No Medications are working for my UC - looking for advise

I didn't respond to anything and I had surgery but perhaps you should get some stool tests to see if your battling some type of bacteria on top of uc. Other than that, you could see about a course of cyclosporine perhaps?

3 to 4 bowel movements per day, and rarely seeing blood does not sound like severe UC to me. Did your gastroenterologist diagnose you with severe UC?

You didn’t mention Remicade, but I suppose you tried it? I had great results with the SCD diet. It doesn’t work for everyone but it worked from me. It also takes time and commitment. Surgery might also be a good option, I know a lot of people had it and are really happy.

try the diet! the plant base diet has lot of very interesting studies.
it shows very good succesrate, there is fb group, they give you very exact advices, and method.

how many years are u on steroid?
if this is long time maybe it can cause adrenal peoblem, the adrenal does not priduce enough cortisol....
in this way you can not come off the prednisone...most of GI dont think about it.
Find a endroconolgist who have experience in tapering of steroid.
you will make blood test, you check the cortisol levrl in your blood? when you are on steorid the cortisok level is very low but if you come off the steorid very carefully and your body also does not produce enough steroid the symtoms will come back.


Now at this time i think lot of surgery can be avoidable because of this problem. Most of GI does not neasure any cortisol value when the patient is tapering the steroid. They see that " ahh your symtoms are coming back" but your adrenal is not working enough cortisol... this is not problem. Or there no information about your cortisol level...maybe you have enough maybe not...


i suupose this. Because i see what i see, but naybe i am wrong.

Hambo88 said...
try the diet! the plant base diet has lot of very interesting studies.
it shows very good succesrate, there is fb group, they give you very exact advices, and method.

how many years are u on steroid?
if this is long time maybe it can cause adrenal peoblem, the adrenal does not priduce enough cortisol....
in this way you can not come off the prednisone...most of GI dont think about it.
Find a endroconolgist who have experience in tapering of steroid.
you will make blood test, you check the cortisol levrl in your blood? when you are on steorid the cortisok level is very low but if you come off the steorid very carefully and your body also does not produce enough steroid the symtoms will come back.


Now at this time i think lot of surgery can be avoidable because of this problem. Most of GI does not neasure any cortisol value when the patient is tapering the steroid. They see that " ahh your symtoms are coming back" but your adrenal is not working enough cortisol... this is not problem. Or there no information about your cortisol level...maybe you have enough maybe not...


i suupose this. Because i see what i see, but naybe i am wrong.

When I did then colonoscopy I was off the prednisone. Sometimes I get on the prednisone on and off for 3 months. I tried the Stellera beginning this year and that did not work. I have not been taking any medication since May.
The only thing I did not try is the herbal diet.

Recently I've read alot more links with helpful bacteria in the gut. Read up on it.
Make sure you're eating minimal processed foods and things that kill gut microbiome (even tap water - it's a stretch I know).
Include more things with pro and pre biotics.
Example maybe a daily smoothie with blueberries (shown to help alleviate intestinal inflammation), bananas and kefir.
A good probiotic helps.
Add more yogurt, fermented foods.
No chemicals in your food or water.
No miracle cure but really something to look into. You're already at that point that it can only be helpful. Stick to it. It takes time to restore healthy got microbiome.
Also could try making things like bone broth or easy to digest foods to allow your gut to rest but keep nutrients going in. Slow and low all day, even add back blended veggies after for a smooth nutrient packed soup.
Soluble fiber is important to feed good bacteria.
Insoluble fiber or foods that contain both (foods that can still gel when blended) can be slowly increased if you're healing.
Avoid roughage (lettuce or things that don't break down) until you're feeling ok.
No fake foods or chemicals. Can't stress this enough.

Again just suggestion that may help with other suggestions you get here, but we should eat more that way anyways. Some people seem to have had luck with SCD diet ot other things also. Important still to feed that good gut bacteria.

Sorry you're struggling but good luck!

My GI prescribed Tacrolimus capsules for my UC. Anyone tried this medication for UC?

61yrs female
This is the first time I have a flair which lasted more than 2 months, I visit the ladies 3-4 times loose to watery, bloody maybe twice. I use to go more than 5 times in the first month, my cramps are better, but I don't know if it is my diet which is wrong. White bread, smooth gluten free mabela sost porridge, apple puree, Jelly, white rice with turmeric, lactose free milk, Jelly, butternut, cattots, mint green tea, cranberry and clear apple juice, sweet potatoes, pork and chicken, no meds. I think am struggling to go into remission.

Tacrolimus and cyclosporine are not the same thing.

I'm surprised they'd put you on tacrolimus before trying Remicade.

I'd get a surgery consultation. If nothing medically worked, I doubt a diet or herb would be miraculous.