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Japan's Prime Minister resigns due to UC

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Posted 8/28/2020 10:31 AM (GMT 0)
https://www.youtube.com/watch?v=z50iepxdwki

Wowser
Posted 8/28/2020 10:57 AM (GMT 0)
I was just about to post something on this!

Poor guy

According to the guardian he will begin treatment that requires injections. Could be stelara? I'm going to guess he was on remicade before and that failed him now.
Posted 8/28/2020 7:18 PM (GMT 0)
I heard from a friend living near Tokyo that he was getting a lot of criticism RE COVID-19 management issues toward March-- so that stress for sure would not help his UC. / Old Hat (40 yrs with left-sided UC; presently in remission taking brandname Colazal)
Posted 8/28/2020 8:40 PM (GMT 0)
I cannot imagine having UC and having such an important job.
Posted 8/29/2020 4:04 PM (GMT 0)
He has had UC since his teens, so about five decades. :-(
Posted 8/29/2020 6:29 PM (GMT 0)
That is really sad. People used to always act like I was a baby because I would back out of responsibilities due to uc, in fact, they still do when I reiterate how difficult life can be with a chronic illness.

It really is an awful illness. It's difficult to stay on top of life in general while suffering with such an affliction.

Life's hard enough when you're healthy, especially when you're financially unfit like I was in my 20s.

Funny how people have been pitying my pregnant friend. A perfectly normal, healthy pregnancy and she gets so much more leniency at work, concern from people, time off, and offers of assistance... When I was ill with a chronic illness, I was in pain and struggling every single day and everyone acted like I was a big whiner.
Posted 8/29/2020 7:14 PM (GMT 0)
I give the Prime Minster alot of credit a man in his position running a country and battling UC.People dont understand what your going through with a autoimmune disease I know for me its been a constant battle financially mentally and physically the worst part for me is bowel control and I,m the best I ever been with Uc I,m on LDN and supp mesalmine I still have urgency issues with no other issues no pain no diarea no blood or mucos the funny part is that I had a speech impediment (stuttering) my whole life and once I overcame it I started having UC I think it came from taking 2 sets oof antibotics for a bad sinus infection oh well I keep try differnt things my next step is to try a all meat diet nothing else
Posted 8/29/2020 7:40 PM (GMT 0)

notsosicklygirl said...

Funny how people have been pitying my pregnant friend. A perfectly normal, healthy pregnancy and she gets so much more leniency at work, concern from people, time off, and offers of assistance... When I was ill with a chronic illness, I was in pain and struggling every single day and everyone acted like I was a big whiner.


Ooh don't get me started about pregnancy versus chronic illness.... I am on a temporary contract. I took some (part time) sick leave because of my UC flares and my contract still finishes on the same date. But if I would have got pregnant, in addition to 6 months paid maternity leave, I would get a 6 month extension on my contract.
Additionally, when applying for future funding (i work in science) most grants have eligibility criteria that you must be less than a certain number of years after graduation. You can get an extension on the eligibility if you have taken a sick leave of at least 1 year (which I haven't). But if you have a child you get a 1 year extension per child that you have - whether you are male or female.
Maybe we just don't lobby enough for our rights? (Because we are too busy running to the toilet?)
Posted 8/29/2020 7:53 PM (GMT 0)
I dont understand it either poopy 😋 if you find a way to fight it, I am here to stand with you. It's not right. Totally discriminatory actually. It only applies to people of certain ages and genders, people who make certain life choices (to have children). The childless are so underrepresented. I dont have kids because I can't afford to and because I have poor genetics and spent the majority of my 20s and 30s sick with uc... Because of that, I will never get leniency in my work situation. Really a load of nonsense. I need a few month leave as much as anyone.
Posted 8/30/2020 1:52 AM (GMT 0)
I live in Japan. It was he second time as prime minister. The first time he quit cause he had such a bad flare, he was going like 30 times a day. Japan finally approved Asacol(they`re slow here on meds) and it helped. There was a rumor he was throwing up blood but that doesn`t sound like UC..
Posted 8/30/2020 6:03 AM (GMT 0)
Well, if he had pancolitis UC especially, inflammation in the ascending & transverse colon could give him serious nausea. RE discharge of official duties in government leadership, our U.S. Constitution got its 25th Amendment (regarding Presidential disability & succession) following President Dwight D. Eisenhower's need for major surgery to relieve stricturing Crohn's disease in mid-1950s. (At that time Crohn's usually was referred to as "regional enteritis".) Being known mainly as a WW II military hero, Ike must have suffered a lot of physical discomfort while keeping his medical condition private, until it interfered big time with his White House life. / Old Hat (40 yrs with left-sided UC; presently in remission taking brandname Colazal)
Posted 8/30/2020 8:14 AM (GMT 0)

babybird87 said...
I live in Japan. It was he second time as prime minister. The first time he quit cause he had such a bad flare, he was going like 30 times a day. Japan finally approved Asacol(they`re slow here on meds) and it helped. There was a rumor he was throwing up blood but that doesn`t sound like UC..


Wow. I assumed he must have started biologics in 2009. Wonder how he managed it for the 30 years before.
Posted 8/30/2020 11:12 AM (GMT 0)

Old Hat said...
Well, if he had pancolitis UC especially, inflammation in the ascending & transverse colon could give him serious nausea. RE discharge of official duties in government leadership, our U.S. Constitution got its 25th Amendment (regarding Presidential disability & succession) following President Dwight D. Eisenhower's need for major surgery to relieve stricturing Crohn's disease in mid-1950s. (At that time Crohn's usually was referred to as "regional enteritis".) Being known mainly as a WW II military hero, Ike must have suffered a lot of physical discomfort while keeping his medical condition private, until it interfered big time with his White House life. / Old Hat (40 yrs with left-sided UC; presently in remission taking brandname Colazal)

Very interesting. Now I want to research this more.
Posted 9/4/2020 7:15 AM (GMT 0)
Biologics were approved here like 3 years ago...
Posted 9/4/2020 9:00 AM (GMT 0)

babybird87 said...
Biologics were approved here like 3 years ago...


Wow! Japan is on my list of countries I would consider moving to... I'm surprised by this... they have such advanced toilets i assumed their medical system would be similar :D
Posted 9/5/2020 3:35 PM (GMT 0)
I am glad he is able to afford to resign. The rest of us usually aren't able to do so if for no other reason that we would lose our health insurance (in the U.S.). I hope his new treatment gets him to remission quickly.

Surprised that Japan was so slow to allow biologics. What did people do when mesalamine wasn't enough? Stay on steroids? Have to get surgery?
Posted 9/6/2020 3:43 AM (GMT 0)

CCinPA said...
I am glad he is able to afford to resign. The rest of us usually aren't able to do so if for no other reason that we would lose our health insurance (in the U.S.). I hope his new treatment gets him to remission quickly.


Soooooooo true. Sad but true. We aren't lucky enough to get to resign over ibd, even if it's severe and life alerting... I hope he gets better quickly too.
Posted 9/6/2020 5:52 AM (GMT 0)
On the other hand... I've been allowed to take part time sick leave when flaring, and I'm guessing that he had no choice about resigning, because working part time or long term sick leave isn't an option when you're prime minister.
Posted 9/6/2020 8:29 PM (GMT 0)
I'd definitely resign if I were in the financial position to! It's great to have opportunities to get some flexibility through the workplace but it's very different to get a few days paid days off than to be in the position to elect to stop working. I am thankful for my employer but my work doesn't position me to live leisurely anytime soon. Not too say resigning means you will have that opportunity either... A lot of people resign from one thing and start something else immediately.
Posted 9/7/2020 2:56 AM (GMT 0)
Japan`s has socialized medicine and it has good points and bad points....

1)the good points are you can sign up for governments insurance regardless of your illnesses...pre-existing conditions mean nothing...

2) prices are dictated by the government (30% co-pay) ..I pay about 120.00 per month for llialda, pentasa enemas, and a few other meds ( I paid about 200 for my scope and could do it in my doctor`s office)

bad points:

1) overregulation...the system has been losing money so they`ve made rules stricter
I`m only allowed 28 enemas per month even though there are 30 days in a month (this makes no sense)
2) Sometimes it takes a while for drugs to get approved. Llialda just go approved last year....
3) I used the steroid foam (which just got approved 2 years ago) but was only allowed it for 6 weeks since its new and a steroid.
4) doctors have a tendency to use medicine from a specific company and sometimes aren`t flexible(my doctor won`t use biologics but my Japanese teacher`s husband doctor gives it...
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