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Loss of hair on Entyvio

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Ulcerative Colitis
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Posted 6/17/2020 3:43 AM (GMT 0)
Hi..
I am having my second dose of Entyvio.. this week!
I am terrified of the side effects people are posting.. For example.. severe joint pain, fatigue, nausea,
and severe hair loss.. The side effects are scaring me so much .. I am almost afraid to have any more infusions.
I am having anxiety attacks because of my fear! I actually had nausea after the first infusion 😫.
Are many of you having any of the side effects I mentioned.
One woman said she lost about 40% of her hair!
I would really appreciate some reply’s.
Thank you very much😀
Posted 6/18/2020 7:24 PM (GMT 0)
I’ve been on entyvio for over 3 years and am happily in remission! I have zero side effects. Hair loss is more associated with flares I believe and is a post cumulative effect so I’m not sure I’d blame that on entyvio. I don’t take any pre meds however if you’re still nervous you could certainly take a Benadryl or an anti anxiety med before your next infusion. I understand your fear as I had them too when I first started. But I’m so glad I went ahead because remission is a really nice place to be. I can eat whatever I want again!
Posted 6/19/2020 2:21 AM (GMT 0)
I am so happy you are in remission! Congratulations! People are saying and showing the hair loss
on Entyvio Warriors.. on Facebook... of which I am a member. People are holding clumps of hair, and one woman showed her bald head! There are so many posts about hair loss.. they say the manufacturer of Entyvio doesn’t even list it as a side effect ... and the manufacturer should be advised!
Good luck with continued success 😀👍
Posted 6/19/2020 3:19 AM (GMT 0)
Personally I have not experienced any hair loss. I had some hair loss when I was flaring but none since remission. I would ask them how long they’ve been in remission when they experienced it.

I wish you as good luck as I’ve had with entyvio.
Posted 6/19/2020 6:34 AM (GMT 0)
I have not had any loss of hair on my head in 3+ years on Entyvio. Some loss of hair on my legs, but that might be just aging.

No obvious side effects, even when I went to infusions every 4 weeks.
Posted 6/20/2020 8:07 PM (GMT 0)
A good watch for you on hair loss and IBD:
https://youtu.be/p-1kvibvczc

Flares cause hair loss and not our medication. We can loose hair as a delayed reaction to our flare, and regrow hair as a delayed reaction to recovery. Why? Flares cause malnourishment, anemia, and other deficiencies. Hair growth takes a lot of energy and nutrients, our body temporary ceases growing hair, which caused it all to ho into death phase. Hair will fall out in clumps after a while.
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