I want to stop lovenox

Isn't it normally stopped as soon as you begin moving around after surgery?
I stopped as soon as I was walking...

As soon as I was walking they stopped. You should question your surgeon about it.

Thank you. It's comforting to know I'm not alone.

3timechamp said...
What are they for??

At NYP they gave us Heparin shots to prevent blood clots after our surgeries.

PhuqueyouUC = huh ?

It's not really ideal to stay on a blood thinning medication with an IBD

Andrina said...
Even if I no longer have a colon? I still have ibd?

Yes. It is not curative. You still have an IBD even without a colon.

You still have a few CMs of rectal cuff that could still get UC. It’s so small that it usually doesn’t effect most jpouchers but some people get cuffitis.

Others get pouchitis and some get crohns.

You shouldn’t take NSAIDs either. You should take blood thinners when necessary but the question becomes if they are necessary since you are walking and active.

They examined my colon and rectum too.

At every point through my UC-life they told me that I had UC.

After they removed my colon the surgeon said that I had UC. He is a famous crohns surgeon.

As soon as they connected me I had pouchitis, a year later they were telling me that I had crohns with ulcers.

Andrina said...
Awesome

You have great odds of NOT having problems with your jpouch (~93%).

But you shouldn’t take blood thinners and NSAIDS unless they are absolutely necessary.

Andrina, I hope you've been able to get off the Lovenox. When I had trans-abdominal surgery in 2015 for a pelvic problem, the hospital pressed me to accept a 4-week Lovenox regimen before they would discharge me! I was royally ticked off because I had been out of bed walking since the morning after my surgery, AND, every time they injected me with Lovenox I would feel nauseous within 10 minutes & even threw up plain water at night after they injected me. So, feeling like Keith that IBDers should not be on blood-thinners longterm, I phoned my IBD gastro soon after arriving home from hospital-- to ask whether I really needed the continuing Lovenox Rx. Gastro replied that my main need was to stay mobile, to avoid clotting. And I was MOBILE daily! I decided NOT to accept the Lovenox Rx; then I only had to deal with repeat calls from the local pharmacy asking why I didn't pick up the 4-week supply! All best wishes to you for transitioning off it. / Old Hat (38 yrs with left-sided UC; presently in remission taking brandname Colazal)

Andrina said...
Even if I no longer have a colon? I still have ibd?

Andrina,

NSAIDs & blood thinners can still cause us problems, Valli is having problems from Advil for a few days.

https://www.healingwell.com/community/default.aspx?f=38&m=4125626

To Doug, I was told in hospital that the reason they give Lovenox to IBDers post-surgery is that we are thought to have a greater chance for developing embolisms at that stage than non-IBD patients. But, as Keith posted above, we're not supposed to be on blood thinners longterm. / Old Hat (38 yrs with left-sided UC; presently in remission taking brandname Colazal)