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Switching to Remicade from Humira

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Ulcerative Colitis
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Posted 3/15/2020 10:14 AM (GMT 0)
Hello All,
I've been lurking here for 9 years or so. Thanks to everyone who has helped me with my health problems with the great posts here. I wanted to start a dialog since my disease (UC, arthritis, muscle/joint pain, fibromyalgia like symtoms....) is having such an increasing negative impact on my life. I'm 67 and retired 5 years ago due to fatigue that I just couldn't deal with at work anymore. UC has been in remission with Humira but due to cost and possibility that Remicaid could relieve my fatigue and muscle and joint pain I am switching to Remicade. I'm sure everyone is too aware of the cost issues with Humira so I won't go there. The Humira worked good for UC but fatigue, joint and muscle pain have just taken over my life. Doctors have no answers so it's give Remicade a try.

I'm just about at the end of my rope with this and don't know if I should just accept were I'm at with this disease or keep pursuing different drug treatments. Currently I'm trying to do both.

If you have switched to Remicade what has been your experience given my symptoms? Thanks, Mike
Posted 3/15/2020 12:14 PM (GMT 0)
Welcome to the forum. Sorry you're struggling with fatigue and joint pains though.

Those are common extra-intestinal manifestations of UC. Those can linger into a remission some tines. Sometimes fatigue is rooted in an underlying anemia or vitamin b12 deficiency, make sure those are ruled out (if not already). There's a slight chance of remicade-induced lupus but that's pretty rare.

A couple videos from the Michigan IBD school on this:
Fatigue in IBD part 1
https://youtu.be/xa_njg1aubk
Fatigue in IBD part 2
https://youtu.be/bbs7m9ohtzo
Posted 3/15/2020 3:04 PM (GMT 0)
Mike Odat please post if you go with remicade and it helps the other symptoms
Thank you
Posted 3/16/2020 12:49 AM (GMT 0)
Humira didn't work for me and we switched to remicade. Remi has been working really well for me after we played with dosage & frequency.

I have osteoarthritis and haven't noticed any affect on that either good or bad since being on remi
Posted 3/18/2020 12:41 AM (GMT 0)
I’ve been on Remicade from the beginning. It’s worked really well for me. I’ve only had minor flare ups while on it. I attribute my flare ups to stress (getting married). I used to be super tired after my infusion but now I seem to get a burst of energy & hungry. I use that time to catch up on chores & errands. I feel like everyone's body is different in how it reacts. I wish you the best and hope it helps you lots.
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