joint issues

Does anyone's UC flare appear first as forms of joint pains or achey joints and linger for a few months without much bowel symptoms?

D

Sometimes, yes.

I have joint, muscle, neck, back issues since I was kid, and flaring can certainly exacerbate some of those pains, although not always. My flares are very mild now but the intensity of them doesn't always compare to the pain.
I am going to ask my GP if I can try LDN.

q

My knees are a problem for me

kchw496 said...
Has anyone tried turmeric for anti-inflammatory support?

I have just started some turmeric gummies this week. Can’t say they are helping yet but I’m starting with low dose. I have a serious case of piriformus syndrome right now (muscles in my rear pinching my sciatic nerve).

Yes, my son’s primary symptoms is his serious joint pain, the gut issues are always secondary if they appear at all. We just talked to his specialist about this and he (who is very involved in the research side) said there is a subpopulation of IBD patients for who their primary issue is joint pain.

No worries Tristan. Actually for people with pronounced joint pain do you also have other extra-intestional symptoms....for instance I've noticed I have sinus issues quite often with my UC

Hi damo123,

It was my case. I had been having joints, tendons and muscle pain for several months before my UC manifested itself.

Now it is manifesting in form of RSI/Carpal tunnel syndrome. I have to limit using keyboard and mouse every day to certain limit. Nonsteroidal anti-inflammatory drugs are helpful but I use them only from time to time. There is hypothesis that NSAIDs exacerbate UC symptoms. Omega-3 polyunsaturated fatty acids (basically fish oil) are helpful as well. I use them every day.

My rheumatologist told me that they(doctors) could not prove/disprove that it is related to my UC. I believe it is related.

In response to those who wanted more info about my son’s joint paint history/treatment: starting when he was little (maybe 2 or 3) he would have a couple of episodes per year where his hip joint (on one side or the other but it would change) would flare up so badly that he wouldn’t be able to walk...he would only crawl. This usually followed any kind of cold/flu. He also got hives a lot. Drs were never able to figure out what was going on with hip but agreed it was inflammatory in nature (they called it “pediatric transient synovitis of the hip”. Around age 6 other joints seemed to be affected but on a more daily chronic basis (swollen aching fingers and toes and knees/hip were achy a lot). He did not develop GI symptoms (and thus get diagnosed with UC) until he was 12 and had a sudden massive episode of uncontrollable diarrhea and bleeding that landed him in hospital. He did the initial prednisone round, etc.
Since age 12 (he is 16 now) his gut has been pretty good, probably 10 days in 4 years that he had the runs. It continues to be his joints that are chronically in pain. He takes Lialda for the gut but basically relies on Curcumin, CBD, hot showers, for joint pain (also does gluten free but no clue if that helps). Last dr visit they said they are concerned his joint pain maybe needs to be treated as primary symptom so monitoring and they are considering adding in methotrexate (but i’m reluctant). Hope that helps. BTW I have psoriatic arthritis with no real skin issues and primarily joint