Does anyone here suffer with vascular issues?

I know we are more prone to blood clotting as UC patients, mostly big veins are the worry, but really any can be affected. Great if we get a cut, as it stops bleeding fast. Not good if it is something clogging up in the veins.

If you look at your/my blood numbers then you will see a few numbers out of range (at or above the high range), related to it.

Let us know how it goes!

It's good you got checked asap and are now referred to a vascular specialist. Always off-putting and stressful regarding new anomalies. Looking forward to your update.

q

Great on the MRI. Sucks about your GP..ugh. I agree about taking the referral...hope that doc is good.

I'm up and down with stuff other than UC....it would be nice to have a break, lol.

When do you see the specialist?
q

Seems the normal waiting process for an appointment. Here, one would wait for a month to just get the notice of referral and another 3 -6 months for the appointment.

UC is doing good....but body pain for the most part has been an issue (switched to Cymbalta from Effexor XR..worse pain...back on Effexor) and recently gastritis from probably a virus I picked up that lasted 4 weeks. Unrelenting nausea, periodic chills and stomach and upper gut cramping. Doc thought flare....I knew it wasnt, but increased meds anyway. No help. Increased zantac and started a PPI.
Was on a steady dose of dicyclomine and Gravol and gravol ginger . Nixed coffee (for regular and ginger tea), and oranges in the morning. All seems normal now, finally. It was exhausting and I don't handle nausea too well (whiney) 🙄. I'm still waiting for the h. Pylori test result. He might set me up for an upper scope earlier than my c-scope in June.
I'll wait another month before stopping the PPI. I'm truly hoping for that long break....seriously hard on my psyche. High point, no cold yet.

q😎

Oh no...purple toe syndrome doesn't have toe falling off as a symptom. You're in the clear.
Looking forward to your updates.
Thank you...High 5 back.

q

Thanks for your reply beatUC

Not really sure what’s going on really. Had a bout of what I thought was frostbite on a toe. Which then sort of left. But now that one toe randomly turns dark red or purple if it’s exposed to cold air. It doesn’t hurt. Just discolours. And my feet are some what cold most of the time. I do have raynuads. But my gp reckons I have little to no pulse in my feet so he’s referred me to vascular department. Also the hair on my legs isn’t growing quite as it should.. which might seem like a treat but usually indicates loss of supply,
Hoping it’s not peripheral artery disease mainly.
And that theirs a simple answer.
But god knows.

On a brighter note this is probably the longest I’ve gone without freaking about my UC because something else has my mind busy 😫🤪

It goes back to normal when it’s regular temperature. But can also look purple when normal temp as well. Hard to tell because my feet are always a little chilly. Goes normal when I rub it. It does Blanche and go white sometimes to.

I did smoke once upon a time. But haven’t for a while now. But I do vape.

I did lose a shed load of hair back in August but the go and I decided it was post part from the baby who was around 5 months at the time.
She did do bloods then and checked my thyroid. Which was normal at the time.... doesn’t mean it is now.

I think my bloods tomorrow he’s checking diabetes and cholesterol..

Haven’t seen a rheumy yet. Don’t think it’s been mentioned either.

Needless to say I’ll be gutted if I have PADs ... mainly because it’s most common in over 50 males... usually an over 70’s disease 🙄 who have high blood pressure and cholesterol problems or diabetes.
I’m 35.., previous smoker, I’m 5’5 and 120lbs. I’ve been this weight since I was 20! I don’t drink through choice since my first born arrived 6 years ago, and have exercised most of my life bar a few years here and there after kids... I don’t think I have diabetes but who knows.
And I’ll be shocked if I have cholerstal issues.
But sadly the internet doesn’t offer me any other options when searching for a “weak pulse in foot”

Sorry I rambled. Didn’t have much sleep last night so it’s made me ratty and anxious.
Hope your doing ok today! x

Well today I went to have bloods done and he’s order a very full blood panel. Even the nurse who I love said wow these are fancy 😂 he added to the form testing for autoimmune vascular disease. Fun times.

She did use a doplar test on my foot and we found a good pulse on the side by the ankle. But nada on the top. She said hers is also hard to find. I’m going to see a podiatrist tomorrow to see what she thinks.

I started vapeing when I quit smoking. And it’s sadly become a very bad habit. I think I could do with quitting. But it’s a real crutch when I’m anxious.

I’ll know a bit more on Friday when I get the bloods back! Just another waiting game sadly.

I did think about RV, but I don’t have a whole load of sypmtoms: all of the Vasculitis diseases seem far off what I’m feeling.

But then again my UC sits there silently doing nothing except make me feel like a crazy person sitting on a bomb. So nothing to say something else crappy isn’t happening.

I’ve self referred for some talking therapy as I feel like I’m going to lose my **** most days at the moment. Trying to force myself to have a what will be will be attitude for now. But man it’s tough!

Glad your feeling a bit more on track 💪🏻 When do you get your results back?
Hugs back to you

So just an update...

Saw a podiatrist Tuesday. She said my feet look “good”
I have regular pulses and that aren’t abnormal sounding. Which is good.

Had bloods. They need to be done again as they weren’t viable. Annoying. Going back Tuesday.

Vascular department have just called me as my referral was urgent... I have an appointment with them in 2 weeks which is actually record time! GP must be worried.

I am not to worried. Although I’ve been have some quite bad tingly in my upper arms. And my thigh muscles are still aching. Which at the moment I think must be tension pain. I feel extremely wound up and almost like I’m internally vibrating.

Anyway. Sorry to keep posting when it’s not directly UC related!

Thank you John!

Very frustrating. But such is life!

Hope you’re well!

I shall update when I have some news .... just to continue the story 🤪😃

No i haven’t mentioned it yet. Yesterday I didn’t have it at all. I’m convinced it’s because of carrying the baby. Sleeping funny and anxiety. I’m going for the blood tests Tuesday so I will mention it to the nice nurse.

Can’t belive the appointments so quick. Has made me feel slightly panicked as he must genuinely be concerned.

I’ve honestly got no clue as to what is going on.
When my feet are hot at night the two toe get warm red and puffy.
When they’re cold they get a purpled tinge which goes away if I rub it.
My thigh pain seems better if I’m moving around a lot.

But yep. So will keep you posted 👌🏻