Questions for people who got covid vaccine.

I received the first Moderna jab last week. I had a mild to moderate amount of tiredness and general malaise for three days. I still did my usual workouts so it wasn’t disruptive. Just a general unwell, “off” feeling. I did have a specific flare symptom I haven’t had in over a year about 48 hours in but I’m not sure if that was an inflammatory response to the shot or just happenstance. Could be a one-off. I imagine everyone reacts a bit differently to this but the benefits of vaccination far outweigh side effect concerns in my mind.

Rusty Barr said...
If you get the vaccine, how long is it supposed to work?

Also, I’m on humira. Any concerns about Humira and the vaccine?

I don't think anyone knows how long it will work... 😒
No worries re humira. It only means that you might mount less of an immune response than if you weren't taking it, but should still get at least a partial protection.
I have 2 sisters on humira and they were both fine (they got Astrazeneca way back in February)

No issues for me after the 1st Moderna vaccine, other than a tender arm.

I'm a 47 y/o man and was diagnosed with UC in 2015 and have been on Entyvio (monthly), Imuran, and Lialda in combination since 2019. Fortunately, I've been in remission while on this regimen and am enjoying my springtime distance running again! I got my second Moderna shot on 3/12 and had many of the same expected side effects that many of you are posting here (aching, sore arm, malaise), but they were mild and cleared up in a few days. I was very pleased that the vaccine didn't seem to do anything with starting UC symptoms or a flare, so I hope that gives some of you some comfort.

However, once my expected "flu-like" side effects cleared up I experienced a sudden onset of mild-moderate tinnitus (ringing in the ears). It's been nearly three weeks and the incessant ringing is still there and I hope this doesn't become my second chronic issue. I saw my PCP who, as expected, did not want to correlate my auditory symptoms to the vaccine because of the lack of studies but, as an IBD-er and like many of you, I've learned to monitor my body pretty effectively when something suddenly emerges. My next stop is to consult with my GI so he can record or assess any UC medication interactions that could be the culprit, but I know the research isn't there yet. I'm also afraid of prompting a decision of stopping/changing IBD medications that are working as we troubleshoot the tinnitus problem. We all know the feeling of potentially losing a working lifeline.

I wanted to let this particular forum know because we often deal with multiple medications and/or have systemic effects from our autoimmune conditions, and I hope it pans out that this vaccine does not interact negatively with our conditions or medications. I reported my case through the VAERS process and would encourage any of you experiencing post-vaccine adverse side effects to do the same so the government and pharma companies can address any glitches that were not prominent during the healthy patient clinical trial phases. I'm also personally participating in IBD/COVID vaccine-specific surveys to help inform this developing process.

Ultimately, I'm glad I got the vaccine because the benefits of avoiding serious short-term and long-term symptoms (to include tinnitus) when catching COVID seemed to outweigh the risks of vaccine side effects we've known to date. From the research I've personally done and monitoring the online forums popping up on this tinnitus side-effect issue, it seems to be only effecting a marginal population.

Stay well!

Hi everyone, I havent posted in a long time while but I do check posts now and then.

Got moderna vaccine wed march 31st, it went well for most part, did feel a bit of headache coming on within 15 min of it, so sat a while longer and took a 500 mg tylenol. But past couple days and still a little today, feel tired and sleepy and sort of woozy. Felt like I wanted to walk sideways? Sounds funny but I did keep it under control and rested. My arm didnt feel as sore as I thought may happen.

Today I started a minor flare. Hadn't flared since last spring 2020 and it was for less than a week. Thank goodness.

Am supposed to be on my prescribed mezavant of 1.2g 3 pills/daily but the side effects are difficult. I think today's flare was building up the past month anyway. I did 1 pill per day for 2 weeks the last month for maintenance but noticed heart palpitations about 10x per day, even when I was sleeping, it would wake me up then I would fall asleep again. That itself was stressing me out.

So I stopped meds 3 weeks ago and havent felt palpitations as much as before, only twice past 3 weeks. So not sure if it was some vagus nerve going on, or meds or stress anxiety or start of flare happening all at once? I did notice a palpitation the other day just before going to #2 bathroom? I still have corticoid steroid enema prescription as I need (but havent used since last spring).

With covid going on, work, etc, I am doing my best to stay relaxed. Did think about cbd gummies or valerian root tea but don't know much about those.

My every 3 yrs colonoscopy is coming up next month also.

Stay safe everyone.. I am so glad I found this forum. 😁

Post Edited (katkat) : 4/3/2021 8:20:51 PM (GMT-6)

Just got my first dose of the Moderna. So far, all is good.

I had a headache for about a day and a sore arm for several days after my first Moderna shot.

I had my second shot Monday at 6 p.m. I felt OK apart from a sore arm but couldn't sleep well that night. Then I woke up Tuesday with a fever, widespread body aches, stiffness, chills and fatigue. I felt awful all day; my temperature got up to 101.5 at its highest. I managed to get through some important online training for work that morning, then logged off and crawled into bed for pretty much the rest of the day. Today (Wednesday), I woke up and felt fine, just still the sore arm, though not as bad as it was on Tuesday. (And some fatigue, but that's pretty much par for the course for me regardless!)

Has anyone received the Johnson and Johnson vaccine? Go for mine next week and hoping it doesn’t start a flare. I saw a lot of posts on the other vaccines but didn’t see anyone mention Johnson and Johnson.

Thanks!

Yep. I had the Astrazeneca vaccine 3 weeks ago, which has the same problem. It was a bit scary waiting to see if I would suffer these vary rare side effects. However the odds of dying from covid are at least 100 times higher than dying from the vaccine. And the odds of getting a thrombosis from covid are higher yet again. I would have preferred to get pfizer or moderna but I didn't get a choice.