in response to what was said..
he didnt say the diagnosis was wrong but he doubted it and asked me if i had one or more episodes because if i only had one he would have told me that i had a different condition not ulcerative colitis.
about the biopsies, he said biopsies are infact becoming a waste of time because the bowel looks completely normal with no inflammation at all. Infact he said that the idea of biopsies is being changed and instead doctors are advised to look more carfully instaed of concentrating on biopsies as the chances of catching anything significant is very small. There is a lot of debate around biopsies, etc.. i trust what he says because he's one of the pioneers in the IBD field.
about medication, asacol/pentasa/etc work to lessen the inflammation of the colon. Average people with UC have a chance of 70% flare up every year without asacol/pentasa. That is reduced to 20% with asacol/pentasa. If you havent had one in 5 years and havent been on any medication for one year and your bowel looks clean with no inflammation at all then there is no neeed to take anti-inflammation drugs. He told me I will probably get a flare up sometime again. Maybe in 5 years, 10yrs, 15 who knows maybe i will never get another one but it has no connection to taking the medication - in my case. also he said that if there is any reason to take it, it would be to reduce the cancer risk and if theres not much activity in the colon then the cancer risk is low anyway - not at normal levels but at the lower end of the UC spectrum.