Entyvio

Sara14 said...
I think my infusion lasted about an hour. I didn't have any reactions and I don't remember being fatigued. People suggest to drink plenty of water that day.

Mariposa444 said...
I have a home nurse deliver my Entyvio infusions every four weeks under our socialized medicine system here in Australia. It’s a lovely experience, we have a great chat and it’s all done in less than an hour. I’ve been on it since July and have had no side effects. The jury is still out on whether it’s actually working (I’m back on steroids from a flare now) but GI doctor wants me to be patient a little bit longer as it can be notoriously slow to kick in.

FlowersGal said...
The actual drip lasts just 30 minutes. Entyvio isn’t weight-based like remicade and they can also run the drip faster than with remicade. Checkin and setup and all that goes with it takes about 20-30 minutes. I am usually in and out of there in 1 hr. I go every 8 weeks on a Tuesday at 11 am. Sometimes after I am a little tired the rest of the day, other times I don’t notice any difference. I try to drink a bottle (20 oz) of water before I go in — mainly because I have small veins and being hydrated does tend to make a difference. I’ve had the same 2 nurses at my infusion center for the 5 years I’ve been going so we always have a nice chat. Last year they added a 3rd nurse and she’s nice too. They all know my veins now and how weird they are so I only get one poke most times. Which is great !

The only side effect I’ve ever noticed is my lips get very dry that night. Not my mouth — just my lips. Which is weird right? Chapstick works on that.

Hoping for success for you! I was in complete symptomatic remission by month 4 with many small decreases in symptoms that made life so much more tolerable before that 4 month mark. Rectals— either steroid or mesalamine — foams , enemas or suppositories will be your friend during those first months.

Will be looking forward to your updates!

FlowersGal said...
I don’t use any rectals now My GI says I am in complete “deep” remission. I do still have problems with diverticulitis so occasionally use Canasa suppositories as they do seem to help a bit. I also sometimes have days where I feel a little crampy and have a 2nd or 3rd BM but whether that the DT or UC is hard to tell.

It’s also good to ask what your orders read as. Mine allows for a week either way in scheduling without a new order , so if you have a vacation planned and it happens to fall on the same week as an infusion, I’ve reschedule for 6 days before my normal 8 week timeframe. I’d rather have it early at 7 weeks than push it to 9 weeks. (Hope that made sense).

Theanxiousaries said...
I had my first infusion two weeks ago. Felt tired after but I put that down to two hours of adrenaline and anxiety. I had neuralgia pain the next day. My Dr said it’s not a side affect and isn’t sure it’s related. My next infusion tomorrow. I have had solid BMs a few times in the last two weeks. So it appears something is helping. Still taking 3x1.2g mezavant and 1mg pred which I will be completely off by Wednesday