How much weight have you lost?

When I was originally diagnosed and was desperately ill, I went from 105 to about 90 lbs. I was skin and bones.

I'd highly recommend you try Absorb Plus shakes that are formulated specifically for IBDers instead of Ensure. Ensure, Boost, etc. all have so much sugar and unhealthy fats.

http://www.holistichealthshoppe.com/#6

I'd also suggest you start weight training, if you're not already. Start slowly and do as much as you feel comfortable, but this is the best way to counteract the muscle wasting and gain your weight back.

I'm one of those people with UC who battles with trying to lose weight not gain. Sigh. In my very first flare I lost about 8 pounds. I've never lost any weight since and it's actually really hard for me to lose weight. I have no idea why this disease makes some people drop pounds so quickly and others stubbornly hold onto them.

I agree that it will come back once you're well. I'm 5'6" and at one time I weighed 107lbs down from 125lbs. I looked like a skeleton but once I got feeling better I managed to get my weight back up to the 120's again. Just be sure to take a multi-vitamin to keep the rest of you healthy.

I've lost about 20 pounds, but I was overweight, so it's the only positive that I'm seeing in this.

Lost 25 pounds then was prescribed Prednisone and gained back 15 pounds.  While on Prednisone I am eating everything in sight.  I mean everything!  Which is a good thing, I guess, because before I started taking Prednisone I couldn't handle food.

I've lost 115lbs in the last 2.5 years. My most recent flare, in 4 months time, I lost 35lbs and was down to 103. I'm back up to 113, but I'm only 5'1" tall, so that's an ok weight for me.

When I was diagnosed I was at my Weight Watchers Goal Weight of 162, on Prednisone for 18 months I went up to 178 lbs and was feeling really uncomfortable (especially as I refused to buy bigger clothes!).

Once I started on Remicade in July and tapering off the Prednisone, my weight started going down as it was easier to eat less. But the 2nd Remicade stopped working after only four weeks and I felt nauseous and exhausted all the time and lost more weight quickly.

I had a third Remicade a few weeks ago but it hasn't completely kicked in yet. I do feel a little better, not quite as exhausted, but still unable to work at my pre-flare up rate. I groom dogs in a mobile van and can no longer groom more than 5-6 per day and I used to groom 7-9 per day; it's a considerable loss of income, but I'm still doing okay.

And while I no longer am nauseous for half the day and just not hungry the rest of the time, I still get the nausea every few days and I really don't have much appetite. When I do eat just because I ought to, half the time it makes me feel ill. I can't remember the last time I ate a vegetable. I mostly exist on breakfast bars mid-morning and tortellini for lunch and dinner with a little olive oil on it. That and mashed potatoes are about all that really agrees with me. I am now down to 158 lbs, that's 20 lbs in less than two months.

I hit a "hippie" store on Monday that sells all sorts of supplements and homeopathic remedies and such and I am trying something called IntestiNew that claims to heal the intestines. It has L-Glutemate, N-Acetyl D Glucosamine, Gamma Oryzanol, Ginger, Marigold, Marshmallow & Cranesbill. It's a foul tasting powder but not too awful mixed in with DanActive probiotic yogurt drink. Been taking it for just two days so far. Anyone have any luck with this stuff? I am happy at this weight but don't want to lose any more.

Meesh

I lost almost 30 lbs and I now weigh 147lbs (I'm 5'7"). The loss is mostly muscle. Also, my hair's gone gray, even hair on my arms is graying. That's whatever little hair's left on my head. I don't think losing weight like this is good and possibly traumatic for the body.

I had my first major flare 6 weeks after I had my son two years ago. Needless to say losing the baby weight wasn't a problem! The only problem was I lost the baby weight and then about 17 pounds more. I'm 5'3 1/2 (don't forget the half!). I got to about 102. I'm 107ish now (was 123 before baby). I have to eat almost constantly it feels like to keep weight on. I had been going to the gym alot but I cut back on cardio and added more weights. Hang in there!

Before the big flare, I was 130, went down to 107 while in the hospital (5'7" male).  Now I'm a healthy 140 pretty constantly.  I'm 135 now only because I've caught a nasty virus. 

I think I lost about 10 lbs or so back when I was first diagnosed in March. I normally weigh around 102-105 and I think I went down to 95-97. The doctors were concerned that I only weighed 96 lbs, but I kept telling them that I normally don't weigh much more than that. I'm back up to 103ish now.

I know this post is old but wanted yo share in case anyone is listening still. I was diagnosed with UC is 2008. I was hospitalized 17 days fighting toxic mega colon.I began Remicade which made me violently ill.2010 removed from Remicadevand maxed out on all medications so I could try to live a somewhat normal life. This past Feb 2012 I became so I'll with multiple hospitalizations I've lost 97 pounds. Lost hair.unable to eat because the pain is so bad. Jan 9 I will go on Humira and pray remission is the outcome. I almost lost my appendix secum and colon 3 weeks ago from an infection caused by my UC. I have lost so much blood and in combination with severe dehydration I developed bloodclots known as DVT. I'm in an extremely dangerous state but so scared to go to the ER for fear of torture.I'm lost but praying on Humira to work.I'm only 34:(