Please Read: Ginger Was My Answer

marcell said...

David1991 said...

countess18 said...
Are you still on the SCD diet? Also why stop something that works esp. before a cruise?

simplys said...
Hello all. Just another update. Been going strong with 100ml every three or four days. Any longer and my stool gets loose. The BMs are consistent at 1 per 2 days. Sometimes I have a little alcohol or spicy food and it still disagrees with me. Stool is always a perfect 4 after drinking the ginger tea. I have been using almond cashew milk to cut out dairy completely. Still not on any medication. Doctor saw high liver enzymes, so I'm cutting back on vaping and stopping my methylphenidate (ADHD meds) to see if that's the cause. No flare even though my nicotine is a tenth the usual.

I had an endoscopy a few months ago and it showed signs of improvement in my colon. First time I've ever shown improvement. Not sure if I mentioned that here yet.

To answer a couple questions, I clean the ginger with a potato brush. Ginger always has mud caked in it, so I clean it off like you'd clean a potato. Then I just juice it with the skin on. I tried blending before jucing it, but the yield was not as good.

I would not out too much confidence in tinctures since I don't know the effect of alcohol on ginger. I may start jucing some tumeric to see if it has any effect.

I cut myself shaving, cut my hands work on the cars, exercise frequently, and get checked by the doctor often. No signs of thin blood as a result of the ginger I take in.

SL2 said...
I'm still on ginger juice since February last year. My hospital concluded in March this year that the analyzed samples from me showed no bad signs, and that I were in fact in a tad better shape than when I was on Mesalazine. My alternative medication wasn't something they'd heard of, although I only talked to one person.

I have lots of Mesalazine at home since before I stopped taking it regularly, I think it will last for many years. During the last year, I've used it a couple of times when I didn't have a chance to make ginger juice, but that's it.

No more acute bronchitis for me it seems, no coughing for months that keeps me awake at night, which is even a bigger win given that I used to have it at least three times a year before, although most likely unrelated to UC.
Because of that, even if ginger would stop working on my UC I'd still keep on drinking it because I get much less sick now (cold, coughing, acute bronchitis).

I'm not saying that ginger kills this or that, I know nothing about that. All I know is that I'm healthier overall.

VanJordan said...
Ginger is a novel anti-inflammatory and analgesic. This has been known for a long time. It also has a very narrow antiviral property, mostly for respiratory viruses. I researched ginger a lot in my early UC days and tried it in many forms. The juicing method was best but it didn't fix my UC, it just suppressed some inflammation and pain. Great if you need to tackle that, but it does nothing for the underlying dysbiosis.

Curcumin has been mentioned a lot in this thread. Curcumin has a very short half life so you have to take doses twice a day at the very least. The best kind of curcumin is Meriva (not a brand, but a type of curcumin particle), which is curcumin encapsulated in a phospholipid layer that makes it 10,000 times more absorbable by the gut. If you're not taking Meriva then you're not getting the full benefit of curcumin.

The microbiome is the key to really resolving UC once the inflammation is under control. UCers usually have very high proteobacterial counts as well as hydrogen sulfide producers, but low counts of butyric acid producers. The sulfides cause reeking gas and weaken the gut barrier, causing immune sensitization. This causes inflammation, which then causes bleeding ulcers, and then the proteobacteria feed on the blood and the cycle continues.

The real way to heal UC is to shift the gut population from the sulfide producers to the butyrate producers. You do this through a scientific based diet, while taking anti-inflammatories (natural or pharmaceutical, whatever works). UCers usually have a colon that is too alkaline but once the butyrate producers grow to higher numbers, they will produce more short chain fatty acids from the foods you eat and the environment will become more acidic.

This is basically how you fix UC, assuming there are no actual pathogens in one's gut that make the picture more complicated.

Sorry for any typos, posting from my phone.

quincy said...
It's not all about gut dysbiosis... or it could be cured. My colon on a microscopic level is now normal as per biopsies...31 years after diagnosis. I still have UC. I still flare, but Ive learned to use my meds effectively. I eat what I want...try for balanced 🤔
q

quincy said...
It's not all about gut dysbiosis... or it could be cured. My colon on a microscopic level is now normal as per biopsies...31 years after diagnosis. I still have UC. I still flare, but Ive learned to use my meds effectively. I eat what I want...try for balanced 🤔
q

poopydoop said...

It's a good point - now that I'm in remission i can eat all sorts of healthy, nutritious, even high fibre foods that were impossible to tolerate when I was flaring. For me SCD was a starvation diet, and it was such a headache to eat with friends with my long list of restrictions. It took so much mental energy to follow that diet, and it didn't stop me from flaring. I know gut bacteria play a role, especially as I have a history of long term antibiotics, but it was the greatest relief to let the meds do their job and be free to eat what Iike without shame or anxiety

Post Edited (David1991) : 6/26/2020 5:06:38 AM (GMT-6)

poopydoop said...
David, I could not tolerate any high fibre foods while flaring, not even scd legal ones.
I could not tolerate yoghurt which is one of the mainstays of the SCD.
I do not like some of the legal foods (even the smell makes me want to vomit) such as mackerel.
SCD for me was so restrictive that it was a starvation diet. I was emaciated and exhausted. I need carbohydrates to have energy to move and to concentrate.
I have literally had to skip meals when having lunches or dinners with friends and colleagues because I was afraid of making myself sick by eating something scd illegal. It's also humiliating to be judged by others for doing this, and tiring to have to explain myself when I would rather keep my illness private.
I found that I could tolerate sweet potatoes, normal potatoes, oats and rice while flaring, all of which are SCD illegal. So I decided to let my body choose what it wanted and not a book that is heavily based around a north American diet from the 1990s. Some of those products aren't even available in Europe....
As my gut healed i added more and more foods back in.
These days I eat health conscious and largely gluten and dairy free in remission (I've always been dairy intolerant and gluten might be fine but I'm still afraid to eat it more than occasionally) I enjoy e.g. lentils beans chickpeas every day, which was impossible for years while flaring.
I have no problem with harsh meds as you call them because i suffered so much trying alternatives that I might as well have been dead. The meds gave me the freedom to eat healthily!
It is a huge mental burden that has been lifted that I can eat anything and not have to feel guilty or anxious about the possible consequences. That i can go out for business or socially and noone knows I have ibd.
That is my personal experience and feelings. I know others can make diet work and more power to them. I couldn't and it wasn't for a lack of willpower or mental strength. Try not to judge others who chose a different path or who had a different type of UC than you.
Re meds. I tried all of them. None of them worked until i went on xeljanz.