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The purple toilet phenomena... :)

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Ulcerative Colitis
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Posted 9/29/2013 4:20 PM (GMT 0)
well proof that the purple splatter in toilets is from the 5asa meds...

for 7 years I've had to bleach my toilet seat weekly(if not more)... since coming off my 5asa meds in July...

NO MORE PURPLE STAINS!!! YEAH!!!
Posted 9/29/2013 5:10 PM (GMT 0)
WHo is the manufacturer of the preparation? I have used it a lot but purple toilet, never...
Posted 9/29/2013 5:48 PM (GMT 0)
Hilarious, I thought it was just me !!
Posted 9/29/2013 7:38 PM (GMT 0)
delta, not sure.. but it did it both with Asacol for years and then Mezavant for years!

although I've said before I also think there is something in certain cities water supply that reacts as it always does it at home but for the month or so I spend at my sister's in the summer in another town it does not do it nearly as much.. perhaps chlorine lever or something like that...
Posted 9/30/2013 2:40 AM (GMT 0)
I only get the purple stains when I use rectal meds. I also only notice it when I am flaring. I can use rectal suppositories every day and not see any purple if I am in remission. Just another fun thing about UC - cleaning the toilet constantly.
Posted 9/30/2013 4:34 AM (GMT 0)
I avioid them completely now by just keeping disenfectant wipes and using them after each BM!
Posted 9/30/2013 3:25 PM (GMT 0)
I have purple toilet! My wife is after me to replace the seat. It is pretty gross.
Posted 9/30/2013 3:27 PM (GMT 0)
i find the stains are the worst under the toilet seat and are near impossible to remove, however I have been off of all mesalamine for about 5 days now... and the stains have disappeared! lol
Posted 8/8/2018 1:23 PM (GMT 0)
Can I just say how relieved I am to see this thread. I had to have all sorts of tests as I was apparently urinating dark red water. The doctors could not find anything wrong with me and the UC consultant didn't give me any advice and had never heard of it. I figured out by myself it was a reaction outside my body. It seems to happen if the toilet is recently bleached and the bleach has been left to dry for a while. As a result, my toilet seats also need changing!!!
Posted 8/8/2018 1:44 PM (GMT 0)
Funny the doctors did not know this, it says "might darken urine" in the pamphlet included with Mesalamine meds. Yes purple toilet splashes, and high-water mark in the toilet stink!
Posted 8/9/2018 1:29 AM (GMT 0)
The first time I noticed the purple I was totally freaked out! At least when I see blood, I know what it is and where it is coming from lol. It wasn’t until I read another thread on here that I realized it wasn’t abnormal
Posted 8/9/2018 7:35 PM (GMT 0)
Purple peepee over here to!! smile not all the time. But more than once. I’ve got a good bleach spray I use overnight now. They were bloody hard to get off! Ha
Posted 8/9/2018 7:46 PM (GMT 0)
I've changed toilet seat after toilet seat. I thought it was just me because when I mentioned it to my doctor he said he'd never heard of it. I'm off those particular meds now(Pentasa) so I don't have to worry about it anymore. It used to be quite embarrassing when company came over, I'd always worry they didn't think I ever cleaned the toilet. Glad I'm not the only one.
Posted 8/9/2018 9:24 PM (GMT 0)
It's from the enemas, I always thought.
Posted 8/9/2018 10:08 PM (GMT 0)
All mesalamines, oral and rectal, cause the purple.
Posted 8/9/2018 11:38 PM (GMT 0)
I have the exact same thing too!!!! I don’t use rectal meds but take mesalazine orally. I had always thought that it might be an overgrowth or harmful bacteria colonizing the toilet (since UCers have a more pathogenic flora), glad that it’s not that! I’ve also found that it’s reduced when I use non-bleach based cleaners.
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