UC and scar tissue

If one develops scarring from continual inflammation, it means that the mucosal and submucosal layer and its cellular architectural structure is destroyed. It doesn't go back to normal from there. In turn, the proper function of what that area does is no longer working. That means little or no mucus for protection or flexibility of that area.Therefore...

How does this not make sense to you?

q

UC large intestinal scars aren't as debilitating as in crohn's disease. UC has no strictures, no partial or complete blockages, and no resection surgeries necessary. I think it has more to do with the physical diameter of the small versus large intestine (UC can only affect large intestine).

UC scars typically affect our rectum or sigmoid colon. Normally our intestine is lumpy and bumpy (haustral folds). Scars thicken the walls, make those sections straight (total loss of haustral folds). In x-rays it looks just like a lead-pipe (known as "lead-pipe sign" in x-ray, there's plenty written about it and imagery to support it).

What's the impact? It affects our intestinal motility (movement). Thick walls impact the normal muscle movements that efficiently evacuate stool. We have partial motions (constipation) or spasming motions (diarrhea). It can impact how urgently and frequently we poop even during Remissions. It can leave IBS like symptoms within a remission. It still sucks but isn't severe enough to necessitate medical intervention.

Can it heal any? Maybe minimally over a long time in a remission. Generally, there's no treatment surgical or medicine. In severe cases, there's rectal-dilation devices of different diameters that can be medically prescribed to stretch the narrowed rectum and provide some symptomatic relief.

3timechamp, I don't know why you're coming here to talk about surgery? That has nothing to do with my question.

quincy, no need to be rude.

PP, thank you for your explanation, makes a lot of sense. How long does it take for the lead pipe phenomenon to happen in the average case?

VJ...you don't believe the doctors about something serious that could easily be researched. Not rude...to the point, yes. I wanted to say W T F WAKE UP ALREADY, but that would have been down right rude.

q

My scopes are now normal...the meds I'm using continually have allowed that to happen. I never had scarring, but cellular structure and arcitecture was wonky and obviously not normal.

GI stated...doesn't mean stop med regimen, but some GIs might suggest that. Yikes.

q

I've had scarring which has healed to various degrees in my 8 year remission. It took awhile but absolutely it was the case that this scar tissue improved for me; these are the words of my GI. But of course the member who disrespected the initial poster's comment here will now soon be replying suggesting that both I and my GI are wrong and that we need to re-evaluate our opinion.

Also, I think some of the comments made to the initial poster on this thread are appalling. The question was asked in good faith by a member who was obviously distressed on the point made. We hear a lot about the need for social media companies to take online bullying seriously and that is a very good thing. Such should also be extended to the way people are treated and made to feel on forums more especially so those that are moderated. People's mental health is very important and no one should be belittled for asking a genuine question of concern.

damo123 said...


Also, I think some of the comments made to the initial poster on this thread are appalling. The question was asked in good faith by a member who was obviously distressed on the point made. We hear a lot about the need for social media companies to take online bullying seriously

Just feel the need to point out that it cuts both ways. The OP was initially rude to 3TC when 3TC posted about his surgery because of scarring — which was an answer to the OPs question about scarring. Most people (myself included) are terrified of surgery and it’s helpful to hear that it can be successful and lead to a good life.

Equally feel the need to again emphasize that was not my point. I'm not here to refer or defend either side. There is a list of forum rules that must be respected and they have not been respected in this post. It's all too easy to make excuses,,,'he said that...she said that..im right...they are wrong'...and not hold ourselves account to the standards and and respect that others deserve.

FlowersGal said...

damo123 said...


Also, I think some of the comments made to the initial poster on this thread are appalling. The question was asked in good faith by a member who was obviously distressed on the point made. We hear a lot about the need for social media companies to take online bullying seriously

Just feel the need to point out that it cuts both ways. The OP was initially rude to 3TC when 3TC posted about his surgery because of scarring — which was an answer to the OPs question about scarring. Most people (myself included) are terrified of surgery and it’s helpful to hear that it can be successful and lead to a good life.

It's a bit odd when people complain about others saying mean things, and then bash both the moderators and the forum 😳😁
It's a great forum and the mods do a great job. Ipoop in particular goes out of his way to give thorough, well considered responses.
Looks like some mild over reactions, and perhaps misunderstandings.
All good people here.

Scar tissue that is deep and thick is very hard to heal completely. If your body tends to heal quickly, ironically that can make repeated cycles of damage and repair result in worse scarring 😩.

Fortunately the large bowel can take a considerable beating before having irreconcilable problems.

Post Edited (ambling) : 3/7/2021 4:07:35 AM (GMT-7)

Posting HealingWell's own rules on this matter as below. My point is simply that these have not been adhered to here. My concern now is that this is an ongoing issue with the forum. Like the previous poster this is one of the reasons I do not use HealingWell much anymore. And that is sad.

2. No use of explicit, racist, obscene or vulgar language, images or messages.

3. No posts that attack, insult, flame, defame, or abuse others. Respect other members' opinions regarding treatment decisions. Decisions about health and well-being are highly personal choices. We should respect all points of view. Flaming will not be tolerated.

I think it actually is ambling. Because I do think ppl forget these rules....on a forum its easy to lambast a person and then hide behind your server.

I don't think anyone is giving out to the moderators at least not in a disrespectful way that you are insinuating but a point has clearly being highlighted here and I for one hope that the issue raised might make us all more aware of being more respectful to each other on this forum.

Oh I think we are absolutely dealing with the topics at hand....