HealingWell
Search Close Search
☰

Proctitis bleeding

Support Forums
>
Ulcerative Colitis
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 3/8/2019 1:38 AM (GMT 0)
Hi. I think I'm fighting a proctitis flare. Solid bowel movements, but having bright red blood. I just got some canasa suppositories. I've been trying to manage with just mesalmine enemas, but it hasnt been cutting it. Should I be doing enema at night, and suppository in the morning. Or doing suppository both morning and night? Thanks in advance.
Posted 3/8/2019 5:55 AM (GMT 0)
Hi...yes use the enema at night and supps in the morning.

How long were you using the enemas till now?

How many bms a day?
q
Posted 3/8/2019 1:11 PM (GMT 0)
At this point I think I'm on them indefinitely, I have pancolitis and my asacol 800hd does a great job of keeping the rest of my colon healthy, but the last 20cm has been an ongoing issue. I was doing excellent, had been on enemas for 1.5yr and finally thought I had remission so I stopped the enemas for 3 weeks and then boom flare. I'm currently have 2-3bms a day, for most part they are all formed, but 4-5 pieces come out with each movement which I think is irritating the lining even more. Should I take a still softner till it heals or is that a bad idea? Asacol 800HD 3xdaily L-Glutamine 4g daily, Folic Acid 400mg daily, Mesalmine enema 4g nightly, just got canasa suppositories 1,000mg
Posted 3/8/2019 1:21 PM (GMT 0)
Sorry to hear you are flaring but at least it sounds mild. The one rule of UC is that the rectum is always the first to flare, the last to heal, and always has our worst inflammation. You have a few options:
1.) Take 4,800mgs a day of asacol hd, take the 4,000mg enema at night, and take the 1,000mg suppository in the morning.
2.) I've had success with doubling the enemas, taking two back-to-back at night, and then going to bed. My doctor okayed taking 4,800mgs a day of oral, and 8,000mgs of enemas a day (12,800mgs total). It's really hard to overdose on mesalamine at UC dosages.
3.) Certainly keep your doctor in the loop on your plan, and have him/her up the prescription dosage so you have enough medication to do one of the above.
I would do something like that for 3-4 weeks and see if that is enough. In the event that it is not, then ask about steroid enemas, suppositories, or rectal-foams.
Posted 3/8/2019 3:43 PM (GMT 0)
Thanks, I'll definitely be trying that! Any suggestion on diet? I've been trying low sulfur, and low residue.
Posted 3/8/2019 3:51 PM (GMT 0)
Generally low-residue is recommended during flares.
Posted 3/8/2019 6:31 PM (GMT 0)
Let me clarify that you were on the enemas nightly and then dropped them without tapering?

Increase the oral mesalamine since you do have pancolitis.

A stool softener is fine....or you can increase intake of foods that soften stool. Increase fluids. Try fibre supplements (psyllium/inulin/other) to soften and bulk stool for easier passage.

q
Posted 3/9/2019 10:25 PM (GMT 0)
The psyllium is ok during flares? Is their a brand that's better than others?
Posted 3/10/2019 4:49 AM (GMT 0)
I use metamucil or generic capsules.
q
Posted 3/10/2019 3:56 PM (GMT 0)
"The psyllium is ok during flares?" Depends how bad you're flaring. Moderate to severe flares, no way. Milder flares, maybe? Try and see?
Posted 3/13/2019 2:06 PM (GMT 0)
So I've been keeping a daily journal of how I'm feeling, my bathroom trips etc. I'm stuck in a loop, where I can go 3-4 days no blood, but day 5 they'll be some blood. Not really altering my food that much. Taking the enemas at night and suppository in morning upped asacol, and I know it's still early but is that normal to see these ups and downs?
Posted 3/13/2019 3:15 PM (GMT 0)
Ups and downs are as common for us as sunshine is on summer days, unfortunately.
✚ New Topic ✚ Reply