Ulcerative Proctitis: Betnesol Enema Taper

Hi Guys,

My doctor is not very helpful, so I am asking your thoughts. I have been on the betnesol enemas nightly now for 6 weeks alongside, oral mezavant 2 pills twice daily. My bowels have just recently have gone back to being normal ( pre flare) I'd say just over a week ago. The only lingering symptom I have is mucous, very small amount, I have a few days with no mucous fully clear then its back again small clear/yellow strand/brownish or chunk at the start of the bowel. I am eating the same thing basically every few days and keeping track, so I know its not food related. My doc is basically like you can stay on it another week nightly and then taper or taper now, she's not really telling me what to do. What is the best course of action here? My fear is that I taper too early and mucous gets more and more and im back in a flare but at the same time if I stay on it another week and then im still getting mucous after that week I will have to taper anyway? Appreciate anyone's thoughts.

Thanks

Good question, the problem is my first flare lasted 2 years and every single enema made me worse/didn't do anything except the betnesol... so I am hesitant to add those back in for fear I will be worse off? I tried one suppository at the start of this current flare and It was a massive set back my mucous increased dramatically and had super bad pain... and this is why I have been on these steroids so for so long... so I dont know if I should risk it?

Okay, I will do that one more week, thank you. She didn't say anything about the taper, I am assuming, day on day off for like a week and then second week every 2-3 days then stop? I will ask her about the suppositories steroid as well. I just find it so odd, I go a few days fully clear and then outta nowhere the mucous reappears, when I have made no changes ( legit eat exact same thing, I have always been eating etc.)? I am on probiotics, I take 5 per day with every meal and a bunch of other vitamins ( colostrum/vit C & D/digestive enzymes/reservatol etc.) Any other thoughts? thanks again so greatly appreciated