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Posted 3/15/2020 10:12 PM (GMT 0)
C_G_K - just a note on what you said about not getting colds. I’m the same. Before UC every winter I’d get a cold. Now haven’t had even one. I also wonder why this is.
Posted 3/15/2020 11:19 PM (GMT 0)
I have canceled everything from 2 airline flights to a haircut. IBD and Entyvio are minor considerations. My main reason is age. But I will venture out to the infusion center.
Someone I love very much is on the front lines in the emergency rooms in Seattle. Even with symptoms (negative test) they wanted to get back to work rather impact co-workers. Wishing our dedicated caregivers well.
Posted 3/15/2020 11:44 PM (GMT 0)

naturalcurl said...
Wishing our dedicated caregivers well.

My wife is under contract to regularly visit patients in nursing homes and assisted living facilities to write prescriptions and orders as needed. If this does get bad here in the United States, that will be ground zero. I have resigned myself to the fact that I will almost certainly be exposed to the virus as some point. At least I have good life insurance in case things don't go well!

Mike - ODAT said...
C_G_K - just a note on what you said about not getting colds. I’m the same. Before UC every winter I’d get a cold. Now haven’t had even one. I also wonder why this is.

I have an appointment with a mayo infectious disease doc in about a month. I need to remember to ask him about this.
Posted 3/16/2020 11:32 AM (GMT 0)
I'm flying on Friday. Going to Florida
Posted 3/16/2020 3:54 PM (GMT 0)
Great article with simulation on the importance of social distancing.

https://www.washingtonpost.com/graphics/2020/world/corona-simulator/
Posted 3/16/2020 7:32 PM (GMT 0)

Michelejc said...
I'm flying on Friday. Going to Florida

Were tickets cheap? Let us know how things go! My guess is the airlines have cancelled so many flights that the airplanes will still be packed.


I just found out that one of my wife's patients is in the hospital dying from complications of the corona virus. She has many serious pre-existing issues. She saw her about a month ago. That hits close to home obviously.
Posted 3/16/2020 10:15 PM (GMT 0)
We cancelled our trip within hours of flying to Sydney Australia for 2 cruises etc. One positive, I have enough meds for 2 months, we had good cancellation insurance, and we don't have to worry about being quarantined or finding accommodations in Sydney.

However, we have no food, not enough toilet paper, and upon going to the Superstore...there were empty shelves and only a few packs of TP left! People are going crazy panic buying. Lucky for us, we are retired.

Next time we travel, we will be prepared and a lot more cautious. Hopefully this virus gets under control soon, as I am feeling better than I have in a month or more. Maybe the stress about Covid 19 was causing my colitis to flare in the first place.
Posted 3/16/2020 11:49 PM (GMT 0)
Uniform Charlie ... that is a very interesting link
Posted 3/17/2020 12:07 AM (GMT 0)
Thank you for all the responses. I haven't been on here for a few days. it seems so.e thought I was in Lialda. I stopped Entocort EC which is an immunosuppressant. I am 80% sure we will be staying home . How long until the immunosuppressant effects are out of my system?

I am also a little concerned concerning my work. I work as a psychotherapist. Last week and this week patients have come up close to me and even hugged me without my asking. I was clear that this is not appropriate right now. They almost kind of did it as a joke or to be silly. There are no cases currently in our town of Eau Claire Wisconsin. Trying to figure out how to keep them a distance from me. Again thank you so much for all your time and attention to this.
Posted 3/17/2020 12:14 AM (GMT 0)

WI chica said...
Thank you for all the responses. I haven't been on here for a few days. it seems so.e thought I was in Lialda. I stopped Entocort EC which is an immunosuppressant. I am 80% sure we will be staying home . How long until the immunosuppressant effects are out of my system?

I am also a little concerned concerning my work. I work as a psychotherapist. Last week and this week patients have come up close to me and even hugged me without my asking. I was clear that this is not appropriate right now. They almost kind of did it as a joke or to be silly. There are no cases currently in our town of Eau Claire Wisconsin. Trying to figure out how to keep them a distance from me. Again thank you so much for all your time and attention to this.



Ugh that's annoying. Some strategies: 1. hang a notice in the waiting room (if you have one) that physical contact is no longer allowed and everyone should keep 1.5 metre distance apart 2. Explain the same at the beginning of the appointment. 3. Send an email in advance to outline the rules. 4 Just tell them you are in a high risk group and can no longer hug patients for your safety. My yoga school is now closed due to government restrictions but last time i was there the teacher made all of us wash our hands before and after class and every time someone touched their face he yelled at them!
Posted 3/17/2020 12:34 AM (GMT 0)
I work the Mayo Clinic in Eau Claire, WI. I think I will say something to our manager tomorrow. Some of the hugs are very normal under normal conditions. This is just really concerning me. The good thing is I have a pretty large office so they will not be sitting close to me. I think I will say something. Especially given my condition. I really appreciate your thoughts on this .
Posted 3/17/2020 5:15 AM (GMT 0)
Entocort is mostly topical in your colon. It's not systemic like prednisone since it doesn't release until it reaches your colon, so any minimal immune suppression in your system would likely be gone within a few days I would think. I don't have any science on that though.
Posted 3/17/2020 1:25 PM (GMT 0)
Thank you. That is helpful.
Posted 3/18/2020 12:29 AM (GMT 0)
hope you will not follow this influencer smile https://gulfnews.com/world/coronavirus-challenge-influencer-films-herself-licking-toilet-seat-in-plane-1.1584440070417
Posted 3/18/2020 12:43 AM (GMT 0)
I messaged with my doctor today about if he thought starting Entyvio was okay during all this Coronavirus stuff. He said he thought it would be safe but that they have no data on it. He said he thinks being on Entyvio would be safer than being on Humira (what I was on previously) or steroids right now. I still might wait though. Haven't decided yet.
Posted 3/18/2020 7:59 PM (GMT 0)

C_G_K said...

Michelejc said...
I'm flying on Friday. Going to Florida

Were tickets cheap? Let us know how things go! My guess is the airlines have cancelled so many flights that the airplanes will still be packed.


I just found out that one of my wife's patients is in the hospital dying from complications of the corona virus. She has many serious pre-existing issues. She saw her about a month ago. That hits close to home obviously.

___________________________________________________________________________________

My travel person where I work got my flights. They were cheap. I'm told there is hardly anyone on my flight going or coming back. I might even get upgraded to first class. If I was going to a hotel I would of cancelled. I'm going to my Mom's house. A few friends have come back from trips and they tell me the airports are empty and so are the planes. I'm bringing gloves and wipes to wipe down the plane seat.
Posted 3/21/2020 4:52 PM (GMT 0)
My brother lives in South Korea and says their health care system is far superior to ours here.

I think it would be incredibly selfish to travel for pleasure only when so much of the world is suffering and the possibility of spreading the virus is extremely high. There are a lot of immunosuppressed people who may not survive as well as elderly. It is a known fact that there is not enough equipment available to deal with a surge of ill people requiring intensive care. Why would you want to take the chance????
Posted 3/21/2020 5:03 PM (GMT 0)

tiredofallthispoop said...

I think it would be incredibly selfish to travel for pleasure only when so much of the world is suffering and the possibility of spreading the virus is extremely high. There are a lot of immunosuppressed people who may not survive as well as elderly. It is a known fact that there is not enough equipment available to deal with a surge of ill people requiring intensive care. Why would you want to take the chance????

I completely agree. Incredibly selfish. Like those self-absorbed millennial spring breakers in FL.
Posted 3/21/2020 5:46 PM (GMT 0)

Sara14 said...

tiredofallthispoop said...

I think it would be incredibly selfish to travel for pleasure only when so much of the world is suffering and the possibility of spreading the virus is extremely high. There are a lot of immunosuppressed people who may not survive as well as elderly. It is a known fact that there is not enough equipment available to deal with a surge of ill people requiring intensive care. Why would you want to take the chance????

I completely agree. Incredibly selfish. Like those self-absorbed millennial spring breakers in FL.






I have told myself that I will do everything in my power not to infect someone else. I would feel terrible if a coworker, friend, parent etc got sick because I couldn't be bothered to sit in my house for a couple weeks. God forbid they died or had permanent lung damage. I couldn't live with that guilt. This doesn't even take into account the hundreds of people who could potentially be infected by the people I pass it on to and the healthcare workers who will be at the tail end of that cycle and the terrible things they will deal with.

My mother lives a mile away and I am not visiting. Sorry but you are lying to yourself if you think that you can go through an airport, through security, get on a plane, go through bag check and not interact with others. Perhaps if she was already ailing I might consider it if it might be the last time I could see her or something like that.

If, after all precautions, I happen to get it and pass it along I will not lose much sleep.

Post Edited (Uniform Charlie) : 3/21/2020 12:14:12 PM (GMT-6)

Posted 3/21/2020 8:17 PM (GMT 0)
I saw the NY governor today give an update and I was highly impressed with the way he is handling everything. I wish he was the voice for the entire country. He laid out exactly what they are doing, what they need immediately, and didn't try to paint any rosy pictures. Even though it was stark it was reassuring to know that they are doing the things that need to be done.

We have a long way to go with this, but if governors step up like that we're all going to be better off. In PA, the governor has shut down all non-life sustaining businesses. Likely the last step before shelter in place. My company is still open since we produce medical journals that are considered life sustaining and is allowing anyone who can to work from home (I will be) and has instituted all kinds of things to keep things clean and people apart for the functions that can't be done remotely. I've been sounding the alarm at work for weeks and endured quite a bit of mocking for it. That all changed this week.

My 93 year old mother died on Sunday 3/15 basically of old age. She went peacefully in her sleep unrelated to Covid 19. This week has been rather overwhelming, but most people seem to be heeding the warnings to stop shaking hands except for one man who I lectured strongly because in his line of work he deals with a lot of older people. Hope I got through to him.

Traveling right now should be off anyone's list except for an emergency situation.
Posted 3/21/2020 8:24 PM (GMT 0)
Here's how to be a hero:

https://www.gocomics.com/viewsmideast/2020/03/21
Posted 3/21/2020 8:33 PM (GMT 0)
smile @ Casey
Posted 3/21/2020 10:06 PM (GMT 0)
People will always come in after the fact with "I told you so" in every large disaster. It's easier in hindsight. That being said, so far I give Trump an F.

His messaging was horrible right from the start and there are still people who have not quite grasped what is happening because of this. He is not alone either. I continue to see half measures by state governors which not only will not work, but will prolong the economic impact of this much longer.
Posted 3/22/2020 12:02 AM (GMT 0)
Let's not get too political here.

Ended up cancelling my flight today and got eCredits to use at a later date. Not worth the risk.
Posted 3/22/2020 2:05 AM (GMT 0)

Uniform Charlie said...
still people who have not quite grasped what is happening

What exactly do you think is happening or will happen?

I see the potential for a few hundred thousand deaths in the United States as a worst case scenario. That assumes that the quarantines won't have any effect, that warm weather won't have any effect, that no vaccine will be available in the next year, and that no viable treatments with existing drugs (like hydroxychloroquine) will emerge in the next year. In other words, that level of mortality is unlikely as everything would have to go wrong.
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