IBD & Kidney Stones

Just started this so I didn't hijack another thread.

3X....
I have a few inches of my colon left so they are still calling it a colostomy... But it's a very small amount.... so unsure if I'll be the same as you...

I have started to struggle with kidney stones yet again. I stopped taking an over the counter supplement (Moonstone Stone Stopper) and went to prescription potassium. I started to have symptoms within 5 months. Imaging shows multiple kidney stones again. This month I switched back over to the Stone Stopper and symptoms are starting to improve. My urologist thinks it's the different citrates Moonstone uses to break down the kidney stones--it just works better for some people. I'll go back in for another ultrasound in June.

I previously stopped taking lemon juice in all water drank throughout the day .... And apple cider vinegar in the morning and night. (2 tablespoons in 6 to 8 ounces of water taken once a day or split up to twice a day--right before breakfast and dinner). I have started those back up too.

I think it's a combination of all 3 that clears them... I didn't develop any new stones until I switched to prescription potassium--and then they developed quickly.

Please let us know how you are doing.

Oh...and minimum amount of liquids per day recommended by urologist is 120 ounces. Very hard to do.

Clo

Post Edited (clo2014) : 4/21/2024 11:11:19 AM (GMT-8)

3X,

Do you know how long it takes you to develop kidney stones?

They've found 2 at 3 mm., and one smaller one just starting to form. I'm surprised they formed that quickly.... The only reason I know the timeframe is because he wanted another "baseline" before I switched meds. I had 0 at the first ultrasound and then 3 when he checked because if symptoms.

Do you do anything besides the potassium? Did you change your diet? How much water do you drink a day?

I'm trying to figure out what I'm doing wrong.

Clo

I've been taking moonstone for over a year because of my kidney stones. I'm going to have to have surgery to take one out, probably next week.

Lazer with stent. The stone is traveling downward towards the bladder. I only have a discomfort in my lower back. The doctor has been monitoring it for awhile now and I've been going for cat scans and x rays.

I hate being put out for surgery but I might not have a choice

3timechamp said...
Been there done that few times.
I've been out for all my procedures.
Not too bad for me.
Good luck

Thank you! I was supposed to go on vacation May 2nd but I changed the date until May 23 just to be on the safe side.

The doctor says the stent only stays in for 3 or 4 days. Did you have a stent? Was it very uncomfortable or manageable?

3timechamp said...
Stent is fine. No issues. They can give you anti inflammatories and/or painkillers just to be safe in case of irritation.
Funny bc when they take out stent there's no meds given.
I thought it would be the end of the world.
Oh no HELP. It was nothing. Quick and no pain

Ok. Thanks for the response! For me, I hate being put out. I've always had a fear of not waking back up.

Old Hat said...
Michelejc, I'm sorry to read that you're facing a kidney stone procedure. I can speak to the fear of "being put out". When I was about to be anesthetized in hospital operating room some yrs back, the doctor directed me to "look at the blue light and inhale". Well, I looked at the blue light, BUT I then held my breath for as long as possible!!!! The next thing I perceived was a wall clock positioned near the gurney I was waking up on. (In Recovery Dept.) My 1st thought was: "Wow-- this is so cool! I'm still alive!!!!!" Then I realized that I was extremely thirsty. *** Beaming positive thoughts your way-- also, many thanks for pursuing the tech issues we had here with the new administrators 'cause it seemed to definitely improve access to our forum 'til one day last week, (in my case anyway). Take good care and let us know how you're doing as time/energy permit. / Old Hat (40+ yrs with left-sided UC; in remission taking Colazal)

Thank you for the positive thoughts!! I will keep you informed. The "new" owners are not very good at answering the moderators questions or keeping us up to date with things. We are trying!!

3X,
Good grief.... You should be a partial owner. That's a lot.

Michelejc,
The procedure isn't bad. For me the stent was irritating and very uncomfortable.... But most urologist give you pain pills for it. I had mine in place for a week. Taking it out was a surprise, no pain meds, they release the bulb pressure (which holds it in place, so you get immediate pressure relief) and then they quickly remove the stent. Don't look! It burned coming out... But it wasn't bad.... And I am a wimp!! But the "looking" for some reason freaked me out.... But the pain... Naw .. that wasn't too bad. I took pain pills intermittently during the week of the stent....(Meaning as little as possible...but my friend said she took hers and got ahead of the pain and didn't feel anything all week.... My urologist doesn't give pain pills out very often. I got 5 for after the surgery... I used 4 and saved one for the stent removal. After the 4 I used Tylenol if needed and I was fine. I cheated and took the saved one an hour before my stent removal appointment... Because my friend said it helped her...

But stent removal was so quick it really wasn't needed ....

I'm sorry the Stone Stopper didn't dissolve your stones. Hopefully your urologist will send them in to see what they are made of.... (My urologist didn't so we are now hoping the Stone Stopper dissolves these....like it did before ..)

Please let us know how it goes. ..

Sending positive thoughts your way!

Clo

May 7th for my surgery. If there is a cancellation for April 30, they will let me know.

I'm calling surgeon this morning to see if i can get in tomorrow. I feel like crap. Tired, nauseous, pain....i'm taking muscle relaxers and nausea pills. And heating pad.

I hate this because I'm usually always on the go. I hate when I am sick.

i made a new thread....