Where is everyone?

I like HW ... even when it's quiet. Glad you found a forum you like, Damo.

I guess Redit must be slow today. Sorry that people there won't hear about the benefits of rectal meds because they really can help a lot.

I suspect you are bored and came here to stir up turmoil.

I'll go make some popcorn.

I like the community and personal touches here — especially since the Flame Wars ended!

I agree with you on that OM but all great cures come from diagnostics that extend remission for a long period. The top down approach of stopping even mild disease in its tracks has greatly improved patient outcomes. We must surely have moved on from offering 5ASA suppostories to young kids and saying 'you'll need to live with it,son'

Sara, at ease brother....

Damo: I know, for instance they found Azulfadine for UC by accident treating arthritis in the 40"s.
On the facebook ostomy page I have seen now a few people getting ostomies due to multiple biologics failures.
However I also see quite a few botched surgeries where they were fixing something else and
nicked the colon,then of course cancer, and a huge amount of people with diverticular disease.
I really hope they can come up with an easy cure.
Oldmike

NCOT posted just a few days ago on Reddit. Mostly in /r/AskUK/ and other areas that aren't IBD related, so I'd assume she's doing fine. I can always direct message her, and ask if she'll check in with her healingwell buddies who are worried about her.

Thanks, iPoop! No need to PM her .. she is likely doing well and doesn't feel the need to come here. I am glad to know she is still kicking

I like it right here.....There are times when I do miss all the postings... Like from before ... But without the clashing. The group here has forgotten more information than I'll ever retain.

I don't go on Reddit, I have a hard time following it.... But then again.. I haven't really tried.


Clo

I have looked at Reddit a couple times and I don't like that I can't see at a glance which posts I want to read. You have to scroll through all of them sorta the way you have to scroll through your FB feed. I stopped going to FB very much because it's too much of a time suck. I suspect that you could get lost in Reddit the same way.

For myself, I don't mind that HW isn't as busy as it was years ago. It's much easier to keep up with the posts now.

I only started this thread when it had been several days since some of the regulars had posted and I honestly thought there was something wrong with the site that was preventing people from posting lol

poopydoop: Never noticed that smell. But I don't take much or often. Nothing to worry about unless
you are missing a liver enzyme.
Fish odor syndrome starts when an enzyme pathway in the gut called CntA/B produces TMA. The enzyme breaks down a TMA precursor called L-carnitine, which is found in dairy, fish and meat. If an individual lacks a functional liver enzyme called FMO3, they cannot degrade TMA into a non-smelly chemical form, trimethylamine oxide, or TMAO. The TMA then builds up in the body and ends up in bodily fluids.

CC: I just looked at reddit for the first time ever their colitis threads. Don't like it, like facebook important
info would get buried fast.
Oldmike

straydog....yes I was found top have antibodies to HUMIRA so that's been axed. They now have me on a new PRED prescription starting at 60mg a day for a week and tapering down. I start Renflexis infusions starting this Wednesday with another in 2 weeks and another in 4 weeks. I hope this works.

iPoop said...

On Reddit I'm:https://www.reddit.com/user/possibly-deranged/, really not a secret. Lol and yeah NCOT and a few others from HW found me on there, anyways.

I haunt /r/IBD/, /r/UlcerativeColitis/, and /r/CrohnsDisease/. Also occasionally post about parrots, chickens, and my home state of Vermont.

You’re an EV guy? I doubt that I’d ever go back to a gas powered car. I love my EV, it’s such a different driving experience. I just get in my car and go everyday, I never have to think of stopping at a gas station. I plug it in when I get home. about 300 miles a charge.

poopydoop said...
Aaah I really want an EV but they're currently outside my budget. That being said the charging actually puts me off - not always convenient for long distance travel if you can't find a charging station, plus you have to wait for it to charge whereas at a gas station you're done in 2 minutes. Also with the housing situation here we can't have personal charging points but there are communal ones every few streets. So you still have to drive your car a bit in order to charge it..

The overall cost of EV ownership can be close to a gas car - there are minimal moving parts and no fluids to change, so minimal upkeep & maintenance, just tires and brakes.

I’m fortunate to charge at my house, my battery holds 100 kWs and my home electricity costs $.14 a kW. So to fill up my car and drive about 300 miles would cost about $14. I have solar on my house so the cost is probably closer to $0.

If I’m at a fast charger then it takes about 15 minutes to fill up to 100 miles of range; no big deal.

I never stop at gas stations so I save money by not buying snacks inside their store.