Thanks again for the replies thus far
Poopydoop: that's a good point you make! I actually never felt that great, wellness-wise, on Entyvio anyway and always felt tired and low on energy while on it. I also got sick a few times and got swollen cervical glands just under my jaw which was pretty scary as one of them got pretty big. Interesting also to know that blood clots are more likely while flaring and traveling. Probably all the inflammatory cytokines can make the blood more sticky.
Wayne: haha Iam from Australia. Yep I can imagine going to explore new places and, ahem, toilets to be expected part of travel when flaring. Grr my plane seats are not that close to the airplane toilets. I can't imagine having to wait in line behind a number of people. I don't think I can do that when flaring. Actually that does put it in perspective for me, that I have to get myself healthy before going because it's a 15 hour flight, then layover for a few hours followed by another 2 hour flight. Sounds brutal right? Even for a healthy person it's pretty full on.
Flowers: yes it seems that every GI wants to see for themselves. I've been having scopes every 2 years too. I don't dread them as much anymore, but I don't time them with any flares. My first one was timed in a flare though; drinking the prep alone is enough to make the butt sore let alone dealing with bloody urgent BMs on top.
UCyousee: wow Iam so glad to see someone doing well on Stelara, or any med really! It gives me hope that if I find that right med for my body maybe I will actually finally have a good solid remission for a good couple of years. Or maybe for eternity haha. Over the past nearly 13 years, other than 3 years of remission on FMTs, I have been dealing with near constant flares interspersed by fragile short remissions.
about
the weed, I appreciate the suggestion however I'd get in trouble for that if I did it here in Australia. They are still not that
open-minded over here about
this sort of stuff. I'm glad though that you have this as an option as a some kind of salvage therapy.