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Xeljanz

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Ulcerative Colitis
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Posted 7/27/2023 2:01 PM (GMT 0)
Hi.. I am on Xeljanz .I was on 20mg a day, had
to go on 5 mg twice a day due to severe bruising. My creatine level also was elevated. I have been on just about all of the biological meds.. My Dr. said. If this doesn’t help.. will probably need a colectomy… which the thought of is very scary. Trying Xeljanz.. only 5 mg. a day.. to see if my labs and bruises get better.. I don’t know if only 5 mg/ day will still help my UC.
Anybody experience my symptoms. if so what did you do?
Sincerely,
Carol

Post Edited (Carioke65) : 7/27/2023 6:07:42 AM (GMT-8)

Posted 7/27/2023 3:17 PM (GMT 0)
What other drugs did you try? There are some newer ones like rinvoq and Skyrizi. Maybe more. If you haven’t tried those yet there’s still hope.
Posted 7/27/2023 5:33 PM (GMT 0)
Im on 20 Mg Xeljanx for quite some years now and have never had any problems.
I tried years ago to reduce it down to 5 mg twice a day but it would not hold me.
Im 82 years of age now
Posted 7/27/2023 8:25 PM (GMT 0)
Sorry to hear about your symptoms, I never experienced something like that. I have been on 2 x 5mg xeljanz for 4 years. I have to take it with mesalazine oral and rectal (max dose of both) otherwise I start to flare. My doctor doesn't want me on the 20mg dose because of the risk of blood clots (and the fact I'm also taking birth control which increases the risk).
Posted 7/27/2023 9:43 PM (GMT 0)
I've been fine on the lower dose of Xeljanz. Have you tried the lower dose before and flared? It works for most people at that lower dose.
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