibiotics will work until they inexplicably stop working. So once I achieved remission I continued with supplements and diet modification (see my signature) to remain in remission as long as possible.
Posted 5/18/2018 12:14 PM (GMT 0)
Unfortunately Uceris is 10% systematic, so you can get at least some of the milder side effects from steroids. We all worry while on steroids, whether we can successfully stay off of steroids and not return to our flare, and only time will tell. Often we can but not always.
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