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Tumeric and IBD/Stelara

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Posted 6/23/2023 5:41 PM (GMT 0)
Hello All,
Just wanted to see if anyone has issues with taking Tumeric if taking Stelara or with having IBD. My GI said it’s not advisable, but it helps the joint pain caused by the IBD. She also told me that diet won’t help and it does help me. She’s instinct me staying with Stelara, even though it does nothing for my joint pain, but 3 other doctors (Rheumy included) have said I need Humira or something similar. I’m now late for my Stelara injection by one week because I ended up with a stomach virus and I was too sick to take this injection ( never used to get those so this drug may have decreased my immunity). The only improvement is a normal stool test, which I guess is a plus. The bowel issues only improve when I remove the grains and adhere to the SCD.

So just wanting to know if anyone takes Tumeric with good results. I will be seeking a second opinion as soon as I can.
Posted 6/23/2023 9:25 PM (GMT 0)
I’m on Stelara for UC since January of 2023. So far, it’s been so so. I go on average 4 to 6 times a day.

The turmeric I have says to take 3 pills a day. I take 1 morning and night only.

I really haven’t seen much of an impact on my joints as far as I can tell. I’ve been driving 35k miles a year on average for the past 30 years. I get sore and stiff sometimes, especially getting in and out of the car. Or getting out of bed in the morning.

Why do I keep taking the tumeric I bought if I don’t see any noticeable difference in taking it?
Good question.
Posted 6/24/2023 2:16 AM (GMT 0)
That’s why I’m reluctant to continue with Stelara if it’s not going to help with the joint pain, especially if there are other drugs that can help the colon and the joints. I don’t have diarrhea..just the opposite, I take linzess for chronic constipation. My GI doctor just said that Stelara has less potential side effects and it’s more gut specifics, but I’m having more than just gut issues. That’s why I scheduled to see my new Rheumatologist within the next week to get her opinion. I recall Tumeric did help my joints in the past and fluid retention also. Maybe I will give it a try again. Thanks for responding!
Posted 6/24/2023 3:25 AM (GMT 0)
I have Osteoarthritis and maybe PA. I have taken Remicade and Turmeric. My rheumatologist recommended turmeric. I thought it helped a little bit. Remicade seemed to help with my arthritis 8 years ago but about 4 years ago it stopped helping with it .. or else the OA just got so much worse. I do know the first 2 weeks after my Remicade infusion my knees hurt so bad I can barely walk. I roll around in my walker/chair combo. By the time my 6 weeks is up my knees are still painful but I can walk on them. I use my walker/chair a little less. I thought Remicade was supposed to help with joint pain.

Then my LDL went way up... 1900... And my PCP recommended ground Flaxseed. He told me to stop the Turmeric. I take 4 Tablespoons of Organic ground flaxseed in a smoothie every morning. I drink lots of liquids. I just saw my rheumatologist and knee/hand surgeons... All 3 stated that the oil in flaxseed helps with inflammation and to stay on it. They also recommended knee ablation for my pain..

While on turmeric-my shoulder/knee pain would not go away. I could use it but it still ached even when I went to bed...enough to keep me awake all night long. It helped a little but not enough.

On the flaxseed.... Much better. Pain is not gone but it's not keeping me awake all night long either. When I go to bed I can usually find relief. Flaxseed is very healthy and helps with a bunch of other issues.... (But you must drink lots of water with it.) My PCP has also suggested Chia seeds. 1 tablespoon a day... In addition to.

You didn't ask but... if you are in remission.... Personally I would try anything else before changing meds. There's the chance that your new med might not work as well and you would be unable to return to the previous medication.

Good luck with the tumeric.

Please let us know how it goes.

Clo

P. S. Be careful with turmeric and flaxseed. I know turmeric is a blood thinner. (Yes, I had an incident...) I was told that too much flaxseed can be too. My PCP and GI have my blood labs checked every 6 weeks.

Post Edited (clo2014) : 6/23/2023 7:28:39 PM (GMT-8)

Posted 6/24/2023 11:28 AM (GMT 0)
Oh thanks for sharing. I did experience lots of bruising with Tunmeric. When I stopped the bruising stopped. Maybe I should stay on the Stelara. The Rheumatologist confirmed that I have Sjogren’s also (Hashimoto, IBD -indeterminate, Sjogren’s). I’ve had a lower wbc for the past few years and I read that Sjogren’s can cause that. So I plan to go back to the SCD diet which helped my digestion tremendously. The eye inflammation has not returned. The new Rheumatologist put me on strong steroid for 6 days (medrol pack I think)and asked me to let her know if the joint pain went away…it did. Not sure what that means. It’s actually been a lot better since. Thanks again!
Posted 6/24/2023 3:12 PM (GMT 0)
RS2022,

Which joints?

Mine are my thumbs, knees, one shoulder and back. My knees are the most painful. I've had the cortisone knee shots which helped for 2 weeks, then tried the gel shots which helped (but didn't get rid of the pain completely) for more than 6 months. My rheumy and knee surgeon want me to have knee ablation and then if there's still pain to try the gel shots with the ablation. If that works we can delay surgery.

Clo
Posted 6/24/2023 4:46 PM (GMT 0)
My joint pain is mostly with the wrist, arm and elbow. I have had back pain and after X-rays was told that there is some moderate degeneration with the hip/SI joint. I was taking Aleve and Motrin for it but was advised not to take it because it’s hard on the kidneys and not good for IBD.
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