A call for calm

I have not really gotten involved in the current debate over the Pravda method. It is ugly to see nasty posts on this from both sides liter Healing Well. No side will win this argument simply because the more one side posts the more the other side will repel and it just means more insults with the possibility of members being banned or turning off other members from using Healing Well.

The pro side are entitled to discuss these new options. The con side are entitled to query them. But if this cannot now be done without insult then I suggest, as was done for the pro v anti vaccine debate last year, that the pro side take their discussions to an email thread, and carry them out there in peace and that the cons side leave this matter then rest. Perhaps an update email from the pro side now and then about what email address this new info can be found on will suffice (in a similar way to how iPoop posts his own email address advertised so that ppl can contact him outside this forum for queries). At the same time on such update threads then the onus is on the pro side not to make comments like "root cause of UC has been discovered" simply because in any sense of the word or on the basis on any scientific metric, this is simply not true and not validated.

Hopefully we can then get back to talking about other more important issues, about supporting other members and encouraging new members and doing so in a more civil and friendly matter.

I'm not taking sides here. I'm calling for a peaceful resolution and that HW UC forum returns to a degree of normality and remove this nastiness and personal attacks.

Post Edited (Simon1729) : 8/17/2022 7:40:36 AM (GMT-7)

I can see why people no longer use HW

Why not just pass the thread by if not interested…seems easy to me! Why on earth would you get on a thread you are clearly not interested in and stir the pot etc I wouldn’t dream of getting on a thread that I disagreed on the topic and start posting and answering questions people are not asking YOU! Sure you can debate it, but WHY so interested…..seems like more at play here than meets the eye! VJ has clearly done his homework on this subject and he doesn’t present it as fact….. only in regards to himself!

Anyone can make their email address available in their profile. This functionality is not something we try to keep from users.

We don't allow people to put their email address directly in a post for people's privacy. If it's in a post, it will forever be searchable with search engines.

I've had people get away with having an email address in a post and contact me years later, when they are no longer active here in hw, begging to remove the address. It's just easier to keep your email out of posts.

cooper360 said...
Why not just pass the thread by if not interested…seems easy to me! Why on earth would you get on a thread you are clearly not interested in and stir the pot etc I wouldn’t dream of getting on a thread that I disagreed on the topic and start posting and answering questions people are not asking YOU! Sure you can debate it, but WHY so interested…..seems like more at play here than meets the eye! VJ has clearly done his homework on this subject and he doesn’t present it as fact….. only in regards to himself!

I agree. Plenty of ppl may be following the thread and finding it useful without commenting. For that reason it should not be taken to email. If you disagree keep scrolling

It's ironic how everyone wants to appear reasonable yet they support blatant personal attacks by their lack of inaction.

Obviously people are going to have different opinions on things. That isn't the issue at all here, and acting like it is, is nothing short of gaslighting. It's very telling that the usual suspects troll threads and then when they get called on it, they raise their hands to the air and try to make it seem like they were trying to have a normal conversation. Meanwhile they were inflammatory, antagonizing, and personally attacking. We all saw it. What did the mods do? They locked the thread and punished everybody because they don't seem to understand the concept of thread editing. The mod team here are complete failures as far as I can tell, or the software is just too inept to let them do their jobs.

When people name call, ridicule, denigrate, and try to shift the goal posts of threads for malicious reasons, it has nothing to do with reasonable discussion. And when bullies turn around and call for calm because they got called out, it's laughable. It's your victims who were calling for calm in the first place, by asking you to kindly not disrupt their conversation with your utter lack of consideration.

You can vilify me all you like, but the writing is on the wall. Everyone who was earnestly taking part in that previous thread that got locked saw what happened when the usual suspects showed up to cause problems. They were courteously asked to stay on topic and not shift the conversation to conventional medicine because those threads exist in the thousands on HW. Their response? "We're going to say whatever we want to, you don't run these forums." Yeah, I know that. But it's called courtesy. Something that you people obviously lack.

I will call out bullying every time it happens. I said this before in another thread a long time ago. In that thread, I got piled on by the usual suspects because I refused to get a colectomy and called modern medicine a failure. Those same karens are the vanguard around here who the mods turn a blind eye to whenever they start personally attacking. More recently, I got called a quack several times, with the usual suspects basically agreeing, and also got accused of thinking I'm king of the forums, just because I wanted the sanctity of a particular topic to remain in tact. The response by the mods? Absolutely nothing.

The mods to date have not said one thing publicly about those who named called me. Just general platitudes about "people will have their opinions." The mods have lost all credibility. It's clear that they will allow inflammatory remarks by their preferred users who they show favoritism to, while if others like me call out bullying we get our threads locked. We see you. Don't bother denying it.

If you guys would discuss ideas and concepts instead of going after an individual's character, we would never have problems here.

So act innocent all you want. We all see you. You've shown us clear as day what your agenda is. We are going to have conversations about alternative medicine and show our support for them whether you like it or not. I'm not going anywhere. And anytime you bully me or other people for putting our faith in alternative methods - methods which we need because some of us are refractory, methods that are actually saving us - expect some of us to not remain silent. Bullies deserve to be stood up to and the only way that happens is when communities stop putting up with it.

Good day.

HW-UC is supposed to be a patient SUPPORT group, not a debate society probing or promoting established medical/scientific research concepts or novel ideas. People have mainly joined in the past seeking empathy and practical advice for navigating life with a baffling chronic health condition that can make us totally miserable over months and years. It seems to me that persons not feeling empathy nor interested in relieving another UCer's expressed pain, stress, anxiety, or need for reliable, experience-based practical information should please find a different Website to engage with, rather than clogging up threads on this one. *** I send my appreciation and many thanks to our present and past moderators who donate their valuable time and to our founder, Mr. Waite, for genuine humane caring and fellowship, and to the majority of forum members who post with admirable empathy, courage, and enduring good humor here-- just because they want to help another individual in time of need. / Old Hat (40+ yrs with left-sided UC; in remission taking Colazal)

This thread is silly, if you saw how this forum operated 10 or 15 years ago then you’d understand. This is a Van Jones thing and not a HW issue. The admin or mods should just fix the problem and move on. How long can this continue? It’s unmanageable

There was ONE member who called another user a quack and king of HW and the mods called it out and the thread got locked.

VanJordan said...

The mods to date have not said one thing publicly about those who named called me. Just general platitudes about "people will have their opinions." The mods have lost all credibility. It's clear that they will allow inflammatory remarks by their preferred users who they show favoritism to, while if others like me call out bullying we get our threads locked. We see you. Don't bother denying it.

Are you trying to get banned? You keep breaking the rules and guidelines.

9. Be respectful of moderators in both the forums and any private communications.

Last year when Tom Brady was about to play in his 9th SuperBowl, I posted an Off Topic (OT) thread how he attributed his longevity and athletic success by following alternative medicine. That thread lasted two days before it was deleted in its entirety.

In the end nobody knows WHY a member writes a particular post. You can try to guess, but assuming a malicious intention is bound to get you wound up.

I think things would be calmer on here if people didn't automatically assume the worst in others.

If you post your medical details on a public forum you Will get unsolicited advice and opinions.

ks1905 said...


I know! The big bad internet can be a mean place at most times; peoples' tones don't always come through in their written words which can cause additional issues -- I think we need to put our big boy and big girl pants on when we are reading and commenting on the internet. I don't get triggered by this stuff but I will call out misinformation and bad advice.

Yes, I agree. Although I have been guilty of becoming upset over the years by things here. I try hard not to as much anymore. Not worth it and you are right about tone.