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Success on Remicade move to Rinvoq

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Posted 2/4/2024 4:42 PM (GMT 0)
Long story short, I had 15 years success on Remicade at 10kg every 4 weeks.

I have been on Rinvoq 45mg 11weeks and it is not setting any records, worried it is going going to be a failure for me.

It seems like "most" people who have had success with Rinvoq did NOT have major success with Remicade, just wanted to see if anybody else has noticed or experienced that?

Then I wonder, maybe I am asking too much from any of the drugs considering Remicade is the only 1 you can double does and double frequency.
Posted 2/4/2024 8:08 PM (GMT 0)
What are your current symptoms? Have you had any improvement?

I'm not sure where you are reading that people that are successful with Rinvog did not have success with Remicade, this is not true from I have seen in this forum & in the crohns forum.

Remicade is not the only drug that can be doubled, Humira can be used weekly, infusions & injectable meds can be moved closer together. I think you have a lot of frustration because you are getting poor information from other sites.

After you finish your 12th week of 45mg do you have an appt with your dr? Speak with your dr & get some insight.

Take care.
Posted 2/4/2024 8:25 PM (GMT 0)
I am not aware of another biologic that can double the "standard" dosage and frequency.
Posted 2/4/2024 8:59 PM (GMT 0)
So basically what I am looking for is if people have had success with Rinvoq that needed the 10kg every 4 weeks of Remicade.
Posted 2/6/2024 6:27 PM (GMT 0)
Twin,,, I took Remicade infusions at 8 week intervals for over 20 years. I was in remission, on and off the entire time; but it worked better than anything else I'd tried. Then I built antibodies to it and finally was switched to Rinvoq. Since my first week on Rinvoq, I've been in total remission. I have had and have, no symptoms. My former GI doc. retired last year; so I'm now seeing a new gastro. doctor. I am curious as to why you are still taking 45 mg. I was told that 45 mg. is only the LOADING dose for one month and then you switch to 30 mg. My doctor has not lowered my dose to 15 mg....and I'm afraid for him to try. LOL I was prescribed Humira and Entyvio and both were failures in my case. Good luck to you; wish I could be of more help.
Posted 2/6/2024 7:42 PM (GMT 0)
Hey, so I am taking it for Crohn's.....(i was originally diagnosed with Colitis in 2000 but that changed...I am not even certain but is what they tell me ;)
The standard is 12 week at 45mg then 30mg or 15mg.
I was able to get a 2 week sample of 45mg from my Dr. so I will be taking 45mg for 14 weeks.

Kind of a pattern I am seeing, a lot of people with success on Rinvoq did not take 10kg every 4 weeks of Remicade.
(not saying all but a lot of the success I am seeing is showing people that took Remicade at the lower dose/frequency are having a lot more success)

Almost as if since I needed the MAX of Remicade the Rinvoq won't be strong enough. Hopefully I am wrong.......
Posted 2/13/2024 6:38 PM (GMT 0)
twin...yup, I WAS on the max dose of Remicade. Rinvoq has been super great on 30mg. Good luck!!!!
Posted 2/13/2024 9:43 PM (GMT 0)
Geez...good it is working for you!! (I thought I was the only person who need 10mg/kg every 4 weeks...lol)

It is working for me (to an extent) but I just don't feel like my normal self.....hard to explain.
I notice my hip pains are back and I can feel a low grade throb in colon.
However frequency and urgency are good.
I will be going down to 30mg in 2 weeks.
Thanks for response!!

Post Edited (twinn-burner) : 2/13/2024 1:48:45 PM (GMT-8)

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