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Posted 9/16/2007 8:08 AM (GMT 0)
I was diagnosed with pancreatitis and admitted to hospital through emergency twice b4 bn diagnosed with UC wondering if anyone else suffers from strange symptom. My Dr's at a loss meds cause pancreatitis and I allergic to sulphur. Anyone have their Gall bladder out and then find they diagnosed with UC. I know strange Q but just wondering gif there is a connection
Posted 9/16/2007 1:12 PM (GMT 0)
I was diagnosed in March with Pancreatitis. I spent a total of 23 days in the hospital. Of the causes of Pancreatitis they ruled out the #1 cause of alcohol, the #2 cause gallbladder (they did remove my gallbadder thinking that was the cause), they ruled out #3 autoimmune, and they also ruled out all my UC meds by taking them away for 2 months. I go to a world renown Pancreatitis MD and he told me that I am I the toughest case that he has encountered. They finally figured out that my pancreatic duct was scarred shut. All my CT scans, MRCP show that my pancreas looks normal which is a great thing. the Pancreas is the only organ in your body that can actually eat itself due to the enzymes that it makes. When I went back on my UC meds I went into a flare that I cannot get under control. UMMM are the meds causing me to flare? Makes a person wonder!
Posted 9/16/2007 7:13 PM (GMT 0)
I never had Pancreatitis, but I had my gallbladder out, and all my problems started.
First, I developed IBS and years later UC. It kind of makes you wonder if it is all related.

Janice
Posted 9/16/2007 8:40 PM (GMT 0)
 I have actually wondered the relation between UC and pancrea*** myself. Shortly after experiencing my first symptoms with UC (not yet diagnosed), I had my first attack, but was never hospitalized b/c I thought I could wait it out (bad choice). Approx a month later, after being diagnosed and establishing a relationship with a GI doc, I had another attack. I was hospitalized for that attack, but they still do not know the cause. I am not a drinker, there was nothing wrong with my gallbladder and I wasnt taking meds that would have caused the attack. I have had had UC since Feb 06, but I havent had any problems since-even with taking 150 mg of Imuran. There has to be some relationship b/c I have talked with a few people with this disease and have also had pancreatitis.
Posted 9/16/2007 11:49 PM (GMT 0)
I started Prednisone on Thursday and today my Pancreatitis symptoms started in. Because they never found why my pancreatic duct was scarred shut I wonder if my Pancreatitis in March was from the prednisone I was on in Feb.
Posted 9/17/2007 2:09 AM (GMT 0)
I am diagnosed UC early this year. Dr. gave me ASACOL 6 per day until the flare under control but

then Asacol caused Pancreatitis.

Stopped Asacol, Pancreatitis looks okay.

Not talking anything now.

 

Posted 9/20/2007 1:18 PM (GMT 0)

OH MY GOD! They also told me that even though my pancreas had nothing wrong with it that they could see. No stones in my Gall Bladder that I should have it out. I wasn't convinced so I refused the surgery call it stubborn or even stupid. But now I'm calling it," I know my own body better then a Dr even if he is  a specialist.  To me the removal of my Gal Bladder seemed un-neccessary because I wasn't in constant pain and noticed it was only really painful when i had gas. In hospital they thought I was a freak because I kept telling them that when I was lying on my stomach it felt better (which it did ). Because I think i was helping the gas move either up or down

I went to my local GP today and he's finally started to join the dots. about time i reckon I've bn complaining of symptoms 4 the past 3yrs b4 I was actually diagnosed with UC.

He is sending me to another specialist (I have just moved back home), he calls it " Ascending Cholonjitis "

(not sure of spelling he's handwriting is terrible haha).

This is when there is random inflamation of the ducts to the pancreas, liver can infect the small and large intestines (I first had terrible problems with my liver that they cldn't explain.

I'm just dumb founded that you all have similar problems. Possibly due to my stubborness os due to the fact that I don't appreciate the cure being worse then the disease I'm not really on many meds. It's also because all that I try give me a pancreatitis.Not that I recommend anyone go off their meds if it's working then stick with it. I just can't help feel that Dr's shld be able to detect this sort of thing earlier. Or in my case not take three yrs 4 them to finally give me a diagnosis which is useless because they no nothing of the disease it's effects or even how to reduce it. confused

Posted 12/9/2010 8:19 AM (GMT 0)
hi i had pancreantitis 5 times and am still unknown why i have it they took my gullblater out not one problem with it. I have had a million dollar work up litterally test affter test probally got each one twice. Now that all my doctors have given up on me and dont care if i am in pain i had to get new ones and now am going to minosota to a pancreatic specialist who perfected the ercp so hopefully he can figure out something anyway was in the hospital for 4 weeks 30 days and got an nj tube in my nose. went home with it for several weeks then started eating again cause my old stupid doc told me 2 big mistake i get very baqd pain when i eat and dont eat any fat higher than 3 grams and the weirder thing is im only 15 and its so unually to have a case like this and the docs just cant figure this out weeks and months after going through 2 surgeries in the hospital im still in pain and we think the doc hit a nerve when he gave me a ercp cause that makes sence why im having so many nerve problems.
Posted 12/9/2010 12:59 PM (GMT 0)
Can anyone explain your pancreatitis symptoms to me? I have had blood tests in teh past to check for the enzymes in my pancreas, liver,etc and also an ultrasound to look at my gall  bladder and it all looked fine! I have an ache, a lot of the time, in my upper stomach area. Lately sometimes to the left.

I also had an endoscop whichshowed a little 'irritration' ? My GI said I have a food intolerance and have to figure out what it is.

What do you all think? 

Posted 12/9/2010 1:06 PM (GMT 0)
Dont drink alcohol nor soda.
Posted 12/9/2010 1:31 PM (GMT 0)
oh, I meant to say that it showed a little irritation in my stomach. Those were his exact words.
Posted 12/9/2010 2:27 PM (GMT 0)
Kweeks, I would think you would definitely know if something is wrong with your pancreas and since your testing came out normal, I wouldn't worry about it. To me it sounds like you might have mild gastritis or even as your doc said, a food intolerance. I have gastritis and sometimes I get a weird ache in my stomach even on a PPI. The ache/pain is sort of in that area between the bottom of your ribs in that "V" area. One time I forgot to take my Prilosec for a week and I had severe shooting pain in my stomach and nausea. Have you ever tried or been on a PPI such as Prilosec or Zantac?
Posted 12/9/2010 3:11 PM (GMT 0)
Hi Sherry,
When I was pregnant (son is 13 months) I was told to take Zantac, not only for heart burn but also for that weird pain that you are describing in the upper rib area. I took it but not for a long time, matbe 2 weeks. I am not great at taking meds if I dont see an immediate improvement.
I think that you AND Quincy have both recommended this for me now so I should do myself a favour and just take the Zantac!!! How long until it starts to help would you say? I know that tomatos and tomato products dont do well with me. That is a food intolerance that I know of.
Sorry if I hijacked this thread! BUT thank you for the insight :)
Posted 12/9/2010 3:40 PM (GMT 0)
For me, what prompted me to start originally on Prilosec is that I was having the stomach pains, nausea and a painful lump like feeling in my throat. And I would say that I didn't really feel great until I was on Prilosec for about 3 weeks/a month. I very rarely have foods that bother my stomach now.

Oh and many insurances will cover otc meds such as Zantac or Prilosec. I usually have my GI write me a script for it and I only pay $5 for generic as opposed to the what? $30 or so dollars for the otc?
Posted 12/9/2010 5:46 PM (GMT 0)
kweeks...I hope the doc tested you for h. pylori.

Take the zantac...if you shop Costco, get them there.

I only take them at night before bedtime, but I used to take them twice a day...half an hour before eating in the morning (so when I got up) and at night.

Also, you could ask for low dosage of dicyclomine.

q
Posted 12/10/2010 12:31 AM (GMT 0)
HI Quincy,
They did test for h pylori. All clear. I bought and took Zantac today. Its the max strength dose, I think I will take one each morning and see how it goes after a few weeks on it. It says you can take up to 2 a day but I'll start with 1.
What's dicyclomine?
Posted 12/10/2010 2:03 AM (GMT 0)
Dicyclomine is the generic name for Bentyl. It's an anti-spasmodic - it reduces the cramping and peristalsis.
Posted 12/10/2010 2:39 AM (GMT 0)
In Canada, it's called Bentylol. Love it! lol. Definitely good for cramping...and it does also reduce acid in the stomach.

Yes, I took 2 a day, in the morning and at night...(that's when I lost my voice because of the reflux)..amazingly it worked well.

Keep us posted as to how you're doing. If you take it in the morning do so a half hour before eating.

q
Posted 12/10/2010 4:40 AM (GMT 0)
PORT80.... I too had pancreatitis from Asacol back in 1993. My doc said I was the first.  I had non-symptonmatic pancreatitis.  My enzyme counts were sooo high. I was in the hosiptal for 3 days.

  I later became decensitized to Asacol.

My brother also had parcreatitis.  There are only a few ways to get it.  He got it from Pancreas divisum.   It is a birth defect. He was 16.  That is also rare. Especially to find it at age 16

Posted 10/24/2013 3:53 AM (GMT 0)
This is my first time to post here. Can someone please tell me what your symptoms were when you had pancreatitis?

I have UC and have been on Asacol for 12 years... I just changed to Apriso yesterday.

I have had pain between my shoulder blades and through my chest and left side of upper abdomen for almost a week. I woke up in the middle of the night two days ago with the most severe burning pain in-between my shoulder blades and all the way around my chest. It's hard to distinguish exactly where it hurts sometimes. Tylenol and Advil take the edge off, but do not eliminate the pain. Does this sound like it could be pancreatitis?
Posted 10/24/2013 6:28 PM (GMT 0)
Don't take Advil...most doctors will give an absolute NO for UCers.

Go to your doctor and get him to do pancreatic enzyme testing.

What you have could be muscular, lung, nerve, stomach, reflux, diaphragm, hernia, gallbladder or pancreas related...so call your doc.

q
Posted 10/24/2013 7:05 PM (GMT 0)
Thank you for the reply! I will call my doc if it keeps up. It seems to be getting better, so I'm assuming it's muscle strain. My doc said I could take Advil once in a while, but he prefers I use Tylenol. Unfortunately, Tylenol barely touches it when I'm in a lot of pain. :-/
Posted 10/24/2013 7:31 PM (GMT 0)
try Tylenol with methocarbamol...it comes in Tylenol for back pain.

q
Posted 10/24/2013 7:37 PM (GMT 0)
Thanks! I haven't heard of that before. I will try it! :)
Posted 10/24/2013 8:57 PM (GMT 0)
My GI specialist actually linked my case of pancreatitis to the Azothioprine.
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