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Posted 11/6/2019 5:47 PM (GMT 0)
Hi,

I was looking for some thoughts on my current problem. I recently (3 weeks ago) started shedding hair like crazy. I read some where that the normal person sheds about 50-100 hairs a day. I am probably shedding over 400 a day. A quick back story on my health. Over the summer (June) I was extremely sick. I went on prednisone in July and came off of it at the end of August. I started entyvio in September and on October 19th I completed my third infusion. Everything was fine and then on October 20th, I realized that I was losing a lot of hair. At first I didn’t pay too much attention to it but recently it’s just gotten worse. I got my blood taken out a couple of weeks ago and everything seems fine.

I am just wondering if it might be the entyvio or my horrible flare up from the summer. I know hair grows in cycles and I have experienced telogen effluvium. Has anyone experienced hair loss with entyvio?

I also have really long hair and have been debating cutting it since I am shedding so much.
Posted 11/6/2019 6:05 PM (GMT 0)
Sorry, I know hair loss and thinning hair is very troubling. Most likely the hair loss is a delayed reaction (about 2-3 months) from the worst of our flare and hair regrowth is a delayed reaction from recovery from our flare (again delayed by about 2-3 months).

Hair loss or thinning hair happens to those who are not on any medications for their UC. Hair loss happens to those that are on the anti-inflammatory mesalamines, the thiopurines (like 6mp/imuran), to those on biologics (like humira or enyvio) despite those medications having very different active and inactive ingredients, and despite them all having very different mechanisms of action.

Here's a good watch for you explaining it more, IBD School, Video 205 – Telogen effluvium (hair loss in IBD):

http://www.med.umich.edu/ibd/school/video205.html

Heard some say that biotin-based shampoos help with hair regrowth and thicken hair.
Posted 11/7/2019 12:09 AM (GMT 0)
Every time I get really really bad, I start having my hair fall out a few months later. But it always comes back. Thank goodness!
Posted 11/8/2019 6:35 AM (GMT 0)
Prednisone does this to me. Took me a couple rounds of doing it before I made the connection. A few summers in a row I was on prednisone, by October/November my hair was falling out like crazy. Hair loss lasted until around January then went back to normal. Saw it growing back in months later as little baby hairs.
Posted 11/8/2019 9:32 PM (GMT 0)
It is the disease, generally 2-3 months after the peak of a flare up hair will fall out. It takes about that long again for it to start to grow back. I was really sick a year ago my hair started to fall out like crazy in January. By May it was back to normal thickness. The woman who cuts my hair keeps commenting on how crazy it is that I have so much hair again after losing so much. It stinks, but once it starts growing back it is a sign that you are getting healthier.
Posted 11/16/2019 3:55 AM (GMT 0)
I’ve been suffering with hair loss since 6 months before my initial diagnosis. Been in remission since, yet my patterns of hair loss continue.
Posted 11/16/2019 12:57 PM (GMT 0)
Are you anemic or low in folate (b12)?
Posted 11/16/2019 3:05 PM (GMT 0)
My GI told me Imuran can cause hair loss in some people.
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