Hello to KS1905!

Glad to read in recent posts that you're doing well, but what's that about "pouchitis/cd" you mentioned while advising Valli? Was your DX ever changed to CD? *** Also glad that you were somewhat vindicated on 11/6 for comments made earlier this yr RE U.S. politics/health insurance coverage; hang in there! Healthwise, I've been adjusting to that new (corporate) Koch bldg at WC, where they've apparently launched a new ambulatory scope center on floor below the IBD Dept. I'll likely test it out come spring. Also staying busy with periodontal issues, phoo! / Old Hat (38 yrs with left-sided UC; presently in remission taking brandname Colazal)

Thanks for update, Keith. Congrats on new Congressman; I did hear on local media that Faso was 1 of NYS's worst, another being Donovan on SI who was also thrown out on 11/6!!!! Mine is likely to become Chair of the House Judiciary Committee in Jan.; would be a vast improvement over the outgoing Goodlatte! *** RE my periodontal issues, just FYI, they kicked up ca. 1995-- a couple yrs after I needed a 3 mo. course of,YES, Pred for a severe UC flare. Luckily back then I had a terrific general dentist, hubby of a colleague of mine, who took interest in inflammatory syndromes & gave me excellent care. Alas, he relocated his practice to central NJ in 1998, & I've never found anyone comparable since. He got especially interested in our predicament after a 4 yr-old daughter suddenly started limping (ca. 1988) & a pediatrician consulted wanted to put her on steroids for a DX of juvenile arthritis. That was a red flag for him!!!!!! He then researched on his own & got her restored to health via dietary changes. / Old Hat (38 yrs with left-sided UC; presently in remission taking brandname Colazal)

Yes, Champ-- I've been there twice since it opened in May. This last time in Nov. they seem to have lost one of my lab specimens-- so I'm not too pleased with that place at this point. The bldg lobby is crawling with security personnel, but upstairs they seem to be short on support staff to help patients get supplies, etc. / Old Hat (38 yrs with left-sided UC; presently in remission taking brandname Colazal)

Was just in Wednesday at Koch building.Everything in city is high security since 9-11.I don't sense what you guys do.I don't get supplies from them so that i have no experience with but receptionist has always been nice and pleasant.Do u guys go to 9th floor???

Hi,
I wanted to jump in on the new building.
I said to my daughter that it felt like a space ship.
Once you're out, it's hard to get back in if you had a second thought question.
No one knows where to find the dr.
Old Hat, they misplaced specimen results for my daughter for about a month, and then one day they showed up on the portal, shortly before she was going in to repeat the test.
The old office was messy, but this is over the top cold.
Just my opinion.
Hope everyone is ok. We are still dealing with symptoms from remicade induced lupus(?).

Hi, Jayce! I have actually been thinking of you & hoping your daughter is recovering well from the drug-induced lupus. So, glad to read your update here. Where you at Koch in May? I wondered if I saw you with daughter one afternoon there, ahead of me in the line for check-out attendant! *** Champ & Keith: Roberts Center at 1315 was a vast improvement at WC when it opened in 2006. WC had recruited Dr. Scherl from Mt. Sinai in 2002, but they never adequately funded office space for her; initially she had to work out of an inconvenient E. 61st St. bldg! Thru collaboration with WC immunologists, she met Mrs. Jill Roberts, a longtime philanthropist-supporter of immunological research, who realized that she & her IBD patients needed more financial support-- so she donated $4+ million to renovate part of 1315 as an IBD Center-- because the rest of that bldg had just been refurbished for 2 older GI divisions with funds donated by Katie Couric! (1315 eventually grew overcrowded due to enlargement of GI staff & growth of IBD patient population!) The WC Big Brass always focuses on "glamour" medical issues like cardiology, neurology. renal, neonatal disorders that draw in the biggest contributors & favorable publicity. AS WE KNOW, IBD is NOT a "glamour" issue-- so it takes a back seat for funding. Mt. Sinai IBD got launched with somewhat better funding back in the 1960s due to joint efforts by the very respected Dr, Henry Janowitz (a post-doctoral mentor of Dr, Scherl) & the Modell (sporting goods vendors) family, who lost a son to Crohn's. (They were also the co-founders of CCFA.) Plus Mt. Sinai already had some IBD-renown due to pioneering research done there by Dr. Burrell Crohn earlier on. / Old Hat (38 yrs with left-sided UC; presently in remission taking brandname Colazal)

Yes, Champ, the DH Koch bldg just opened in May. It was under construction in 2015 when I had surgery in the main E. 68th St. complex-- so I still remember how uncomfortable I felt getting jostled when my taxi pulled out of driveway there onto York Ave., which was then all bumpy from the Koch excavation & construction barriers! Ouch bigtime!!!!! / Old Hat (38 yrs with left-sided UC; presently in remission taking brandname Colazal)

I needed transabdominal surgery to get out a malignant pelvic tumor (non-hereditary type). So my 5 1/2" vertical incision held together by 30 staples did not like that bumpy York Ave. But you are right; Champ, daytime traffic in that whole area from E. 59th to E. 72 is usually a mess for 1 reason or another! / Old Hat (38 yrs with left-sided UC; presently in remission taking brandname Colazal)