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Found great blog with leaky gut tests

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Ulcerative Colitis
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Posted 11/6/2019 9:28 PM (GMT 0)
Hi, just found this great blog that goes trough all leaky gut tests:
https://goodbyeleakygut.com/tests-symptoms-leaky-gut/

Has anyone here tested if you have leaky gut? I'm interested if someone tests before and after flares to see how tests turn out.

I'm in Europe, so I'm also interested if anyone has some suggestions for labs that do these tests.

Thanks!
Posted 11/11/2019 9:09 AM (GMT 0)
Has anyone done leaky gut test with UC?
Does it make sense to test before and during the flare?
Posted 11/11/2019 1:56 PM (GMT 0)
I'd be pretty suspicious of such tests, sounds like a B.S., money-grab to me (a bit scammy).

Researchers often talk about IBD patients having a porous/sieve, defensive mucosa barrier. Our mucosa barrier is supposed to keep the bacterium within our digestive tract separated from our cells. When our mucosa barrier becomes thin and holes develop in it, bacteria get into our cells and their interior and immune system attacks causing inflammation. Studies have proven the permeability of our mucosa barrier and the ensuing immune attack. We also have a bacteria imbalance within our guts, more baddies than expected, less goodies, and less bacterial diversity (a dysbiosis).

So you/I have a lot going on, call it a leaky gut I suppose you could! If the test detects anything at all of meaning, I'd assume it would say you/I have a leaky gut, as does everyone else on this forum.
Posted 11/12/2019 11:44 AM (GMT 0)
If test is prohibitively expensive then I would also be suspicious, but if it is in some normal range, like other blood tests, then why not add it to your usual range of blood tests?

From what I understood, and please correct me, this test gives a range of "leakiness" so you can track progress over time.

It could be used as useful metric if gut lining is healing or not, and to see if whatever treatment you are on is working or not.

I haven't used it but I'm looking into it, so I'm more interested to see if there are people who have tracked their leaky gut over the time during different treatments to see if this test can be used as a useful metric or not to track improvement of UC.

Becaues there are lot of different theories of what causes UC and what heals it, we need some kind of tests that could be used to measure validity of these claims.

If you restore balance to your gut (by any means at your disposal) then this test (or some other) would be useful to confirm that your current treatment is working.

Colonoscopy is best way to see the state of the intestine, but because it is not without risks and prep procedure is disturbing already problematic balance of microbiome, I would like to use it less rather than more.

Post Edited (supergut) : 11/12/2019 4:55:27 AM (GMT-7)

Posted 11/12/2019 4:53 PM (GMT 0)
Why not just track your progress with calprotectin tests instead? Leaky gut isn't believed to be a real condition by most doctors.
Posted 11/15/2019 7:58 PM (GMT 0)
I've read somewhere that the easiest test is to eat beetroots and when they (the red colour) come out in your stool immediately, it is very likely you have a leaky gut. The later the red beetroot colour appears in the stool, the better as it means you probably don't have a leaky gut.
Posted 11/15/2019 11:38 PM (GMT 0)
I think leaky gut is a huge component in my UC... I can't speak for anyone else. I had repeated food poisoning in my 20's that was severe, and then I developed food allergies and malabsorption. When stuff doesn't absorb properly, it enters the colon and affects the flora balance, causing dysbiosis. I think the root of my UC is actually an upstream problem in my small intestine somehow... but getting doctors to be creative and investigate this is next to impossible.

I'm frustrated because alternative medicine has a lot of hack tests and questionable diagnoses/conclusions based on these tests, but they're the only alternative resource I can turn to in order to try and explain what's going on. Modern medicine has better tests, but the doctors aren't interested in exploring other conclusions, unless you're lucky and get a really open minded MD which has never happened to me.

For instance I would really like to explore SIBO in my upper GI, but there are so many quack approaches to the idea of SIBO that I don't know who to trust. My GI doctor won't even investigate SIBO because he says "You have UC and you just have to accept that."

I really hate the state of medicine in the world, especially because I know that with a change of priorities, it could be SO MUCH BETTER!

Post Edited (MarkWithIBD) : 11/15/2019 4:42:30 PM (GMT-7)

Posted 11/16/2019 11:34 AM (GMT 0)
Hi Mark,
I had similar food poisoning issues, but even earlier, in my teens, and then in my 20s...
I'm also on board with your conclusion about alternatives and "standard" medicine being too rigid.

I haven't heard about SIBO (Small Intestine Bacterial Overgrowth) but you got me interested now. I found this link - https://www.siboinfo.com/testing1.html

Also I read that small pill sized cameras could see inside small intestine, but haven't heard it used in my country.
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