Having symptoms still?

I had a colonoscopy 2 months ago and went to the dr to go over the results. He removed an inflammation polyp and took biopsies everywhere. The results were really good though and he told me im in whats considered 'clinical remission'. The only thing is i still have 4-5 bms a day (3-4 are in the first few hours of waking up). There urgency when I first wake up is just insane though.

Anyways he mentioned something about 'complete remission' when you are in clinical remission but also feel better. Has anyone actually achieved this?? Im thankful im not having bms 15+ times a day now but still sucks getting up 3 hours early before work just to get it out of my system

While on Remicade, I had complete remission...many times. The longest, was a little over 5 years. VERY GOOD YEARS!!! After that, it would be a flare, remission, flare, remission; all of the flares weren't really bad. In the past year, I've had one flare after another and developed antibodies to Remicade. Now I'm getting up in the morning...early morning...and running for the bathroom. Urgency, gas the whole mess. Began prednisone last night...again. I HATE prednisone, but love how fast it makes things feel better. UC takes lots of patience, but you can get into complete remission. Hang in there. I will say, my doc finally got me set up for Humira, so I'm hopeful I will get at least, remissions as good as when on Remicade. One thing about UC...it is always sneaking around somewhere, ready to pounce on you. Best of luck and feel better soon.

Hi,

I am on Remicade and am in endoscopic remission per colonoscopy and biopsies. I was having the same issue as you prior to my scope and thought I may be flaring. I started doxepin at night for sleep (very small dose-under 10mg) and it helps with the morning urgency, slows things down and now I'm having one non urgent BM per day. I am guessing it was the doxepin that is helping because I started getting better after I started taking it.

Thanks for the responses.

Food tolerance is definately a possibility. Ive never really watched what I ate because the dr said theres no scientific evidence to diet playing a role in uc but it would make sense at this point.

Troubled turds- yea i did it back in october because the blood and d stopped after 8 weeks on cortiment (budesonide). Other than that 4 mezavants a day and pentasa enema at night. I was actually shocked when he said biopsies were great since ive still been having rough mornings.

Thanks again for the responses. Maybe its the caffine i drink the night before. Will definately try cutting the common trigger foods out of my diet.

I agree with q. I'd want to see the report. What he considers "clinical remission" or actual "clinical remission"? That is the question. He worded it in an odd way. Did the report show zero activity or not? What you describe sounds like mild symptoms. It could be IBS or a food intolerance, but my personal experience with UC is that it's always inflammation. The doctors tend to want to say it's something else for whatever reason. I'd request stool samples and a calprotectin. If that number is high, it's inflammation. Waking up and going repeatedly and urgently, is not remission in my opinion - but people live with much worse, and people's ideas of what's tolerable varies.