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U B Tough....

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Ulcerative Colitis
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Posted 10/22/2019 6:11 PM (GMT 0)
Hi...please email ipoop for my contact information to text me.
q
Posted 10/22/2019 6:43 PM (GMT 0)
Done, UB Tough, check your email address associated with healing well. Good luck you two, hope you get the fistulaizing CD thing sorted out.
Posted 10/22/2019 6:51 PM (GMT 0)
Thanks John!
q
Posted 10/23/2019 3:29 PM (GMT 0)
Thank you! Will do. Sorry for the delay. Yesterday was hospital day....today is zombie daysmile
Posted 10/28/2019 11:24 PM (GMT 0)

U B Tough said...
both parents had IBD. My advice: be selfless don't procreate with CD.


Sorry to just barge in but I agree with this 100%
Posted 10/29/2019 12:07 PM (GMT 0)
That's the dumbest thing I've heard.

1. It's not yet proven that it is genetic. None of my parents, grandparents had anything even closely related to IBD.....
2. With the way medicine is progressing, by the time your kid did develop an IBD there most likely will be many more medicine options, if not a cure. Also, I know plenty of people who don't have any issues with an IBD and are happy as hell. I had a stubborn case of an IBD and still am happy as hell without a colon.
3. There's many better reasons not to have a kid before looking at CD as a reason. For example, do you also tell people who are poor to be selfless and not procreate?
Posted 10/29/2019 12:13 PM (GMT 0)

Bull101 said...
That's the dumbest thing I've heard.

1. It's not yet proven that it is genetic. None of my parents, grandparents had anything even closely related to IBD.....
2. With the way medicine is progressing, by the time your kid did develop an IBD there most likely will be many more medicine options, if not a cure. Also, I know plenty of people who don't have any issues with an IBD and are happy as hell. I had a stubborn case of an IBD and still am happy as hell without a colon.
3. There's many better reasons not to have a kid before looking at CD as a reason. For example, do you also tell people who are poor to be selfless and not procreate?

Hmmm ... points #2 and #3 have some merit. The genetic risk is not the most solid reason to avoid children. But #1 is just ignorant.

It is so definitely conclusively proven that genetic vulnerability is one factor, along with gut microbe health, and environmental triggers. Debate over. The proportions vary from individual to individual. Genetics also does not equal what you parents or near relatives developed - it is about the genetic code carried in the family. Your vulnerability may be a little lower than some, your relatives may not have experienced the same triggers, or may have acquired different gut microbiomes. But you may as well say that the theory of gravity has not yet been proven ... not helpful.
Posted 10/29/2019 12:22 PM (GMT 0)
Please point me to the study that proves 100% that genetics causes IBD. Not makes you more susceptible, but causes it. Also, please let me know how much more likely someone is to get an IBD when it's carried in their genetic code vs. not.....
Posted 10/29/2019 12:49 PM (GMT 0)
Let's be nice of other's opinions, folks.

Overall, there's a lot of voluntary childlessness with IBD and other autoimmune disorders. Doctors say a lot of this voluntary childlessness has to do with a patient misunderstanding of the actual odds of passing UC down to their offspring. But as you all know, I like statistics so let's see what the actual odds are:

https://www.genome.gov said...
Is Crohn's disease inherited?
There appears to be a risk for inheriting Crohn's disease, especially in families of Jewish ancestry.

Children who have one parent with Crohn's disease have a 7 to 9 percent lifetime risk of developing the condition. They also have a 10 percent chance to develop some form of inflammatory bowel disease. When both parents have inflammatory bowel disease, the risk for their children to develop Crohn's disease is 35 percent.

Source: https://www.genome.gov/genetic-disorders/crohns-disease

So there's 90% odds your offspring will NOT have UC within his/her lifetime, which is pretty good odds. If you have a desire to have your own children, then by all means do so smile

And there were some identical twin studies a while back, one twin got IBD, and the odds of the other getting it were 50% during his/her lifetime. Read that again, identical DNA, so there is definitely more going on here.

So, is genetics a closed-door, absolute cause of UC? No. There's curious patterns of inheritance within some families, which piques some interest among researchers. However, UC is not broadly inheritable and not guaranteed to occur when we have kids.
Posted 10/29/2019 2:54 PM (GMT 0)

iPoop said...
Let's be nice of other's opinions, folks.

....There's curious patterns of inheritance within some families, which piques some interest among researchers. However, UC is not broadly inheritable and not guaranteed to occur when we have kids.

That's been my experience also. I have a large family and there is some IBD scattered within it, but inherited??? Very doubtful.

Personally, I'd like to see dumb and mean people go childless ;-)
Posted 10/29/2019 3:01 PM (GMT 0)
Appreciate the statistics iPoop.

I'll go ahead and be selfish and plan on having kids.
Posted 10/29/2019 3:08 PM (GMT 0)
No history of UC in my family that I know of. But there is a strong history of type 1 diabetes which is an auto-immune disease with a poorly understated starting mechanism. So I lean somewhat along those lines— possibly an inherited risk for auto-immune disfunction triggered by some unknown event
Posted 10/29/2019 5:18 PM (GMT 0)
I come from family (both sides) with a long list of autoimmune and nonautoimmune health issues....no kids for us. And as I've aged beyond that decision and more have emerged....there is a smile with good reason.

q
Posted 10/29/2019 9:40 PM (GMT 0)
Even if it's not proven it's genetic I'm not going to risk it.
Posted 10/30/2019 1:23 AM (GMT 0)
Andrina.... you don't need to jusfify as to not having kids....ever...as if, to some, it's breaking the written in stone law of nature.

q
Posted 10/30/2019 1:38 AM (GMT 0)

quincy said...
Andrina.... you don't need to jusfify as to not having kids....ever...as if, to some, it's breaking the written in stone law of nature.

q


I could never forgive myself if my kid has symptoms of IBD. I myself am a very bitter person because I was not believed when I was a teenager and struggled through my work life and had my boss hate me. Even though I had my surgeries I'm still very much affected and I am not functioning normal. I will probably never be normally healthy no matter what. I don't want to put another person through that if I can help it. Sorry I just needed to vent here.
Posted 10/30/2019 2:41 AM (GMT 0)
Venting is good, and it's a personal decision based on your facts....and maybe instinct?

q
Posted 10/30/2019 12:40 PM (GMT 0)
You don't need to justify your decision. I think if that's how you feel then that's great and I'm happy you made a decision that you feel is right.

My issue is for you to call someone else selfish if they do decide to have kids. They have the same choice as you do, and neither is right or wrong. They're just different.
Posted 10/30/2019 1:33 PM (GMT 0)
I never wanted kids anyway. I think it's extremely altruistic to not want to have kids because there is a chance they might get IBD.
Posted 10/30/2019 2:25 PM (GMT 0)
The wife and I are voluntarily childless, as well, and my UC isn't the predominant reason for that choice. We have lots of reasons for not wanting to have our own kids beyond it.
Posted 10/30/2019 3:52 PM (GMT 0)
Passing on IBD would be crushing but it's not the reason I've never had children - though, after everything I've been through, I can see it being a valid reason not to have children. I didn't want kids prior to IBD. I never felt like I would be financially capable of raising children the way I would want to. I wouldn't want to bring a child into a life where they would struggle to make ends meet. Sadly, it seems like the biggest factor in a good future is being born into a family with some resources. I didn't have a great upbringing and I've had to fight for everything. it's really tiring, and to top it off, my health isn't great. If I had some support from family, the health thing might be more tolerable. Poor with IBD - that's my life!
Posted 10/31/2019 2:42 AM (GMT 0)
FWIW, my mom was diagnosed with UC after I was. She had struggled for years with what the docs called IBS but with my IBD diagnosis she went back to the GI and they confirmed with a colonoscopy. She was put on Lialda and it went into remission, almost right away. She had a very slight case that was easily managed.

On the other hand, I just had my colon cut out after experiencing the full rainbow of biologics for a decade at half of her age.

Now, on top of that, my mom kinda sucks. Details don't matter but we aren't close.

And even with that, I am glad she had me because I'm alive. If she had known about her IBD and chosen not to have kids, it would have deprived me of the 99% of my life that hasn't been about UC. And I've got a severe case.

Life is more important than the difficulty of this disease.
Posted 10/31/2019 5:44 PM (GMT 0)
Andy....Making the decision of a not having children means never born.
Once born, it then becomes a separate life...real and not imagined. The preventative then becomes the regret.

I really wish I hadn't been born, but here I am, and I'm certainly not thanking my parents for giving me life. Bad stock needn't be reproducing, but it continues flaws and all.... then people demand a cure for everything.

If one's mindset doesn't get it....it never will.

q
Posted 10/31/2019 9:16 PM (GMT 0)
No, I get it Quincy. Many people on this thread believe that choosing to not have children because of their IBD is a good decision. Since having kids is a personal decision that factors in any and all factors that matter to the people making it, I am not disputing that in the slightest. That is their - and your - absolute right.

But speaking as the child of someone who has IBD, that now has IBD, I am glad that my mother did not make this exact decision. I've lived a full, amazing life around and during a chronic, severe case of UC and will continue to do so until something takes me out of this world. And even if that is my IDB in the most debilitating, painful way possible it will do nothing to take away the joy I've had in living, the lives I've affected and the things I've done.

There is this disease and there is how you respond to it. You have zero control in life over what happens to you, but you have absolute and complete control over how you react to it. I weighed in on this discussion because of exactly what you said - these are hypothetical and imaginary lives until they happen. I happened, and have an opinion.
Posted 10/31/2019 10:30 PM (GMT 0)
Everyone has right to opinion. There is right or wrong answer on this matter.
Andy, you’re so inspiring... I just admire you and your attitude because life does take courage
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