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Just diagnosed with Psoriasis ( have UC)

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Posted 10/30/2019 2:57 PM (GMT 0)
My daughter has red scaly areas on her legs, stomach & between her breasts. They have gotten worse lately. She went to Dermatologist today & he said it was Psoriasis. He did a biopsy. She has been on Remicade for almost 3 years & has done very well. Can you give me feedback? Do you think she will have to go off Remicade??
Posted 10/30/2019 3:07 PM (GMT 0)
Sorry to hear about your daughter. I know Remicade is used to treat psoriasis, so I doubt she would have to go off of it. What did the doctor recommend for treatment?
Posted 10/30/2019 3:44 PM (GMT 0)
just steroidal cream
Posted 10/30/2019 3:51 PM (GMT 0)
I'd say it is unlikely she would have to stop remicade. Sorry, but sounds like a secondary autoimmune condition, in addition to having an UC. I'd follow what your dermatoligist says.

I'd expect to have her use psoriasis safe shampoos, body soaps, and laundry detergents (no harsh chemicals or perfumes).

She should shower/bathe at a non-scalding temperature, towel off and immediately apply a non-scented moisturizer in those rashed areas.
Posted 10/30/2019 7:36 PM (GMT 0)
I stayed on Remicade while dealing with psoriasis. The dermatologist rx'd topicals to treat. I can't imagine her gi taking her off of it.
Posted 10/31/2019 1:36 AM (GMT 0)
Psoriasis runs in my family (pretty bad for my dad and aunt, my brother just has it on his scalp). I did not start getting it -- and in two big patches on my scalp and in one armpit (yeah odd) until a few months ago. My GI and the IBD PharmD assigned to monitor my meds don't think I am one of the very small percentage of people who get psoriasis as a side effect of Remicade/Inflectra (yep! even tho it is used to treat it) bc when they have seen that, it is usually within the first few months that it pops up. My guess is it is just a secondary AI disorder, as they come in clusters. The topics and keeping very moisturized should help.
Posted 11/1/2019 8:12 PM (GMT 0)
i know many people on the Polish uc forum who are struggling with psoriasis, I remember that they were praising the qing dai ointment for psoriasis. I don't remember now but I've also read something about another Chinese ointment which gave them excellent effects and it does not contain steroids which, according to them, only make the symptoms worse in the long run
Posted 11/4/2019 1:20 AM (GMT 0)
I have both UC and psoriasis. I developed seb derm and psoriasis when I was a tween. I’m 47 now. I got diagnosed with proctitis 8 years ago. My psoriasis has been manageable most of my life but lately I’ve noticed it’s gotten a bit worse. It’s on my scalp and legs. I think stress is my biggest trigger for the UC and psoriasis.
Posted 11/4/2019 12:29 PM (GMT 0)
I don't know of any 'cure' for psoriasis, natural or otherwise, but there is something that might help a little bit. A recent clinical study found that pycnogenol, an extract from the bark of French maritime pine trees, can significantly and safely improve the symptoms of psoriasis:

http://www.lifeextension.com/magazine/2015/5/new-study-finds-pycnogenol-effectively-treats-psoriasis/page-01
Lead study researcher, Dr. Gianni Belcaro, said that, “As a natural nuclear factor-kappa beta (NF-kb) inhibitor, Pycnogenol reduces inflammation at the onset and can act as a natural, vegetal ingredient to control inflammation, swelling, and oxidative stress.

“In this study and in several others on chronic inflammatory conditions,” said Belcaro, “Pycnogenol has shown significant clinical results and without any side effects, making it a safe, natural, alternative for those seeking relief from the symptoms of psoriasis.”...

After the 12-week trial, 80% of the Pycnogenol group decided to continue using the extract, a good indicator of their emotional reward.
Posted 11/10/2019 6:48 PM (GMT 0)
I just saw my daughter & the area she said are less red with the topical ointment the Derm gave her. I think it looks pretty bad! The areas are all over her back, legs & chest. She is going to have her Remicade infusion this Thursday(every 8 weeks). I am pretty worried. It has gotten bad so quickly.
Posted 11/11/2019 1:27 PM (GMT 0)
She can ask her gasteroenteroligist to do a remicade antibody and concentration test just before her next infusion. If she has developed antibodies against remicade, then things like rashes, joint aches, and fevers are a lot more common. Many labs do this, here is one as an example:
https://www.labcorp.com/test-menu/29496/infliximab-concentration-and-anti-infliximab-antibody

I would make sure she is premedicating with tylenol and an antihistamine (bendryl/claritin) just before the infusion. Mention this rash to her gasteroenteroligist and infusion nurse. They might even choose to premedicate her with IV solumedrol (a steroid). Any of these things might reduce the rash, if it is related to the remicade. Worth a try at least!
Posted 11/11/2019 5:31 PM (GMT 0)
The Derm did a biopsy & It is definitely Psorasis. It is a shame if she may have to go off Remicade because she has done so well with it for her UC. The Psorasis is pretty bad.
Posted 11/11/2019 6:06 PM (GMT 0)
What makes you think going off of Remicade will improve her Psorasis?
Posted 11/11/2019 7:43 PM (GMT 0)
There is a variety of topicals used to treat psoriasis with & without steroids. It's a matter of finding which one works the best for the patient. It sounds like her current topical is working since she is seeing improvement. Light therapy is another option.

It is not uncommon to develop a secondary AI condition. Stinks, but it happens. After a while, I learned what was my triggers, stress was number one at the top of that list.

As I mentioned above, I stayed on Remicade, it did not cause the condition.
Posted 11/11/2019 10:22 PM (GMT 0)
The Rx Triamcinolone Acetonide Cream, USP, 0.1% has helped friends of mine. Might be worth investigating. Good luck!

Post Edited (garyi) : 11/11/2019 3:28:47 PM (GMT-7)

Posted 11/14/2019 5:55 PM (GMT 0)
or dr Michael's series of cosmetics for psoriasis, that's another thing that was recommended on the Polish uc forum
Posted 11/16/2019 11:53 AM (GMT 0)
Hello all,
My daughter came for a visit & her psorasis looks a bit better, she said they were almost all gone, but her stress level as a teacher went high this week! She had her Remicade infusion 2 days ago (every 8 weeks). She has an appt with her GI in a couple weeks to discuss. She continues to get new psorasis areas too.Her Gi is awesome & she will listen to his advice. This just stinks!
Posted 11/16/2019 4:23 PM (GMT 0)
Does your daughter take anything besides the Remicade? I ask because there are oral medications that can be taken for Psoriasis, as well as other biologics, if the Remicade is not helping, and they would just be added to the regime, as opposed to being taken in lieu of Remicade. Case in point: I actually met with a Rheumatologist this week because while the Inflectra (Remicade biosimilar) controls 95% of my bowel symptoms, I have developed psoriasis on my head (unrelated to the drug, as I mentioned above I have a family history), and I still have some lingering joint pain, which she thinks may be the type of inflammatory arthritis that co-occurs with IBD, and that the Inflectra is also not fully addressing it. ANYWAY, I also take Imuran with my Inflectra primarily to prevent antibodies, and the Rheumatologist was talking about maybe switching it out for methotrexate, because that is used for psoriasis and arthritis and IBD. She's going to talk to my GI and discuss options, so perhaps what your daughter may need is for her GI and dermatologist to get together and chat because it sounds like her psoriasis is pretty bad and may benefit from more systemic meds.
Posted 11/16/2019 5:22 PM (GMT 0)
No, she has done great on Remicade (only med she is on) for 3 years until this Psoriasis happened over the last couple months. Her Derm & GI Dr are in communication & she has upcoming appts with both in early December. I know she also wants to start a family soon, so we will see. It makes me sad to see her suffer with another condition. She is 29 yrs old & was stricken with UC her senior year of high school. She's a great kid & has been a teacher for 8 years,married for 2 years and getting her 2nd Masters. Ugh...
Posted 11/26/2019 1:08 AM (GMT 0)
RE: Psoriasis-She had another Dermatologist appointment today. He prescribed 2 more creams (1 during week & a stronger 1 for weekend) & told her no use in using the steroidal cream,for too long for it just won't work. He wants to see what GI Dr has to say- she has 12/4 /19 appointment. It's still there, but definitely better. Praying the new creams help control Psoriasis a lot & she can continue with Remicade.
Posted 11/26/2019 2:20 PM (GMT 0)
A steroid cream worked well for my contact-dermatitis. I believe they gave me triamcinolone and it showed results in less than a week. Hope it works as well for your daughter.
Posted 11/26/2019 3:49 PM (GMT 0)

iPoop said...
A steroid cream worked well for my contact-dermatitis. I believe they gave me triamcinolone and it showed results in less than a week. Hope it works as well for your daughter.

Correct.....Triamcinolone Acetonide Cream, USP, 0.1% can work wonders!
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