I had a Stem cell treatment

It makes no sense to me that stem cell treatment can be a treatment for autism when there aren't any damaged cells in autism to repair. But I don't know enough about it to dismiss it as outright fraud (of the sort described in ks1905's link - interesting read). I'd like to learn more about it.

It's of particular interest to me 'cos I was diagnosed with ASD (Autism Spectrum Disorder) in 2014 and would love to "cure" my autism as much as my Crohn's. It's not done me any favours in my life. But if an actual cure for IBD is decades away, I reckon one for autism is even further off.

colitis91895 - How has the treatment worked for the long term? Have you had more flare ups or have you remained in remission? New to UC and want to stay away from the drugs.

Thanks :D

Last I heard, the results were not spectacular with UC.

colitis91895 can you give us an update how your doing since your stem cell treatment?
I'm curious and would consider this if i know it works.

Where is the best place to go?
and is this safe?

Curious about an update on this specific case and the research in general.

Question for you Connor77 (and who ever else has an opinion): Do you really think the FDA would try to bury a procedure that could potentially cure UC for the sake of $$? It's a sad and scary thought that I just don't want to believe!

It is true that the drugs and procedures that get the most research funding are the ones in which funding can be recouped on the back end when the drug is approved and sold to patients. How do you recoup $$ on an expensive FMT study? Looks like this merger company is trying to figure that out, by patenting methods on procuring, manufacturing and packaging fecal pills.

https://www.businesswire.com/news/home/20171023005284/en/Finch-Therapeutics-Crestovo-Announce-Merger-Form-Finch

"Leading Patent Position

The combined company will have a broad and comprehensive intellectual property portfolio — with 26 issued U.S. and foreign patents and more than 50 filed patent applications — covering compositions of matter, methods of use and methods of manufacture."

I am so glad your feeling better. I am considering this type of treatment. how long did it last or is it still working? are you healed from colitis? Have you had any side effects from treatment? What was the cost? do you have a website link to the place you went to for your stem cell treatment? I hope you don't mind me asking so many questions its just that, I dont know anyone else who has had stem cell treatments. I am considering embryonic stem cell but would like to know more about your treatment.

iPoop said...
I think it's premature to call any treatment a true cure. We just don't have enough evidence and long term data yet to make that claim. Stem cells are certainly healers and repair tissue damage. Whether they reset the immune system's attack, I'm quite skeptical. I think cure, like other 4-letter-words, shouldn't be used often haha.

Sorry but when I read this I had to revive the thread. Here in Brazil I saw a 16 years old girl with Chron's try this option. She had most of her intestines taken off. What resets the immune system is not the injection of the stem cells. What does it is heavy chemoterapy, which kills all your defenses for good. Then they inject the cells in your spine and cross fingers, hoping that it "catches". Then you grow a brand new immune system. I have her videos if you want. Though she speaks portuguese. Now she's been talking about feminism and pointless stuff. Means she's ok now.

Would love to hear an update.

The last time this person posted was here:
/www.healingwell.com/community/default.aspx?f=38&m=3893906&g=3895543#m3895543

it's strange because he contradicts himself. Says he's been in med free remission, but then also says he was in a trial for FMT. The odd part is, we all know you wouldn't qualify for a trial if you weren't experiencing symptoms. People's idea of 'what is remission', or what is tolerable vary a ton. I am sure a lot of people do a lot of treatments, and live with various degrees of symptoms and don't bother treating it any further. Some living with symptoms we would never consider remission, or even a good quality of life.

As for stem cell treatments. It's exciting, but there are risks. I knew some people who had stem cell treatments for other conditions and had zero results. It's not a cure-all. Just like any treatment, it may work for some and not for others. I have seen people want to dump their life savings into traveling to get these procedures, and in reality, it's possible you do that, and have no result, or have short lived results. Is 10 years of savings worth a month of feeling "eh"?

www.closerlookatstemcells.org/stem-cells-and-medicine/nine-things-to-know-about-stem-cell-treatments

It is obvious that there is a ton of money to be made by charlatans saying they can cure anything and everything with stem cells. People like us don't know what to ask, and we all hope for miracles, we want to believe there's a cure... it's very easy to take advantage of us. Someone could inject me with anything and call it a stem cell and I wouldn't know the difference. I would be very careful doing this type of thing outside of a legitimate trial environment.

I am actually looking into this treatment and reach out this this doctor to find more information on it. Let's see what he has to say.

https://www.stemcellcenterofnj.com/

so I did my stem cell therapy about 2 weeks ago in NJ via IV and I haven't seen any improvement at all. Plus I got more flare up so end up being on steroids 40mg per day. They say it take about 2-6 weeks before you see results but now it will be hard to see because of steroids. I will keep you guys posted here after 6 weeks. I am really hoping that it works or I gotta go get this colon remove.

Note - I met someone in person who has done this therapy at age of 68 and he is doing fine. He also, believe he cured it.

Thank you,

*UPDATE* -

After more than 6 weeks of stem cell therapy, I am 100% sure that it did not work on me. Plus I believe, it made my colitis symptoms even worse. I had to start steroids again and ended up in hospital to get IV steroids for three days and still not feeling any better. It's like steroids stop working for me after getting this STEM cell therapy.(My Stem cell doctor said, it can take up to 6-8 weeks to see changes in symptoms but all I am seeing is getting worse and not better)

Note - This is my experience with STEM cell therapy. It's possible, it may work for you and may not. Do it on your own risk. I did it because I had no other option beside surgery and I wanted to take all available shots before I take the surgery route. Hope we just find cure for IBD and none of us has to go though this.

Hope we all stay in remission forever. Thank you!

Thanks for updating us. I am sorry you're not doing well. Please come back and post with us, tell your story, perhaps we can provide some ideas and support.