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Anxiety and Stool Changes

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Ulcerative Colitis
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Posted 11/13/2023 9:51 AM (GMT 0)
Hi BonLS, I'm living in France !!! It would be a pleasure for me to speak with you !!!
Posted 11/16/2023 2:49 PM (GMT 0)
So I’m no longer seeing blood and when I started the enemas I noticed that the color of my stool which was more yellow, changed to brown and my stools were getting more consistent and bulky.
This week (Monday night) it started to get yellow again and more thin. I ate some chestnuts on Sunday could this be the reason?
Is really weird bc since I started the enemas I had brown stool all of last week.
I was also at my boyfriend’s house last week, and I came to mine to sleep on midday and then next day the yellow kinda thin stools came back (I had dinner w/ him and had a BM before I left his house and it was brown, bulky and “normal” and I didn’t change anything in my diet)
Any ideas?

Also hello Titou! How have you been doing?
Posted 11/16/2023 4:07 PM (GMT 0)
Just to clarify, you're on the 3g salofalk granules daily and 4g enemas nightly? You could call your GI and ask to increase the oral dosage to 4.5g daily...especially since you dont know how high the inflammation is.

How many chestnuts? They're insoluble fibre, and if you didn't eat them with anything else, it could quicken the digestive tract more than normal. How many times a day are you going now?

q
Posted 11/16/2023 4:39 PM (GMT 0)
Hi Q!
I’m doing 3g granules + 1,5g granules at night, so it’s been 4,5g for about 2 weeks. Also at night I do 4g salofalk enemas.
I ate 10 or a bit more, I was feeling confident since my symptoms have been improving since adding the enemas, I ate them after lunch on Sunday.
I’m going 1-2 (sometimes 3) times a day. No blood but since monday at night they have been yellow and more thin.
I just can’t figure it out, bc before I left my boyfriend's house I went to the bathroom and it was a brown color, bulky and all. And then 30-40 minutes later yellow and thin (and some a bit fluffy)

Post Edited (BonLS) : 11/16/2023 8:44:28 AM (GMT-8)

Posted 11/17/2023 4:57 PM (GMT 0)
I saw a bit of blood today. I’m so sad.
I’m hopping is temporary and I’ll stop seeing blood but I’m scared
Posted 11/17/2023 6:07 PM (GMT 0)
How is the urgency? It's an up and down with healing. If it's consistent and getting worse, then ask your doc for a stool sample kit again, because something else might be going on.
Did your doc did blood tests for liver enzymes as well?

q
Posted 11/17/2023 6:36 PM (GMT 0)
I’m going tomorrow to take blood samples to check my liver enzymes.
No urgency but the blood really scared me.
I’m going to two GIs and on the 27th I’m going to got to him and he’s going to send a sample kit anyway because he wanted to know how my calprotectin was at this point.
Praying this is a minor step back and I pick up on the improvements a had being seeing last week (brown more bulky stools q/ no blood)
My GI had prescribed a corticosteroid if in 15 days the enemas alone didn’t help with the blood, the thing is, I hadn’t see blood in almost 2 weeks and I saw it today, at what point do I start taking it?

Post Edited (BonLS) : 11/17/2023 11:56:55 AM (GMT-8)

Posted 11/18/2023 3:11 PM (GMT 0)
What you're experiencing isn't unusual. You can use the steroid enema in conjunction with the mesalamine...one in the morning after the majority of your bms, the other at night. If it's a foam, it will be easier to retain in the daytime. There's no reason for you to stop the mesalamine...you're not having issues during the night with it or worse bms in the morming till recently?

Good on the blood and stool tests being done. Ask it be broader than only calprotectin.

q
Posted 11/18/2023 5:12 PM (GMT 0)
I can keep the enema all night, have no issues with it, of course is not entirely comfortable but it doesn’t bother me.
When I started the enema my BMs improved in color and consistency (wider), but now they are a bit more like it used to be before I started using the enemas. (Thinner and more yellow).
Today I think I didn’t see blood.
Posted 11/19/2023 6:39 PM (GMT 0)
Hi...good on the enema retention. What is the usual schedule of your bms...urgency..how many...are they explosive, etc?

q
Posted 11/19/2023 9:28 PM (GMT 0)
Hi Q! Usually in the morning and at night (before I put the enema, sometimes I don’t feel the need to go at night)
I don’t have urgency, but if course when I feel the need to go I don’t try to hold it for longer than I have to. But I can calmly go to the bathroom. I’m still experiencing gas, a have more in the morning but I feel it has reduced a bit and I feel more comfortable now, because I don’t expel mucus with gas anymore.
The are not explosive, i can pee before starting to poo (before, i started to poo right as i sat on the toilet).
Today I didn’t see blood again (maybe a very small dot, but is not like it was on Friday, which is good).
My stool is still more yellow colored (not like mustard yellow, but still) this I really don’t understand because the week I started the enemas they turned brown and were consistently this color for a week…
Ah the results of the liver enzymes came back and everything is ok!

Post Edited (BonLS) : 11/20/2023 2:46:41 AM (GMT-8)

Posted 11/21/2023 6:23 PM (GMT 0)
Good to hear all is good re liver enzymes.
Seems you're on a good progression of healing, and not having as many bms or urgency is a good thing. Increased tansit time can cause yellower stools. I'm suspecting that because you're sometimes going at night. I sometimes have had an extra one in the evening, depending on how much and what I've eaten the day before.

I'm thinking that a better option for you, rather than the steroid enemas possibility, is to see if your GI would consider adding the oral topical steroid Uceris (if he/she isn't happy with your progress).

Are you taking any supplements or having a change in food intake?

q
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