Possible Supplement for UC

I am working on a supplement for UC that includes Novusetin and L-Citrulline combined. I have uc for 6 years and have been in remission for 5. Do you think people would be interested? I am making for myself not looking to make a million bucks maybe 2 lol.

Thoughts?

Post Edited (one80group) : 7/17/2018 6:16:03 PM (GMT-6)

"UC for over 40 years. Skeptical about the drugs and enemas that never got me well. Now: 1 BM per day, and seem to have things locked down for past 2 years. I follow a histamine intolerance diet now. Key meds and supplements: NAG, Grape Seed Extract, DAO enzyme, Enzymedica Digest Spectrum, Chia Seed fiber and Benadryl for emergencies. Probiotics: MegaSporeBiotic"


How did you decide on the diet and supplements you are on? And you have achieved remission after having active disease for 38 years? That sounds very impressive as I've had UC for 15years and the longer I have it, the harder they say it is to achieve remission. I would love to hear more.. Please elaborate on what you can.. I am about to undergo FMT from Taymount clinic London and having second thoughts. If I knew I could change course through diet I would. I've already eliminated all dairy, wheat, soy alcohol from my diet its limited already so what's bit more?
Thanks in advance!

Hi Samantha,

You are right about it getting harder to lock down UC after having it for years. In my case if I knew, what I know now 10 years ago, I would be a more comfortable remission, as I would be able to eat more foods. Somewhere in the last 8 - 10 years, I became histamine intolerant, which restricts my diet further and requires that I only eat fresh food. My body's inability to efficiently handle histamine in food is supported by genetic testing as I am/have compound heterozygous mthfr mutations & a cbs mutation. So anyway genetic testing helped me and if you don't have the histamine issues I think raw sauerkraut eased into your diet is a very good way to help rebuild your microbiome. Kefir and Yogurt can be good too but many of us don't handle milk products so well.

What I did have a problem with from the start was a fructose issue, so that is the other thing I must restrict. These are things one must figure out.

But my base elimination diet starts with white rice. I cook a large pot and use one of those electric stirring sticks to make it into cream of rice consistency. Separetly, I also boil certain vegetable medleys like California blend till it is soft and boil chicken breast with it at the end. Then I season with sea salt, slippery elm (great for soothing colon) and a little coconut oil and use electric stirring stick or blender to blend it into a smooth soup. It is actually quite delicious, but the real point is to create easy to digest foods that are low in fiber and that you know you can handle and soothe your colon. I eat at least a couple of meals in this way most of the time but go exclusively on this type of diet if I feel any intestinal distress. From there I have added other safe foods slowly into a rotation. I can go more into this if your interested. You can email me too, check my profile. But the point is it is very doable, but not at all easy as it takes time and discipline.

I have considered trying FMT myself, to perhaps gain back the ability to eat other foods. I think it is a very viable treatment, but not really refined to the point where there isn't a lot of risks too. I think the big issue is we know so little about how to best match patients to donors. As things stand now if a donor checks out for not having used antibiotics in the last couple of years and is relatively healthy that is about the extent of screening. But I believe we must be able to identify donors in the future that have a certain balance and depth to their microbiome to really make FMT more successful.