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Ulcerative Colitis
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Posted 8/12/2019 3:58 PM (GMT 0)
new insurance in January resulted in my Hurmira, for UC, to go from $5 per month to $1900 per month (with a discount by the maker). hence, my 2+ year remission went down the toilet (pun intended)- pain, blood, bacon grease butt leakage, poopin' my pants...the whole glorious UC nightmare came back within a few months. My GI doc retired and his replacement was on a 3-month vacation. The temporary fill-in refused to give me prednisone unless I underwent very expensive and pointless tests plus a colonoscopy. As my insurance sucks, I said no.

I then decided to find out what OTC stuff might mimic the anti-inflammation that Hurmira apparently helped me with. Now, though I do not usually belive in hippie/holistic psychobabble, I was desperate. Was/am still on mesalamine. I started with green tea. Added turmeric and reversatrol, then cinnamin. Within 1 week, all my symptoms went away. I also then cut off sugar. I am sick of the tea, but as long as whatever is working is working...I will not rock the boat! Maybe it's a placebo thing? I don't care as long as my UC nightmare stays away!
Posted 8/12/2019 6:43 PM (GMT 0)
My vote is placebo.
Posted 8/12/2019 9:20 PM (GMT 0)
How much turmeric are you taking? My GI actually asked me if I wanted to try curcumin and printed me off a study showing that it helped with UC.
Posted 8/13/2019 11:44 AM (GMT 0)
Maybe a mix of anti-inflammatory action of supplements and placebo but who cares? Go with it!
Posted 8/13/2019 2:21 PM (GMT 0)
2000 mg per day.
Posted 8/13/2019 3:16 PM (GMT 0)
Placebo effects are real...
Posted 8/14/2019 3:48 PM (GMT 0)
There are actual studies showing curcumin works. Not a placebo.
Posted 8/14/2019 7:10 PM (GMT 0)
Unlikely a placebo. Resveratrol and turmeric aid phase II liver detoxing, which a lot of UC patients have genetic abnormalities with. I certainly do. Turmeric at that dose will also downgrade the inflammatory cytokine response. This has been confirmed for over a decade now which is why big pharma got into coumadin.

Cinnamon (if it's the verum kind) has strong anti-fungal properties, if taken as a strong tea or extract. Green tea extract is a strong antioxidant that can help clear waste product of inflammatory response, just like a product with a similar biochemistry called grapeseed extract.

The problem though is that this won't address the underlying cause of your UC. It's just treating the symptoms. The first year I had UC, I took turmeric 3 times a day. I was still able to live a relatively normal lifestyle. Eventually when the turmeric stopped working, I had my first life threatening flare and nothing could stop it. I'm not saying this will happen to you, just to be aware that these things you're taking are only clearing your body of the fallout of UC, they aren't stopping the UC itself.

Still... it's cheaper than biologics and if it's working for you for now then why not?
Posted 8/14/2019 8:15 PM (GMT 0)

MarkWithIBD said...
Unlikely a placebo. Resveratrol and turmeric aid phase II liver detoxing, which a lot of UC patients have genetic abnormalities with. I certainly do. Turmeric at that dose will also downgrade the inflammatory cytokine response. This has been confirmed for over a decade now which is why big pharma got into coumadin.

Coumadin?
Posted 8/15/2019 12:01 AM (GMT 0)

beave said...

MarkWithIBD said...
Unlikely a placebo. Resveratrol and turmeric aid phase II liver detoxing, which a lot of UC patients have genetic abnormalities with. I certainly do. Turmeric at that dose will also downgrade the inflammatory cytokine response. This has been confirmed for over a decade now which is why big pharma got into coumadin.

Coumadin?

Sorry I meant curcumin. Coumadin is Warfarin, the synthetic version of curcumin.
Posted 8/15/2019 12:29 AM (GMT 0)

MarkWithIBD said...
Sorry I meant curcumin. Coumadin is Warfarin, the synthetic version of curcumin.

?
Warfarin isn't a synthetic version of curcumin.
Posted 8/15/2019 5:04 PM (GMT 0)
"6. Cassia cinnamon

Cinnamon contains coumarin, a powerful blood-thinning agent. Warfarin, the most commonly used blood-thinning drug, is derived from COUMARIN"
q
Posted 8/15/2019 6:15 PM (GMT 0)
Yes, check with your doctor before beginning a new supplement like turmeric. In addition, there are challenges absorbing turmeric. Supplement forms that are hydro-soluble absorb better.
Posted 8/15/2019 6:30 PM (GMT 0)
Remember, Tumeric is a blood thinner. You will take longer to heal from cuts and will bleed more.
Posted 8/16/2019 9:38 AM (GMT 0)
Considering UC comes on of its own accord, in my strong view, thanks to nothing other than the mind, I'd consider a 'placebo' that works a complete success.
Posted 8/22/2019 2:43 PM (GMT 0)
Placebo or not, I am still doing well. As far as just covering symptoms as opposed to solving the diesase itself...sheesh, as nobody is 100% sure what even cause this nightmare, I'm just happy to not be in pain or be pooping a horror show. Not t0o mention that the cost of Humria being $5 with insurance and $2000 without is Big Pharma sodomy. I hope you all get better!
Posted 8/22/2019 3:22 PM (GMT 0)
What is the difference between curcumin and tumeric?
Posted 8/23/2019 5:04 PM (GMT 0)
MLP...

https://www.healthline.com/nutrition/turmeric-vs-curcumin

And you couldn't do this yourself?

q
Posted 8/26/2019 2:44 PM (GMT 0)
To simplify, curcumin is the active compound in turmeric that contributes to its health benefits.
Posted 8/27/2019 2:30 AM (GMT 0)
“The problem though is that this won't address the underlying cause of your UC. It's just treating the symptoms.“

I have been watching what I eat, knowing that for me greasy deep fried foods and raw veggies will result in pain, which I guess is also just treating the symptoms. I wonder though, and please excuse my ignorance, I wonder if that’s all that prednisone does? It just treats the inflammation symptoms?
Posted 8/27/2019 2:26 PM (GMT 0)
There's a misconception that medications only mask symptoms and natural-healing somehow does not do this (to reinforce one's choice as better then another's). Heard it over and over again, in varying semantics.

Regardless of treatment (natural or pharmaceutical) you're trying to shut off the immune attack long enough that the attack ceases, and the immune system goes into a dormant state.
Posted 8/27/2019 3:33 PM (GMT 0)

Rosiedays said...
“The problem though is that this won't address the underlying cause of your UC. It's just treating the symptoms.“

I have been watching what I eat, knowing that for me greasy deep fried foods and raw veggies will result in pain, which I guess is also just treating the symptoms. I wonder though, and please excuse my ignorance, I wonder if that’s all that prednisone does? It just treats the inflammation symptoms?

Yeah, I don't see the difference.
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